Meet Nisha Ramasamy, one of our HIE Awareness Ambassadors from San Jose, California! What is your story and connection with HIE? Our Brave Warrior I would like to share an inspiring story about my cute little warrior until her last breath. My lovely brave daughter is named Tvarika Dileeshvar. Born on March 9, 2022, and rested in peace under Angel […]
Meet Khadijah Holmes, one of our HIE Awareness Ambassadors from Orlando, Florida. What is your story and connection with HIE? Our pregnancy went just fine and then the life I had planned was suddenly shattered at 39 weeks. My daughter was diagnosed with HIE at birth. Our lives were forever changed. As time progressed, I learned that it changed […]
Meet Tanya MacNeil, one of our HIE Awareness Ambassadors from Eastern Passage, Canada! What is your story and connection with HIE? Beatrix suffered HIE at birth, she ended up in the NICU for a month. She was the sickest kiddo there, and we were repeatedly told there was no hope. When we refused to withdraw care, they offered the […]
What is a Super Sib? It’s a sibling to a baby or child with HIE – Hypoxic Ischemic Encephalopathy, across any outcome or impact. Sometimes our Super Sibs are asked to take on a lot, go with a lot, go without a lot, and work through their own feelings of being a sibling to a child with disabilities, or have […]
For too many kids with HIE, loss in childhood can be an eventual outcome. HIE is incredibly complex, and the parenting journey taking care of children who may have shortened life spans brings unique challenges, with many questions, feelings and decision-making along the way that can feel very isolating. Justin Yan’s daughter, Mila, was born in March 2015 with HIE. […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
