My Life as a Fraud (Posted on behalf of the original author anonymously) Most of my life I wore my heart on my sleeve. I was an open book and comfortable being authentic. I had two degrees and a successful marketing career. I made friends easily and was blissfully confident in myself and my abilities. I had always worked hard, […]
Her first set of wheels! Emersyn has been so excited about getting her wheelchair, she has been telling anyone and everyone within ear shot. The truth is we all have ideas about “disability” and what it means to be “disabled.” What are your first thoughts when you see a person in a wheelchair? What about when that person is a […]
With her son in the NICU, Margaret Stuart stumbled across her new support network while searching for any information she could find about HIE. Margaret’s son, Merritt, suffered HIE at birth and has since been diagnosed with cerebral palsy, and has a charming personality that wins everyone over immediately. A Google search turned up Hope for HIE, and Margaret immediately […]
A motto of so many of our HIE families is that hope is in the journey. For Gabrielle Shimkus, finding that hope has been a process over the last two years since her daughter Harper, the last of five children, suffered HIE at birth. In the beginning, Gabrielle had so many fears and preconceived notions of what life would be […]
HIE didn’t stop them from trips to the beach, visiting family miles away and the Jersey shore vacations they had envisioned taking as a family. And after losing their son Jacob, Dawn Carofine cherishes those memories. “The memories we made are just another way to keep Jacob’s memory alive. I’m not able to see the ocean without thinking about him. […]
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