For one HIE mom, hope has taken her across the country this year. Betsy Pilon, president of the Hope for HIE foundation, has traveled from her home state of Michigan to Texas, New York and New Orleans so far this year, making her slogan for 2016 “Have hope, will travel.” For Betsy, the trips to meet other HIE families at […]
I have been trotting on this path long enough to know that guilt will suck the life force out of you faster than anything. Keeping this in mind, I tend not to spend time in a pit of guilt when it comes to our beautifully complex daughter. However, every so often, there is one question that still finds its way […]
HIE mom Becky Kerrins shares her story of how she embarked on her latest journey, Healing in Motion, and what it means to see other parents joining her. ——————————————- I got the idea for healing in motion one day while in kickboxing. I was thinking: how can I make my workouts more meaningful and keep myself motivated? I have been […]
My HIE survivor (now angel) was Aafiyah, which in Arabic means health. My uterus and bladder ruptured during labor, which resulted in her severe HIE. She was born not breathing, and doctors quickly revived. I remember kissing her before she was rushed off to the NICU, and then I was put to sleep for the remainder of my surgery. The […]
To new moms: This picture popped up on my news feed. It’s a picture of my then 2 month old HIE son GMO; God’s Miracle On earth – GianRaul. He is now 4 years old. This picture was taken only days after we returned home from 1 month in the NICU and another month in a rehabilitation hospital. As I look […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
