Housing comes up constantly in conversations across the HIE community; how to organize the space you already have, when to renovate, when to move, and how to plan for a future you can’t fully predict. So Hope for HIE brought three HIE parents together to talk through how they’ve actually navigated it. MSW intern Kimberly Taylor hosted the session, with […]
An HIE diagnosis doesn’t just change your child’s story, it reshapes the relationships around you. In this Peer Perspective Series panel, two HIE moms, Shayna B. and Kati L., opened up about how relationships with partners, family, medical teams, and community shifted, strained, and grew across their HIE journeys. We’re sharing the key notes from the Peer Perspective Panel, along […]
Parenting a child with HIE is one of the most emotionally complex journeys a family can face, and yet conversations about parental mental health are still too rare. In this Peer Perspective Series panel, three HIE parents opened up about their own mental health journeys with honesty and vulnerability. Follow along as we highlight the key takeaways that Kat, Ravi, and Kori […]
Navigating an HIE diagnosis is its own complex journey—and for some families, that path eventually leads to a second diagnosis: autism. In this Peer Perspective panel, Hope for HIE social worker Jen Schaefer was joined by community members Crystal F., Kacie M., and Crystal E., who shared their lived experiences at the intersection of HIE and autism. Together, they explored […]
Pregnancy after an HIE diagnosis can bring forward a complicated mix of emotions—hope and fear, grief and joy, confidence, and anxiety—all at the same time. In this Peer Perspective panel, Hope for HIE social worker, Jen Schafer, was joined by community members Sarah and Suzi, who shared their lived experiences navigating pregnancy, birth, and family life after HIE. As with […]
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