Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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November is Epilepsy Awareness Month

November 15th, 2020  |  By HOPE FOR HIE FOUNDATION

Epilepsy is one of the more common diagnoses to come from HIE, and there are certain types of seizure disorders that HIE children are more prone to developing. According to research studies, HIE makes children five times more vulnerable to developing epilepsy at some point in their life. In addition, HIE is a leading cause of several rare types of […]

Christopher Carosella, MD, joins the Medical Advisory Board

October 30th, 2020  |  By BETSY PILON

We are very excited to welcome Dr. Christopher Carosella from Johns Hopkins to our Medical Advisory Board. He will be working with us to bring more education to our community in the area of neurological-based sleep issues. Christopher Carosella, M.D., is a pediatric neurologist with expertise in epilepsy and sleep medicine. Dr. Carosella earned his medical degree from the Drexel […]

Hope for HIE Announces Partner in Hope – Trexo Robotics

October 27th, 2020  |  By HOPE FOR HIE FOUNDATION

We’re excited to announce Trexo Robotics is a new Silver level Partner in Hope, through our Partners in Hope program. Trexo’s support will help us fund valuable work being done by Hope for HIE, increasing our ability to tackle two big goals in this next growth curve of our organization: 1) Decreasing the incidence of HIE and 2) Improving the […]

Natasha’s Story

Natasha’s Story

October 18th, 2020  | Family Stories  |  By NATASHA WHITTON

Our daughter, Aubree, was born on the 16th December at 9.12am. After approximately 14 hours in labour my waters broke which showed thick meconium, my partner (Tom) called for the midwife and before I knew it I was being wheeled down to the labour ward. The CTG was put round me and we were asked ‘who’s cutting the babies cord?’ ‘do you […]

Learning Disabilities, Attention & Behavioral Challenges in HIE

October 14th, 2020  |  By HOPE FOR HIE FOUNDATION

While epilepsy and cerebral palsy get far more attention as noted outcomes from HIE, the prevalence of learning, attention and behavioral challenges, especially for those who have experienced a more mild outcome from HIE, are a significant burden that need more attention and follow-up care.

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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