We understand that waiting to see how your child’s development unfolds can be both challenging and filled with hope. As you observe your child’s growth curve and journey, it may differ from what you expect. Those feelings can be complex to process, and we are here with support resources to help you.

During this period, you may have scheduled visits with healthcare providers specializing in monitoring and supporting your child’s development. These visits are crucial in assessing their progress and addressing any concerns you may have.
Early interventions may start or continue during this stage. These specialized interventions are designed to provide targeted support and assistance in areas your child may benefit most. These are designed to be a collaborative effort between you, the healthcare providers, and other support professionals involved in your child’s care. Together, you can create a comprehensive plan that addresses your child’s developmental goals, maximizes their potential, and supports their journey toward reaching new milestones.
One of the hardest parts of this journey of unknowns is knowing what questions you may want to ask or things you "should" be doing. Here are a few different questions to think about as you prepare for a 12-month visit with either your child's medical team:
Development
If applicable, collect information (therapy reports or daycare concerns) to bring to this appointment.
Feeding
Seizure Risk
Clinical visits can be overwhelming - whether you have to travel far, you may be understandably nervous, anxious, or worried about your baby and their development. Know that your child's team is there to help you and your child. It's okay to ask for clarification on how to reach your team in between appointments and their concerns, as well as time to process new information or to repeat information you've heard.
History
Exam
Debrief
Next Steps
You've made it through the visit, and you may feel many ways - relief, sadness, frustration, confusion, hope, joy... some, all, or none of the above! It's very normal to feel like you forgot to ask certain questions, and this is the time when, in between appointments, you can feel once again like you're back in the wild. You're NEVER alone. We have some tips below, and we are always here to provide support.
Follow-Up
Monitor
Seek Resources

Many families wonder what is typical and what may be considered a concern in their child's development. We've worked to try to break down this information into easy-to-understand tools that you can use to learn more and build better relationships with your child's team.
The neurodevelopmental guide below shares the following:


In addition to the above developmental areas, the clinician/provider will also give your baby a clinical exam, from head to toe and everything in between! They look for specific markers in growth and development during this part of the visit.


Everyone has their favorite resources, and these come recommended by our Medical Advisory Board, Staff, and Community of Families:
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.