Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

Research Survey Dashboard

Welcome to your Research Survey Dashboard, your personal hub for contributing to surveys for individuals affected by HIE to improve treatment, outcomes, and medical understanding. Here, you’ll find your:

  • Consent Form – Access and review your informed consent preferences at any time.
  • Available Surveys – Based on your or your child’s demographics and medical history, relevant surveys will appear here as they become available. These surveys are designed to gather important data that only patients and families can provide.
  • Survey Status – Easily track which surveys you’ve completed and which ones are still open.

Participation in this research is completely voluntary. If you have any questions about this research registry or participation, contact us at hieregistry@hopeforhie.org.

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What is Informed Consent?

Your “Informed Consent” gives us permission to include your data in a study. It is “informed” because we will provide you with information about the studies, whether there are any risks or benefits, and to make sure you know that your participation is voluntary.

Only parents and adoptive parents may enroll a child under 18 years of age.

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