Every HIE journey is different — and yet, there are powerful threads that connect families across experiences, diagnoses, hospitals, and years. In this Peer Perspective Series conversation, Brigid and Ana, both mothers of children with HIE, shared their lived experiences as full-term NICU families and how those experiences shaped their paths into advocacy, healing, and connection. Their stories remind us that advocacy […]
As the saying goes, “It takes a village,” and at Hope, we have a strong one. In our latest HIE Peer Perspective session, parents from our community shared their real-world tips and personal experiences navigating school with children with HIE. From preparing for transitions and understanding IEPs to advocating for supports and fostering inclusion, their insights offer practical guidance and […]
When your child is diagnosed with neonatal or pediatric-acquired Hypoxic Ischemic Encephalopathy (HIE), one of the most difficult parts of the journey is learning to live with uncertainty. From the earliest days in the NICU or PICU, questions about outcomes, therapies, and development are common, and there are often no clear answers because of the nature of HIE and brain […]
As the saying goes, “It takes a village,” and at Hope, we have a strong one. In our latest HIE Peer Perspective session, parents from our community shared their real-world tips and personal experiences navigating vacation and travel with medically complex children. From choosing accessible destinations to managing medical needs on the go, their insights provide practical support and encouragement […]
As the saying goes, “It takes a village,” and at Hope, we have a strong one. Every month, our HIE Peer Perspective series brings together committed members of the HIE community to share their valuable insights into the diverse impacts and outcomes of HIE, offering firsthand experiences and guidance on navigating its various challenges.In our latest session, parents from our […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
