Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Navigating a Plot Twist

Navigating a Plot Twist

December 23rd, 2020  |  By BETSY PILON

Just a few days before the Christmas holiday, my four year old and 8 year old children were buzzing with excitement. They begged us to have sleepovers in each other’s rooms, and we happily obliged, seeing their joy earlier in the year during the pandemic when they were looking for new adventures in an uncertain time. My husband turned back […]

Beth Robinson Swartz, MD joins Medical Advisory Board

December 9th, 2020  |  By HOPE FOR HIE FOUNDATION

We are very excited to welcome Dr. Beth Robinson Swartz, pediatrician, recently retired from Henry Ford Health System in Detroit, Mich., to our Medical Advisory Board. She will be working with Hope for HIE to represent the clinical pediatrician experience, supporting families with developmental concerns and disabilities. Her full bio is below. Beth Robinson Swartz, MD is a retired pediatrician, […]

Hope for HIE Announces Board of Directors Shift, Executive Director

December 1st, 2020  |  By HOPE FOR HIE FOUNDATION

Hope for HIE announces an organizational shift appointing Betsy Pilon as Executive Director, and David Ford as President of the Board of Directors. Hope for HIE is the premiere global organization dedicated to awareness, education and support for children and families affected by Hypoxic Ischemic Encephalopathy, a type of neonatal and pediatric-acquired brain injury. Pilon will be the first Executive […]

Hope for HIE Announces Partner in Hope – Medtronic

December 1st, 2020  |  By HOPE FOR HIE FOUNDATION

Hope for HIE is excited to announce the largest grant in foundation history with Medtronic plc’s involvement as a platinum Partner in Hope. “This is a historic day for Hope for HIE, to have the partnership from Medtronic allowing us to have the time and resources to move forward our mission to improve the quality of life for children and […]

Danielle Guez Barber, MD PhD joins the Medical Advisory Board

November 16th, 2020  |  By HOPE FOR HIE FOUNDATION

We are very excited to welcome Dr. Danielle Barber, a pediatric neurologist, laboratory-based researcher from Children’s Hospital of Philadelphia, and HIE mom, to our Medical Advisory Board. She will be working with Hope for HIE to not only represent the HIE parent experience, but bridge her clinical work and laboratory work with mouse models in HIE research to build connections […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

Share Your Story

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