When Nykole Nichols has a question about her son, she can’t always turn to the friends and family she always thought she would. With Jude, who was injured at birth and is severely affected, it’s often more complicated. Their questions are about equipment, specialists and therapies. “We can’t just call our family or friends and ask for advice like typical […]
A mom’s search to find someone to take her family’s photos ended up with a new connection between two families impacted by HIE. Jamie Burt wasn’t happy with her 4-year-old daughter Remilyn’s school photos since she had her eyes closed and wasn’t looking at the camera, but also wasn’t sure who should take family photos for them. For HIE families […]
When she had to go through the toughest decisions and emotions in her life, Lauren Macke found support from a group of parents who had been there. Lauren’s son Jonah was born early and went without oxygen for 14 minutes. He was diagnosed with HIE and went through cooling therapy. Testing showed his brain damage was extensive, and Lauren was […]
In the days after their son was born, the news kept getting worse. Baby Cole suffered HIE at birth after getting stuck in the birth canal and aspirating meconium. He was having seizures, he needed emergency cooling treatment hours away from home and tests of his brain activity weren’t looking good. Sara Ames Saltzman felt alone and terrified. She didn’t […]
Throughout our lives, we form communities. Our hometown, our cliques of friends in school, our co-workers, our couples friends and then the families we want our kids to grow up with. I have been a part of some amazing communities in my life. And when my daughter suffered a birth injury, hypoxic ischemic encephalopathy or HIE, I needed another one […]
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