Waiting. Watching. Hoping. Waiting some more. Watching. Waiting. Hoping. That’s what this HIE journey is all about. And it’s what makes it so damn hard. One day, you’re minding your own business enjoying your life with your head in the clouds, and the next minute your world, your hopes and your dreams are shattered by your child’s hypoxic ischemic encephalopathy […]
A kid in a candy store. That’s the best way to describe the feeling I got walking into the vendor hall at the Assistive Technology Industry Association’s (ATIA) annual conference this January. Stepping into this huge convention center filled with every possible piece of assistive tech hardware and/or software programs. Being surrounded by leaders in fields of AT and special education, such […]
For the fourth year in a row, Hope for HIE held 10 Days of Giveaways, where families can enter drawings for giveaways ranging from equipment to gift cards. Through these giveaways, we hope to make life a little easier for our families affected by HIE. This year, we were able to give 44 families a little extra HOPE for the […]
With over 5,000 families calling Hope for HIE home around the world, across all outcomes, our support network and information sharing is the largest collection of parent and family voices with neonatal and pediatric acquired hypoxic ischemic encephalopathy. While there is a lot of research that focuses on moderate and severe HIE, outcome tracking data continues to be lacking and […]
Dear Hope for HIE community, 2019 was an incredible year for our organization. We grew to serve over 5,000 families worldwide, which brought upon wider recognition from our clinical partners, opening doors to collaboration. Recognized by Facebook for Community Building We began the year being recognized by Facebook as a leading community on their platform at the 2019 Facebook Communities Summit, […]
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