When Cooper was born I was a mess and everything was so baby/NICU focused I realized I was neglecting myself greatly. When I got some particularly concerning news one day, I went in to an anxious despair. I wallowed in it for about 24 hours then I gave myself a gift; I’m a very visual person so I visualized a […]
When we got discharged from the NICU just about seven years ago, I had a million questions. The most burning desire for me was to connect to other families who had gone through what we had just been through… a traumatic birth, hypothermic cooling, scary MRIs and EEGs, tubes and wires, and infinite unknowns ahead of us. I had to […]
You don’t want to be me. And I get it. There was a time I didn’t want to be me either. I was terrified that my baby girl wouldn’t “beat the odds” or “defy the doctors.” I wanted to believe that she would “prove all those specialists wrong,” the ones who used terms like severely affected and cerebral palsy. I […]
Two little boys with the same name and an HIE diagnosis were born days apart, but thousands of miles apart. Once their parents met through Hope for HIE, those miles weren’t going to stop them from bonding and eventually meeting in person. Valerie, who lives in the U.S., and Tabbi, who lives in Australia, met through the Hope for HIE […]
My Life as a Fraud (Posted on behalf of the original author anonymously) Most of my life I wore my heart on my sleeve. I was an open book and comfortable being authentic. I had two degrees and a successful marketing career. I made friends easily and was blissfully confident in myself and my abilities. I had always worked hard, […]
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