What started as a bond over the internet has grown into a lifelong friendship. For Nikki Lang and Brittany Beimourtrusting, their friendship began with the common experience of their little girls — born only a day apart — suffering HIE. They met on the Hope for HIE parent forum on Facebook and leaned on each other for support as they […]
What I wish I understood 3 years ago when I boarded on this journey: I wish I knew that I would cope no matter how tough it gets That I should have enjoyed my baby every second instead of worrying about the future that I couldn’t stop or change That I would love her no matter what That CP is […]
Hope for HIE is a wonderful organization full of other dedicated families in similar situations. Every day new parents join on Facebook or read this website full of questions, uncertainty, and searching for hope. Maybe you got here because you searched for “What is HIE? Hypoxic-Ischemic Encephalopathy.” I feel like I’ve gained some perspective on what our process was like regardless […]
A devastating loss suffered by two families brought them closer together than they could have ever imagined. Becky and Krista connected through Hope for HIE’s online forums over the loss of their children to HIE. They got even closer when discussing the fears of having another baby after the trauma they had both had in their previous birth experiences. They […]
For families of children with an HIE diagnosis, the journey can be lonely. Often, other families don’t look like ours. Their lives aren’t the same. Their routines are different. Hope for HIE has been organizing retreats focused on moms for the last four years, which for so many women have been life-changing, giving them a chance to connect with moms […]
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