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  • Navigating School: HIE Peer Perspective Series

    Join Hope for HIE on Friday, September 26th at 12 pm ET for our latest Peer Perspectives stream, where HIE parents Janina E., Tina S., Chris M., and Nicole C. share their experiences navigating school with HIE across a range of ages and impacts. They’ll explore: 📌 Preparing for transitions, IEPs, and classroom supports 📌 Partnering with teachers and school […]

  • Newly Diagnosed Family Support

    Join Hope for HIE on Thursday, October 2, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis). ➡️ In this closed Zoom meeting experience, led by our certified social worker, Jen, and facilitated by our HIE Peer Support Mentors, Megan and Stephanie, families will be […]

  • Hope for HIE at the Child Neurology Society

    Hope for HIE’s Executive Director will be speaking about clinical guidelines for neonatal seizures, discussing partnering with patient advocacy organizations, and representing the the global HIE community to discuss the longitudinal HIE experience and share resources available for HIE families. Attending the conference? Be sure to stop by our booth!

  • Loss Family Support

    Join Hope for HIE on Thursday, October 9, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE, either at birth or in childhood, are invited to participate in this support group. ➡️ In this closed Zoom meeting led by our certified social worker, […]