Hope for HIE – Hypoxic Ischemic Encephalopathy Hope for HIE – Hypoxic Ischemic Encephalopathy

INBBC Family Perspective Dinner

Thank you for attending!

We look forward to continuing the conversation we started in Cork, Ireland -- focusing on how we care, communicate and connect families, how we move forward research and advocacy together, and how we can bring greater health literacy, health equity and improvements to the global HIE community!

April is HIE Awareness Month

Help spread HIE awareness! April is global HIE Awareness Month. This year's theme is TRANSFORMING HOPE. Check back in early March for a comprehensive toolkit that we will be sharing out.

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Patient-Family Partnerships - Clinical

Whether it's QI, long-term outcomes, or educating families, we work to partner with clinicians to improve care, communication and connection for HIE families, worldwide.

Have an idea? Let's chat!
Patient-Family Partnerships - Research

We're helping accelerate research through advocacy and partnerships! Take the conversation further, and learn about all the ways we tap into our bench strength of our global community, Board of Directors, and key stakeholders for the most comprehensive planning and support processes to get the optimal data collection, and meet enrollment and engagement targets.

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Request Educational & Support Materials

We provide education and support materials, worldwide, with the goal of building health literacy through first-language, multi-sensory, accessible materials. No family should face HIE alone -- no matter where their journey may take them.

We have comprehensive support programs and services provided by credentialed professionals -- a licensed medical social worker, and a certified child life specialist -- both on staff to help our worldwide community.

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Hustle for Hope 5K Events

Get your group together and Hustle for Hope! Whether it's in-person, virtually, or through our planned Peloton events, we have over 15 in-person events and opportunities to bring awareness and support to the global HIE community.

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