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X-WR-CALNAME:Hope for HIE - Hypoxic Ischemic Encephalopathy
X-ORIGINAL-URL:https://hopeforhie.org
X-WR-CALDESC:Events for Hope for HIE - Hypoxic Ischemic Encephalopathy
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250602T120000
DTEND;TZID=America/Detroit:20250602T130000
DTSTAMP:20250521T153116Z
CREATED:20250521T153116Z
LAST-MODIFIED:20250521T153116Z
UID:19260-1748865600-1748869200@hopeforhie.org
SUMMARY:Pregnancy after HIE Support
DESCRIPTION:Join Hope for HIE on Monday\, June 2\, at 12:00 PM ET for our video support session designated for HIE moms navigating another pregnancy after HIE. \n\n➡️ Led by our certified social worker\, Jen\, and facilitated by one of our Peer Support Mentors\, Ashley\, this group will engage families in a safe space to discuss: \n\n? Managing the trauma of a previous HIE pregnancy\n? The stress around deciding to become pregnant again\n? Navigating the complex emotions that come with another pregnancy after an HIE diagnosis \n\n? Register: Tinyurl.com/PregnancyAfterHIEJune25  
URL:https://hopeforhie.org/event/pregnancy-after-hie-support-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250605T200000
DTEND;TZID=America/Detroit:20250605T210000
DTSTAMP:20250521T153551Z
CREATED:20250521T153551Z
LAST-MODIFIED:20250521T153551Z
UID:19262-1749153600-1749157200@hopeforhie.org
SUMMARY:Newly Diagnosed Families Support
DESCRIPTION:Join Hope for HIE on Thursday\, June 5\, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis). \n\n➡️ In this closed Zoom meeting experience\, led by our certified social worker\, Jen\, and facilitated by one of our Peer Support Mentors\, Crystal\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n? Register: Tinyurl.com/NewtoHIE
URL:https://hopeforhie.org/event/newly-diagnosed-families-support-2/
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250609T120000
DTEND;TZID=America/Detroit:20250609T130000
DTSTAMP:20250521T154320Z
CREATED:20250521T154320Z
LAST-MODIFIED:20250521T154320Z
UID:19264-1749470400-1749474000@hopeforhie.org
SUMMARY:Navigating a Severe Diagnosis Support
DESCRIPTION:Join Hope for HIE on Monday\, June 9\, at 12:00 PM ET for our video support group designated for parents and legal guardians navigating the complexities of a severe HIE diagnosis.\n\n➡️ This closed Zoom support session is led by Hope for HIE’s certified social worker\, Jen\, and is facilitated by one of our Peer Support Mentors\, Allison\, who will provide a safe space to explore:\n\n?The emotional journey of a severe HIE diagnosis\n?Firsthand experiences navigating medical complexities beyond the initial years\n?Supportive strategies for families facing the challenges of prolonged “wait and see” periods\n\n?Register using this link: Tinyurl.com/NavigatingSevereHIEJune25 
URL:https://hopeforhie.org/event/navigating-a-severe-diagnosis-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250612T200000
DTEND;TZID=America/Detroit:20250612T210000
DTSTAMP:20250521T154705Z
CREATED:20250521T154705Z
LAST-MODIFIED:20250521T154705Z
UID:19266-1749758400-1749762000@hopeforhie.org
SUMMARY:Loss Families Support
DESCRIPTION:Join Hope for HIE on Thursday\, June 12\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting led by our certified social worker\, Jen\, and facilitated by one of Hope’s Peer Support Mentors\, Jill\, families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n? Register: Tinyurl.com/HIELossSupport
URL:https://hopeforhie.org/event/loss-families-support/
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250617T120000
DTEND;TZID=America/Detroit:20250617T130000
DTSTAMP:20250609T175138Z
CREATED:20250609T175138Z
LAST-MODIFIED:20250609T175138Z
UID:19304-1750161600-1750165200@hopeforhie.org
SUMMARY:Navigating Vacation & Travel: HIE Peer Perspective Series
DESCRIPTION:Join Hope for HIE on Tuesday\, June 17th at 12:00 PM ET for our Peer Perspectives Panel\, where Peer Support Mentors Allison M. and Stephanie L. will share personal insights and practical tips on traveling and vacationing with a medically complex child.\n\nIn this session\, they will:\n 📌 Share how they choose destinations and plan ahead for accessibility\, transportation\, and medical needs\n 📌 Offer practical packing tips\, travel hacks\, and ways to manage the unexpected while on the go\n 📌 Reflect on how their mindset has shifted over time - focusing on creating joyful\, meaningful family experiences\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n🔗 Facebook.com/HopeforHIE\n🔗 Instagram.com/HopeforHIE\n🔗 Youtube.com/HopeforHIE  \n\nPlease note: This panel will not follow the typical support group structure. However\, if enough interest is expressed\, we will consider dedicating a future support group topic to it at a later date.
URL:https://hopeforhie.org/event/navigating-vacation-travel-hie-peer-perspective-series/
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250618T120000
DTEND;TZID=America/Detroit:20250618T130000
DTSTAMP:20250529T151109Z
CREATED:20250529T151109Z
LAST-MODIFIED:20250529T151109Z
UID:19279-1750248000-1750251600@hopeforhie.org
SUMMARY:Child Life Q&A: Explaining HIE to Your Child
DESCRIPTION:Join Hope for HIE on Tuesday\, June 18\, at 12:00 PM ET for a LIVE Child Life Q&A with Annie Gunning\, CCLS\, as we explore how to talk with your child about their HIE diagnosis in an age-appropriate way: \n\nIn this session\, Annie will:\n? Help parents feel more confident about having honest\, empowering conversations about HIE\n? Offer simple\, age-appropriate language and tools for explaining HIE\n? Address common questions kids ask and positive ways to respond\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n ? Facebook.com/HopeforHIE\n ? Instagram.com/HopeforHIE\n ? YouTube.com/HopeforHIE
URL:https://hopeforhie.org/event/child-life-qa-explaining-hie-to-your-child/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250619T200000
DTEND;TZID=America/Detroit:20250619T210000
DTSTAMP:20250521T154850Z
CREATED:20250521T154850Z
LAST-MODIFIED:20250521T154850Z
UID:19268-1750363200-1750366800@hopeforhie.org
SUMMARY:Pregnancy After HIE: Non-Birthing Partners Support
DESCRIPTION:Join Hope for HIE on Thursday\, June 19\, at 8:00 PM ET for our Pregnancy after HIE support group designated for non-birthing partners. \n\n➡️ This closed Zoom meeting\, facilitated by our certified social worker\, Jen\, and one of our Peer Support Mentors\, Romm\,  provides a safe space to discuss:\n\n? The emotional journey of witnessing a medical emergency\n? Balancing support for your partner and child\n? Finding community and navigating the role of a non-birthing partner\n\n? Register at: Tinyurl.com/HIENonBirthingPOVJune25
URL:https://hopeforhie.org/event/pregnancy-after-hie-non-birthing-partners-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250624T100000
DTEND;TZID=America/Detroit:20250624T110000
DTSTAMP:20250617T153052Z
CREATED:20250617T153052Z
LAST-MODIFIED:20250617T153052Z
UID:19437-1750759200-1750762800@hopeforhie.org
SUMMARY:Maggie Jalowsky Q&A -- Hope for HIE Welcomes Clinical Research Program Manager
DESCRIPTION:Join us on Tuesday\, June 24\, at 10:00 AM ET for an introduction to Maggie Jalowsky\, who has joined the Hope for HIE team as our Clinical Research Program Manager.\n\nIn this session\, Maggie will share:\n📌 How her work at Hope focuses on bringing meaningful support to our community.\n📌 Updates on academic and industry partnerships advancing HIE research and care.\n📌 The importance of family perspectives and input in studies like COOL PRIME\, STAR\, and other upcoming trials.\n📌 Insights on the new registry work designed to improve outcomes and understanding of HIE.\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n🔗 Facebook.com/HopeforHIE\n🔗 Instagram.com/HopeforHIE\n🔗 YouTube.com/HopeforHIE
URL:https://hopeforhie.org/event/maggie-jalowsky-qa-hope-for-hie-welcomes-clinical-research-program-manager/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250624T120000
DTEND;TZID=America/Detroit:20250624T130000
DTSTAMP:20250610T174722Z
CREATED:20250610T174722Z
LAST-MODIFIED:20250610T174722Z
UID:19310-1750766400-1750770000@hopeforhie.org
SUMMARY:Traveling with Children with HIE: Support Group
DESCRIPTION:Join Hope for HIE on Thursday\, June 24\, at 12:00 PM ET for a support group session for parents and legal guardians navigating travel with children who have HIE/complex medical needs.\n\n➡️ This closed Zoom session will be led by our certified social worker\, Jen\, and facilitated by two of Hope’s Peer Support Mentors\, Allison and Megan\, along with community member Shawn. Together\, they’ll help create a supportive space for families to share and connect around:\n\n🎯 Practical tips for planning safe and comfortable travel with children who have medical and mobility challenges\n 🎯 How to pack and prepare essential medical supplies\, equipment\, and documentation for your trip\n 🎯 Strategies to manage sensory sensitivities\, feeding needs\, and medication schedules while away from home\n\n🔗 Register at: Tinyurl.com/HIENavigatingTravel
URL:https://hopeforhie.org/event/traveling-with-children-with-hie-support-group/
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