Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

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Remembering Oliver

Remembering Oliver

April 19th, 2020  | Family Stories  |  By ASHLEY, HIE LOSS MOM

Following a beautiful, healthy pregnancy, I went into labour on the morning of December 7th, 2019. I woke up at about 5:30 am having some light contractions. I stayed in bed until about 7 am. When we got out of bed, we made raspberry pancakes for breakfast – something I had been craving. Danyel had planned to do his usual […]

JUST SAY HI!

JUST SAY HI!

August 2nd, 2019  | Family Stories  |  By LACIE CHAPPUIS

When Scott and I decided to move to Los Angeles over three years ago we weren’t too sure about what to expect. It was scary and unknown. What we found were the some of the best therapeutic & medical resources in the country and a village of other families just like our own. Families who could relate perfectly to our […]

A new diagnosis, a new treatment

A new diagnosis, a new treatment

May 3rd, 2019  | Family Stories  |  By ANN GOELLER

Seizures have been a concern for much of Lucy’s life. Initially, she was weaned off seizure medication before her first birthday when the seizures she had in the NICU hadn’t returned. That was until one day when then-two-year-old Lucy woke up and her parents knew something wasn’t right, later learning the seizures had returned. In the three years since, the […]

Teaching the world to sign

Teaching the world to sign

May 3rd, 2019  | Family Stories  |  By ANN GOELLER

Thinking of her brother getting frustrated when others couldn’t understand him led a teen in the UK to start her own movement to promote knowledge of sign language. Jade’s little brother, Christian, uses sign language to communicate, and is continuing to build his vocabulary. But the process of learning sign language was difficult and lengthy, and Christian didn’t respond much […]

The color gray

The color gray

April 30th, 2019  | Family Stories  |  By ANN GOELLER

Watching her daughter on stage, reciting a poem she wrote, is a memory Karla Contreras will never forget. Karla was surprised when she learned her 8-year-old daughter Elisa, who suffered HIE at birth, would be sharing a poem at her school’s poetry slam. But as soon as she got the note from her daughter’s teacher, Karla knew she wouldn’t miss […]

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