Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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The making of Hops for Hope

The making of Hops for Hope

August 16th, 2016  |  By ANN GOELLER

After years of talking about hosting a fundraiser, Andy and Sarah Chrestman finally decided they wanted to do it. After several weeks of planning, and a lot of sweat, they raised approximately $14,000 for Hope for HIE, beating their initial goal of $7,500. Their New Orleans event combined all their favorite things: drinking, fun, food and their son who is […]

For the new moms

For the new moms

August 13th, 2016  | Family Stories  |  By ANN GOELLER

To new moms: This picture popped up on my news feed. It’s a picture of my then 2 month old HIE son GMO; God’s Miracle On earth – GianRaul. He is now 4 years old. This picture was taken only days after we returned home from 1 month in the NICU and another month in a rehabilitation hospital. As I look […]

Having a child after HIE

Having a child after HIE

July 31st, 2016  | Family Stories  |  By AMY CUTLER

I always knew that I want to be a mom. I was lucky enough to grow up with two sisters and understood how important siblings are. After we got married, we waited a little bit of time before deciding that we wanted to begin our family and our journey to becoming parents. It was certainly not an easy one from […]

What I have learned: one year in

What I have learned: one year in

July 30th, 2016  | Family Stories  |  By NICOLETTE FRIEND

Faith is now 13 months old, and I wanted to put together some of “what we’ve learned” to share with you. She’s currently admitted for the 7th time since our 2 month NICU stay, which has given me the time to get this together. Faith is pretty severely affected and will probably be my forever baby. But regardless of future […]

Don’t forget about yourself

Don’t forget about yourself

July 27th, 2016  | Family Stories  |  By JESSICA BALESTRIN

Hey you. Yes you, with a 3-day-old hair-do and last night’s formula on your shirt. When was the last time you took care of yourself? When was the last time you were able to pause between breaths, feel your feet on the ground and truly relax? As special needs parents, we often push ourselves to our physical and emotional limits. […]

SHARE YOUR HIE STORY

One of the ways many HIE families work through the trauma of their journey is sharing their story to help other families who will find us in their own HIE journey. We hope you’ll take a few minutes and share yours with us. We’ll publish it to our Family Stories blog!

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