Loss in HIE is unfortunately one of the devastating outcomes for too many families. It can be experienced either in the neonatal period, or anytime during childhood or even adulthood from complications from the root of HIE.
At Hope for HIE, we work to ensure our loss families are wrapped in support and are always working to build out more to ensure they feel seen, loved, and that the legacy of their children is remembered.
We have many resources for our HIE families to connect. Whether you have lost your HIE baby in the neonatal period, or in childhood, you'll find a community of peer support that is there with you in your grief.
We host a 24/7 online remembrance vigil on our website at HopeforHIE.org/hieremembrance that any loss family can have their child included in.
Becky Detlef serves as Hope for HIE's loss coordinator and on our Board of Directors. She is there to coordinate and connect families to bereavement support. As a loss mom herself, she understands the complexities and brings her perspective to shape Hope for HIE's programming and strategic direction.
Vanessa Zinke, LCSW, is on staff for social work support, leading monthly loss video support groups, and connecting families to community resources as needed.
Hope for HIE connects loss families through a 24/7 worldwide peer support group, managed and run by fellow loss families.
We are finalizing our new peer support mentor program, and look forward to sharing more details for new to loss families to enroll with trauma-trained loss mentors.
We also provide bereavement support packages for our new to loss families, a commemoration gift for ALL loss families, and have a special holiday giveaway program just for our loss community.
We are always working on ways to further support our families and are always thankful for the support to continue to invest in more programs and support resources for our community.
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