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Join Hope for HIE on Thursday, September 4, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis). ➡️ In this closed Zoom meeting experience, led by our certified social worker, Jen, and facilitated by one of our HIE Hospital Ambassadors, Wendy, families will be engaged […] |
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1 event,Hope for HIE’s Executive Director will be speaking about therapeutic development and patient advocacy involvement to advance neonatal clinical trials. LEARN MORE |
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Join Hope for HIE on Thursday, September 11, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE, either at birth or in childhood, are invited to participate in this support group. ➡️ In this closed Zoom meeting led by our certified social worker, […] |
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Seattle-area families — take a break and focus on you! Tina Santos, HIE mom and Hospital Ambassador at Seattle Children's, is hosting Work It Out, a local connection event all about self-care for HIE parents and caregivers. 🗓️ Saturday, September 13 🕚 11:00 AM – 1:00 PM PT 📍 Sunrise Elementary School, 22300 132nd Ave SE, Kent, WA […] |
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1 event,Hope for HIE’s Executive Director will be speaking and representing the the global HIE community to discuss the unmet needs in pharmaceuticals and pediatric research in neonatal and pediatric-acquired HIE, and discuss the formation of the International Neonatal Consortium's Neonatal Brain Injury Collaborative that Hope for HIE has co-founded. |
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Join Hope for HIE on Tuesday, September 16, at 8:00 PM ET for our video support group for HIE Dads. ➡️ This closed Zoom meeting, led by HIE Dad and Peer Support Mentor, Brandon C., provides a safe space to discuss: 🎯 The emotional journey of witnessing a medical emergency 🎯 Balancing support for your partner and child 🎯 Finding […] |
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Join Hope for HIE on Wednesday, September 17, at 10:30 AM ET for a LIVE Child Life Q&A with Annie Gunning, CCLS, exploring how child life specialists and their tools can support families throughout the NICU journey. The NICU can feel overwhelming for families, and child life specialists play a vital role in helping parents and siblings bond with their […] |
2 events,Hope for HIE’s Executive Director will be speaking about therapeutic development and patient advocacy involvement to advance neonatal clinical trials.
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Join Hope for HIE on Thursday, September 18, at 8:00 PM ET for a virtual support group focused on Couples Coping with HIE — open to parents and legal guardians seeking additional support and guidance. ➡️ This closed Zoom session is led by our licensed social worker, Jen, and facilitated by HIE Hospital Ambassador, Jennifer H. Together, they’ll create a […] |
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Join Hope for HIE on Monday, September 22, at 9:30 AM ET for a LIVE Q&A with Dr. Monica Lemmon, Pediatric Neurologist at Duke Health, focused on supporting families as they transition home from the NICU. In this session, she will:📌 Review what families can expect during NICU discharge and the first weeks at home📌 Explore common neurological and developmental […] |
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Join Hope for HIE on Thursday, September 25, at 8:00 PM ET for our Peer Mentor Office Hours, where you can connect 1:1 with our Peer Support Mentors - Allison and Stephanie - for immediate support in a safe and supportive setting. This is a great opportunity to receive real-time guidance, ask questions, build connections, and see if a formal […] |
2 events,Hope for HIE’s Executive Director will be speaking and representing the the global HIE community to discuss the longitudinal HIE experience and share resources available for HIE families.
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Join Hope for HIE on Friday, September 26th at 12 pm ET for our latest Peer Perspectives stream, where HIE parents Janina E., Tina S., Chris M., and Nicole C. share their experiences navigating school with HIE across a range of ages and impacts. They’ll explore: 📌 Preparing for transitions, IEPs, and classroom supports 📌 Partnering with teachers and school […] |
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Join Hope for HIE on Thursday, October 2, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis). ➡️ In this closed Zoom meeting experience, led by our certified social worker, Jen, and facilitated by our HIE Peer Support Mentors, Megan and Stephanie, families will be […] |
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