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X-WR-CALNAME:Hope for HIE - Hypoxic Ischemic Encephalopathy
X-ORIGINAL-URL:https://hopeforhie.org
X-WR-CALDESC:Events for Hope for HIE - Hypoxic Ischemic Encephalopathy
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TZID:America/Detroit
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260507T200000
DTEND;TZID=America/Detroit:20260507T210000
DTSTAMP:20260501T015505Z
CREATED:20260501T015505Z
LAST-MODIFIED:20260501T015505Z
UID:21568-1778184000-1778187600@hopeforhie.org
SUMMARY:Newly Diagnosed Family Support
DESCRIPTION:Join Hope for HIE on Thursday\, May 7\, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis). \n\n \n\n➡️ In this closed Zoom meeting experience\, led by our certified social worker\, Jen\, and facilitated by HIE Peer Support Mentors\, Kara F. and Lynn G.\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n \n\n🔗 Register: Tinyurl.com/NewtoHIE2026 \n\n \n\n#HopeforHIE #HypoxicIschemicEncephalopathy #HIE #HIEsupport #NICU #NICUsupport #PICU #NICUsupport #PICUsupport #ConnectedbyHope #Neonatology #ChildNeurology #NewbornBrains #HIEawareness #NewtoHIE\n\n 
URL:https://hopeforhie.org/event/newly-diagnosed-family-support-7/
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260512T120000
DTEND;TZID=America/Detroit:20260512T130000
DTSTAMP:20260501T015757Z
CREATED:20260501T015757Z
LAST-MODIFIED:20260501T015757Z
UID:21572-1778587200-1778590800@hopeforhie.org
SUMMARY:After the First Year (Through Age 9) Support
DESCRIPTION:Join Hope for HIE on Tuesday\, May 12\, at 12:00 PM ET for a virtual support group focused on After the First Year— open to parents and guardians seeking additional support and guidance.\n\n➡️ This closed Zoom session will be led by our certified social worker\, Jen\, and facilitated by Peer Support Mentor\, Laura H. Together\, they’ll create a supportive space to share\, connect\, and explore:\n\n 	Parenting After HIE\n 	Ongoing uncertainty and milestone anxiety\n 	Grief\, comparison\, and identity over time\n 	Caregiver burnout and sustainability\n\n🔗 Register: Tinyurl.com/AfterFirstYearMay26 \n\n#HIEAwareness #HIEParents #HIEJourney #LifeAfterHIE #HopeForHIE #ParentingAfterHIE #LongTermHIE #DevelopmentalJourney #SchoolAgeHIE #IEPJourney #LivingWithUncertainty #TwoThingsCanBeTrue #CaregiverSustainability #ParentMentalHealth #YouAreNotAlone
URL:https://hopeforhie.org/event/after-the-first-year-through-age-9-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260514T200000
DTEND;TZID=America/Detroit:20260514T210000
DTSTAMP:20260501T015327Z
CREATED:20260501T015327Z
LAST-MODIFIED:20260501T015327Z
UID:21565-1778788800-1778792400@hopeforhie.org
SUMMARY:Loss Family Support
DESCRIPTION:Join Hope for HIE on Thursday\, May 14\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n \n\n➡️ In this closed Zoom meeting led by our certified social worker\, Jen\, and facilitated by one of our Peer Support Mentors\, Kate L.\, families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n \n\n🔗 Register: Tinyurl.com/HIELossSupport2026\n\n#HopeforHIE #HypoxicIschemicEncephalopathy #HIEsupport #NICUloss #NICUlosssupport #PICUloss #NICUsupport #PICUlosssupport #HoldontoHope #Neonatology #ChildNeurology #NewbornBrains #HIEawareness #HIEloss #NeonatalLoss #HIEAwarenesssMonth\n\n 
URL:https://hopeforhie.org/event/loss-family-support-10/
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260517T110000
DTEND;TZID=America/Detroit:20260517T130000
DTSTAMP:20260303T211046Z
CREATED:20260303T211046Z
LAST-MODIFIED:20260303T211046Z
UID:21212-1779015600-1779022800@hopeforhie.org
SUMMARY:2026 Hustle for Hope 5K  |  Detroit\, MI
DESCRIPTION:Come Hustle for Hope in Detroit\, MI!Whether you're a family in our community\, a friend\, an advocate\, a NICU or PICU team member\, or a partner in hope\, this is your chance to come together\, show your support\, raise awareness\, and advocate for children and families impacted by HIE!\n\n\n 	Host: Betsy Pilon\n 	Location: Marshbank Park Lodge\n 	Address: 2805 Hiller Rd\, West Bloomfield Township\, MI 48324\n 	Time: 11:00AM - 1:00PM ET\n\nNote from the Hustle Hosts: "We have the lodge at Marshbank Park rented\, which has restrooms and is right next to the accessible playground!"\n\nRegister here: Tinyurl.com/HustleforHope\n\nRegistration Details:\n\n 	Opens 2/15\n 	Early Bird Rate: $30 (2/15-3/15)\n 	Standard Rate: $35 (begins 3/16)\n\n\nEvent packets will be mailed out in two separate timeframes. The earlier you register\, the sooner you will receive your race packet:\n\n 	Register by March 15th\, and your race packet will be mailed by April 1st. Races the first week of April will be mailed ASAP.\n 	Register between March 16th and April 15th\, and your race packet will be mailed as quickly as we can get it out!\n\nNOTE: If you register within two weeks of the in-person event\, we cannot guarantee they will arrive before the event.
URL:https://hopeforhie.org/event/2026-hustle-for-hope-5k-detroit-mi/
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260518T200000
DTEND;TZID=America/Detroit:20260518T210000
DTSTAMP:20260501T022719Z
CREATED:20260501T015952Z
LAST-MODIFIED:20260501T022719Z
UID:21575-1779134400-1779138000@hopeforhie.org
SUMMARY:HIE & Mild Outcomes Support
DESCRIPTION:Join Hope for HIE on Monday\, May 18th\, at 8:00 PM ET for a virtual support group focused on Mild Outcomes — open to parents and guardians seeking additional support and guidance.\n\n➡️ This closed Zoom session will be led by our certified social worker\, Jen. She'll create a supportive space to share\, connect\, and explore:\n- Survivor’s guilt & comparison\n- Trauma despite a mild outcome\n- Living with uncertainty\n- Ambiguous grief\n- Permission to struggle and take up space\n\n🔗 Register: Tinyurl.com/MildOutcomesMay26\n\n#HIEAwareness #MildHIE #HIEParents #HIEJourney #HopeForHIE #SurvivorsGuilt #BirthTrauma #NICUTrauma #AmbiguousGrief #LivingInTheGray #TwoThingsCanBeTrue #YourFeelingsAreValid #StillHard #ParentMentalHealth #YouAreNotAlone
URL:https://hopeforhie.org/event/hie-mild-outcomes-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260520T200000
DTEND;TZID=America/Detroit:20260520T210000
DTSTAMP:20260501T022740Z
CREATED:20260501T020112Z
LAST-MODIFIED:20260501T022740Z
UID:21578-1779307200-1779310800@hopeforhie.org
SUMMARY:Dads & Non-Birthing Partners Support
DESCRIPTION:Join Hope for HIE on Wednesday\, May 20\, at 8:00 PM ET for our video support group designated for Dads and Non-Birthing Partners. \n\n➡️ This closed Zoom meeting\, led by our certified social worker\, Jen\, provides a safe space to discuss: \n\n 	The emotional journey of witnessing a medical emergency\n 	Balancing support for your partner and child\n 	Finding community and navigating the role of an HIE non-birthing partner\n\n🔗 Register: Tinyurl.com/DadAndPartnersMay26 \n\n#HIEdads #NICU #PICUsupport #PeerSupport #HopeforHIE #HIEsupport #HIEAwareness #FamilySupport #HIE #HypoxicIschemicEncephalopathy
URL:https://hopeforhie.org/event/dads-non-birthing-partners-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260527T200000
DTEND;TZID=America/Detroit:20260527T210000
DTSTAMP:20260501T020232Z
CREATED:20260501T020232Z
LAST-MODIFIED:20260501T020232Z
UID:21581-1779912000-1779915600@hopeforhie.org
SUMMARY:Pregnancy After HIE Loss Support
DESCRIPTION:Join Hope for HIE on Wednesday\, May 27\, at 8:00 PM ET for a virtual support group focused on Pregnancy After HIE Loss — open to birthing parents who have experienced the loss of a child affected by HIE and are seeking connection\, support\, and guidance.\n\n➡️ This closed Zoom session will be led by our certified social worker\, Jen\, and facilitated by Peer Support Mentor\, Jill B. Together\, they’ll create a supportive space to share\, connect\, and explore:\n\n 	Navigating joy\, grief\, and pregnancy-specific stressors\n 	Caring for yourself while managing family dynamics & relationships\n 	Building hope and preparing for what’s ahead\n\n🔗 Register: Tinyurl.com/PregnancyAfterLossMay26 \n\n#HIE #HIESupport #PregnancyAfterLoss #AfterHIELoss #ParentingThroughGrief #HIELossSupport  #HIEawareness #Pregnancy #PregnancyafterHIE
URL:https://hopeforhie.org/event/pregnancy-after-hie-loss-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260528T120000
DTEND;TZID=America/Detroit:20260528T130000
DTSTAMP:20260522T010140Z
CREATED:20260522T010027Z
LAST-MODIFIED:20260522T010140Z
UID:21654-1779969600-1779973200@hopeforhie.org
SUMMARY:Child Life Q&A: Anesthesia Considerations for HIE Families
DESCRIPTION:Join Hope for HIE on Thursday\, May 28\, at 12:00 PM ET for a Child Life Q&A with Annie Gunning\, CCLS\, and Dr. Sami Horani\, anesthesiologist and HIE parent.\n\nSo many of our families have shared how nerve-wracking it can be to navigate surgery and anesthesia with their HIE child. In this session\, we'll explore:\n\n 	What anesthesiology is and the roles of the providers you may meet\n 	The types of anesthesia and how the step-by-step process works from pre-op through recovery\n 	How HIE-related conditions can impact anesthesia planning\n 	Important questions to ask your care team before and on the day of surgery\n 	How to prepare your child emotionally and sensory-wise for the hospital environment\n 	How child life specialists support children and families through every step of the surgical experience\n\nTune in for the stream on our Facebook or YouTube channels:\n🔗 Facebook.com/HopeforHIE\n🔗 YouTube.com/HopeforHIE\n\n#ChildLifeSpecialist #ChildLife #Q&A #HypoxicIschemicEncephalopathy #HIE #HopeForHIE #HIEAwareness #HIESupport #Anesthesia #MRI #Surgery #Sedation
URL:https://hopeforhie.org/event/child-life-qa-anesthesia-considerations-for-hie-families/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260528T200000
DTEND;TZID=America/Detroit:20260528T210000
DTSTAMP:20260501T020401Z
CREATED:20260501T020401Z
LAST-MODIFIED:20260501T020401Z
UID:21584-1779998400-1780002000@hopeforhie.org
SUMMARY:Parent-to-Parent Pop-In Hour
DESCRIPTION:Join Hope for HIE on Thursday\, May 28\, at 8:00 PM ET for our Parent-to-Parent Pop-In hour\, where you can connect 1:1 with our Peer Support Mentors - Megan and Stephanie - for immediate support in a safe and supportive setting. This is a great opportunity to receive real-time guidance\, ask questions\, build connections\, and see if a formal connection with a mentor is a good fit for you.  \n\nImportant Details:\n\n📌 Log on anytime during the session\, but please join at least 10 minutes before the end time at 9:00 PM ET.\n📌 You’ll be placed in a breakout room with a mentor based on your specific needs or HIE impact/ outcome.\n📌 This session is for parents and legal guardians of children with HIE.\n\n🔗 Register: Tinyurl.com/PopInHourMay26\n\n#HopeforHIE #HypoxicIschemicEncephalopathy #HIE #HIEsupport #NICU #NICUsupport #PICU #NICUsupport #PICUsupport #HoldOntoHope #Neonatology #ChildNeurology #NewbornBrains #HIEawareness #NewtoHIE #PeerSupportMentor
URL:https://hopeforhie.org/event/parent-to-parent-pop-in-hour/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260530T120000
DTEND;TZID=America/Detroit:20260530T130000
DTSTAMP:20260523T233649Z
CREATED:20260523T233649Z
LAST-MODIFIED:20260523T233649Z
UID:21670-1780142400-1780146000@hopeforhie.org
SUMMARY:Peer Perspective Series: Navigating Parental Mental Health
DESCRIPTION:Join Hope for HIE on Saturday\, May 30th at 12PM ET for our latest Peer Perspective Series\, where HIE parents Kat K.\, Ravi S.\, and Kori M. share their experiences navigating the parental mental health journey after an HIE diagnosis.\n\nTune in for an honest\, heart-led panel conversation where parents share their real mental health journeys. They'll explore:\n\n 	The moments they knew they needed support\n 	The therapies and tools that made a difference\n 	The online communities they found\n 	How their needs have evolved as their children have grown\n\nThis is a peer-to-peer conversation — no medical advice\, just lived experience and the kind of honesty that helps families feel less alone.\n\nTune in via our Facebook or YouTube channels on Saturday\, May 30th!
URL:https://hopeforhie.org/event/peer-perspective-series-navigating-parental-mental-health/
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