If you’ve ever had the chance to meet Allison Moise—whether at one of our mom retreats, in a support group, or through Hope for HIE’s peer mentorship program—you probably felt it right away: that grounded, steady presence that makes you breathe a little easier. Allison has worn many hats within our community: parent, peer, mentor, and fierce advocate. Over the […]
Each year, HIE Awareness Month is a time to amplify voices, share stories, and build a stronger, more connected community. Our 2025 Awareness Month Ambassadors are parents, advocates, and changemakers who are dedicated to making a difference—raising awareness, offering support, and putting Hope in Action. In this special collection of letters, our Ambassadors share their journeys, challenges, and hopes for […]
Advocacy isn’t just a buzzword for us—it’s about taking real action – whether big or small – to support families navigating HIE. Through Hope in Action, we’re working to raise awareness, connect families with essential resources, and push for meaningful change in healthcare, education, and policy. And no matter what advocacy looks like to you, one thing is clear: real […]
Medical procedures can be overwhelming, especially for kids. But what if there was a simple way to make those moments feel less scary and much more manageable? That’s where comfort positions come in—they’re a small change that can give them enough security and support to shift stressful situations into moments of comfort and care. We met with Annie Gunning, CCLS, […]
Hope for HIE hosted its second workshop at the 2025 International Newborn Brain Conference in February, as a part of the process to develop long-term follow-up guidelines for neonatal Hypoxic Ischemic Encephalopathy, as no guidelines currently exist. Children with HIE often are only followed closely until age 2 or 3, and many will have developmental impacts into childhood and beyond. […]
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