We bet you can’t look at this photo without smiling. HIE kiddo Remi got to try her hand at skiing with an adaptive ski program. And she had a blast! Remi’s mom heard about the program when they went to a ski show at the beach. Her husband insisted they sign Remi up. Jamie was nervous at first, but then […]
After the loss of her son Carter, Kelli Durham wanted to do something to keep his memory alive. She decided one of the best ways to do that was to donate in his honor. “I wanted his life/memory to be as impactful to other people as it was to me,” Kelli said. And immediately Hope for HIE came to mind. […]
Twenty-four hours not sleeping Ambulance raced, filled with strangers When once we dreamed of green meadows, Now we ride down an ice ramp. The hill is steep and was not seen approaching Our cabin lost in the snowstorm You, the emerged baby bird not yet thriving Your cherub face quiet, eyes still closed Surrounded by an array of singing engineering […]
The pictures show a family sharing an activity they love together — finally. Two years ago, Elyse learned about a program from her daughter that would allow her son Miles, who suffered HIE as a baby, to be able to ski. “She came home and was so excited to tell me how there were kids with different disabilities skiing and […]
The message made my heart drop. Another family hearing those three letters: HIE. And this time it was someone I had known almost my entire life. My childhood friend Sara had gone into labor with her baby boy. And hours later, she sent me a message asking if we could talk. The diagnosis: HIE or hypoxic ischemic encephalopathy. She had […]
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