The "wait and see" in HIE, as our community calls it, isn't a matter of waiting to intervene; it's learning about your child, what you can do to help them reach their unique potential, and give you tools of empowerment to hopefully decrease your anxiety, increase your confidence, and bring more joy to your journey.
While you may sometimes feel anxious about waiting to see what their development looks like, we hope this information will decrease that anxiety. As always, we are here for you every step, every inchstone of the way.

Your follow-up schedule may vary depending on where you live, your access to healthcare, what types of services and providers your child may need, and other factors. Whether it's with a family doctor, pediatrician, neurologist, or another developmental provider, we want to help you feel prepared, empowered, and secure in knowing that you're not alone.
One of the hardest parts of this journey of unknowns is knowing what questions you may want to ask or things you "should" be doing. Here are a few different questions to think about as you prepare for a six-month visit with either your child's medical team:
Development
If applicable, collect information (therapy reports or daycare concerns) to bring to this appointment.
Feeding
Seizure Risk
Clinical visits can be overwhelming - whether you have to travel far, you may be understandably nervous, anxious, or worried about your baby and their development. Know that your child's team is there to help you and your child. It's okay to ask for clarification on how to reach your team in between appointments and their concerns, as well as time to process new information or to repeat information you've heard.
History
Exam
Debrief
Next Steps
You've made it through the visit, and you may feel many ways - relief, sadness, frustration, confusion, hope, joy... some, all, or none of the above! It's very normal to feel like you forgot to ask certain questions, and this is the time when, in between appointments, you can feel once again like you're back in the wild. You're NEVER alone. We have some tips below, and we are always here to provide support.
Follow-Up
Monitor
Seek Resources

Many families wonder what is typical and what may be considered a concern in their child's development. We've worked to try to break down this information into easy-to-understand tools that you can use to learn more and build better relationships with your child's team.
The neurodevelopmental guide below shares the following:


In addition to the above developmental areas, the clinician/provider will also give your baby a clinical exam, from head to toe (and they are really cute toes), and in between! They look for specific markers in growth and development during this part of the visit.


Everyone has their favorite resources, and these come recommended by our Medical Advisory Board, Staff, and Community of Families:
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