Events

Join Hope for HIE on 𝗠𝗼𝗻𝗱𝗮𝘆, 𝗠𝗮𝗿𝗰𝗵 𝟯𝟬, 𝗮𝘁 𝟭𝟮:𝟬𝟬 𝗣𝗠 𝗘𝗧 for a Live Child Life Q&A with Annie Gunning, CCLS, exploring how Child Life support helps children and families navigate the emotional realities of complex medical journeys—from the NICU to life at home. She’ll discuss how specialists use play, preparation, and compassionate guidance to help children cope with […]

Join Hope for HIE on Monday, March 30, at 8:00 PM ET for our Parent to Parent Pop-In hour, where you can connect 1:1 with our Peer Support Mentors - Lynn and Amanda - for immediate support in a safe and supportive setting. This is a great opportunity to receive real-time guidance, ask questions, build connections, and see if a […]

Join Hope for HIE on Thursday, April 2 at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis).    ➡️ In this closed Zoom meeting experience, led by our certified social worker, Jen, and facilitated by HIE Peer Support Mentors, Stephanie L. and Allison M., families […]

Come Hustle for Hope in Jesup, IA!Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! Host: Kaylee Weber Location: Land of Corn Park Pavilion Address: Corner […]

Join Hope for HIE on Thursday, April 9, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE, either at birth or in childhood, are invited to participate in this support group.   ➡️ In this closed Zoom meeting led by our certified social […]

Join Dr. Danielle Guez-Barber, principal investigator for the HIE registry, Betsy Pilon, Executive Director for Hope for HIE, and Dr. Joyce Trost, Vice President of the CP Research Network, on Thursday, April 9 at 8 pm ET to hear what we've built, what we've learned, and what we're hoping to do next — and to hear what matters most to […]

Come Hustle for Hope in Oakdale, PA!Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! Host: Amanda Pegher Location: Donaldson Park Address: 590 Donaldson Road, Oakdale, […]

Come Hustle for Hope in Baltimore, MD!Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! Host: Veronica Choice Location: Patterson Park (Pavilion #2) Address: 2601 E. […]

Come Hustle for Hope in Warrington, PA!Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! Host: David Ford Location: Lions Pride Park Address: 3129 Bradley Road, […]

Come Hustle for Hope in North Providence, RI!Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! Hosts: Michelle MacIntosh & Nicole Jean Allen Location: Captain Stephen […]

Come Hustle for Hope in Sparks, NV!Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! Host: Haley Rosman Location: Sparks Marina Park Address: 300 Howard Drive, […]

Join Hope for HIE on Tuesday, April 14, at 12:00 PM ET for a virtual support group focused on Mild Outcomes — open to parents and guardians seeking additional support and guidance.   ➡️ This closed Zoom session will be led by our certified social worker, Jen, and facilitated by Hospital Ambassador, Kacie. Together, they’ll create a supportive space to […]

Join Hope for HIE on Wednesday, April 15 @ 8PM ET for our video support group designated for Parents of children diagnosed with HIE who are 10 years of age or older.    ➡️ This closed Zoom meeting, led by our certified social worker, Jen, and facilitated by Peer Support Mentor, Kara, provides a supportive space for parents of older […]

Join us on Thursday, April 16, at 12:00PM ET, for a webinar with the Newborn Brain Society on Advancing Neonatal Therapeutics & the Regulatory Landscape: The Neonatal Brain Injury Collaborative with Betsy Pilon & Kanwaljit Singh. Register: Tinyurl.com/NBSWebinar2026 #HopeForHIE #HIE #HIEawareness #HIEawarenessmonth #HoldOntoHope#Neonatology #NICU #NICUsupport #NewbornBrains #ChildNeurology#PediatricNeurology #HIEsupport #FamilyCenteredCare #HIEresearch#HypoxicIschemicEncephalopathy

Join us on Thursday, April 16, at 2:00PM ET, for a FCC Taskforce Community Exchange session sharing details about the HIE Hold-A-Thon and Parental Holding as a Model of Family-Centered Care During Therapeutic Hypothermia. Register: Tinyurl.com/FCCCommunityExchange2026 #HopeForHIE #HIE #HIEawareness #HIEawarenessmonth #HoldOntoHope #Neonatology #NICU #NICUsupport #NewbornBrains #ChildNeurology #PediatricNeurology #HIEsupport #FamilyCenteredCare #HIEresearch #HypoxicIschemicEncephalopathy

Come Hustle for Hope in Falmouth, KY!Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! Host: Jennifer Hartzel Location: Pendleton County Athletic Park Address: 97 Bowen […]

Join Hope for HIE on Saturday, April 18, at 11:00 AM ET for a Live Child Life Q&A with Annie Gunning, CCLS, focused on remembrance, grief, and keeping our children's memories alive. In this session, we'll explore: ✦ Meaningful ways to remember your child or sibling ✦ Ways to honor your child or sibling in everyday life and on special […]

Come Hustle for Hope in Maple Valley, WA!Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! Hosts: Tina Santos & Kimberly Taylor Location: Lake Wilderness Elementary […]

Come Hustle for Hope in Waukesha, WI!Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! Hosts: Kacie Miller, Sarah Shah, & Mackenzie Osberg Location: Frame Park […]

Join Hope for HIE on Monday, April 20, at 8:00 PM ET for our video support group session designated for families that lost their HIE child further along on the HIE journey. Parents and legal guardians who have lost their children due to HIE, in childhood, are invited to participate in this support group.   ➡️ In this closed Zoom […]

Come Hustle for Hope in Clermont, FL!Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! Hosts: Leni DeBoer & Katie Cortez Location: Waterfront Park Address: 330 […]

Come Hustle for Hope in Point Pleasant Beach, NJ!Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! Host: Maria Bottino & John Cleaver Location: Point Pleasant […]

Come Hustle for Hope in Watseka, IL!Whether you're a family in our community, a friend, an advocate, a NICU or PICU team member, or a partner in hope, this is your chance to come together, show your support, raise awareness, and advocate for children and families impacted by HIE! Host: Ariel Nichols Location: Watseka Community High School Address: 138 S […]

Join Hope for HIE on Wednesday, April 27th at 12 PM ET for our latest Peer Perspectives stream, where HIE parents Crystal F., Kacie M., and Crystal E. share their experiences navigating HIE and an autism diagnosis. Together they’ll explore: 📌 What the diagnosis journey can look like 📌 Daily life and any current challenges 📌 School, IEPs, therapies, and […]

Join Hope for HIE on Thursday, April 30 at 12:00 PM ET for our video support session designated for HIE moms navigating another pregnancy after an HIE diagnosis.    ➡️ Led by our certified social worker, Jen and facilitated by Peer Support Mentors, Kara and Laura, this group will engage families in a safe space to discuss:   Managing the trauma […]