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X-WR-CALNAME:Hope for HIE - Hypoxic Ischemic Encephalopathy
X-ORIGINAL-URL:https://hopeforhie.org
X-WR-CALDESC:Events for Hope for HIE - Hypoxic Ischemic Encephalopathy
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TZID:America/Detroit
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250304T190000
DTEND;TZID=America/Detroit:20250304T210000
DTSTAMP:20250204T180312Z
CREATED:20250204T180034Z
LAST-MODIFIED:20250204T180312Z
UID:18776-1741114800-1741122000@hopeforhie.org
SUMMARY:Seattle Local Resource Brainstorm
DESCRIPTION:Join Tina Santos\, Hope's HIE Hospital Ambassador for Seattle Children's\, on Wednesday\, March 5\, at 7:00 PM PT for an informal Zoom session where families can drop in to brainstorm and gather input to build a sheet of local resources for HIE families\, including programs like the WA Elks Therapy program and Emma’s Exceptional Equipment Exchange.\n\nThis is a relaxed\, no-pressure event—feel free to join with kids\, dinner\, or whatever you need. We’re looking to connect and share resources to better support one another. Come with your ideas\, or just listen in!\n\n? Register: Tinyurl.com/SeattleResourceBrainstorm 
URL:https://hopeforhie.org/event/seattle-local-resource-brainstorm/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250306T200000
DTEND;TZID=America/Detroit:20250306T210000
DTSTAMP:20250220T172946Z
CREATED:20250220T172946Z
LAST-MODIFIED:20250220T172946Z
UID:18850-1741291200-1741294800@hopeforhie.org
SUMMARY:Newly Diagnosed Support
DESCRIPTION:Join Hope for HIE on Thursday\, March 6\, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis).\n\n➡️ In this closed Zoom meeting experience\, led by our certified social worker – Jen – and facilitated by two of Hope’s Peer Support Mentors – Allison and Meagan – families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n?Register at: Tinyurl.com/NewtoHIE
URL:https://hopeforhie.org/event/newly-diagnosed-support-4/
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250312T120000
DTEND;TZID=America/Detroit:20250312T130000
DTSTAMP:20250220T173145Z
CREATED:20250220T173136Z
LAST-MODIFIED:20250220T173145Z
UID:18856-1741780800-1741784400@hopeforhie.org
SUMMARY:Peer Support Mentor Office Hours
DESCRIPTION:Join Hope for HIE on Wednesday\, March 12\, at 12:00 PM ET for our Peer Mentor Office Hours\, where you can connect 1:1 with our Peer Support Mentors - Kara and Crystal - for immediate support in a safe and supportive setting. This is a great opportunity to receive real-time guidance\, ask questions\, build connections\, and see if a formal connection with a mentor is a good fit for you.\n\nImportant Details:\n? Log on anytime during the session\, but please join at least 10 minutes before the end time at 1:00 PM ET.\n? You’ll be placed in a breakout room with a mentor based on your specific needs or HIE impact/outcome.\n? This session is for parents/legal guardians of children with HIE.\n\n? Register at: Tinyurl.com/HIEOfficeHoursMar25
URL:https://hopeforhie.org/event/peer-support-mentor-office-hours/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250313T200000
DTEND;TZID=America/Detroit:20250313T210000
DTSTAMP:20250220T173319Z
CREATED:20250220T173319Z
LAST-MODIFIED:20250220T173319Z
UID:18857-1741896000-1741899600@hopeforhie.org
SUMMARY:Loss Family Support
DESCRIPTION:Join Hope for HIE on Thursday\, March 13\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting led by our certified social worker - Jen - and facilitated by one of Hope’s Peer Support Mentors – Walker – families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n? Register at: Tinyurl.com/HIELossSupport
URL:https://hopeforhie.org/event/loss-family-support-2/
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250318T120000
DTEND;TZID=America/Detroit:20250318T130000
DTSTAMP:20250220T173740Z
CREATED:20250220T173429Z
LAST-MODIFIED:20250220T173740Z
UID:18858-1742299200-1742302800@hopeforhie.org
SUMMARY:Parenting with Limited Support
DESCRIPTION:Join Hope for HIE on Tuesday\, March 18\, at 12:00 PM ET for a video support group for parents and legal guardians navigating the HIE journey with limited support.\n\n➡️ In this closed Zoom meeting\, led by Hope’s certified social worker - Jen - families will find a space of healing and hope as they explore:\n? Identifying formal supports and creating a plan for help\n? Managing emotional strain and mental health\n? Building a supportive peer community\n\n? Register at: Tinyurl.com/HIELimitedSupportMar25
URL:https://hopeforhie.org/event/parenting-with-limited-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250324T130000
DTEND;TZID=America/Detroit:20250324T140000
DTSTAMP:20250318T190624Z
CREATED:20250314T171556Z
LAST-MODIFIED:20250318T190624Z
UID:18947-1742821200-1742824800@hopeforhie.org
SUMMARY:Engaging Elected Officials for HIE Change: Q&A with David Ford
DESCRIPTION:Join Hope for HIE on Monday\, March 24th\, at 1:00 PM ET for a LIVE Q&A with David Ford\, Hope for HIE’s Board President\, on engaging elected officials for HIE change.\n\nIn this session\, he will:\n ? Share strategies for effectively engaging and building relationships with elected officials\n ? Discuss how families can advocate for HIE at the local\, national\, and international levels\n ? Provide actionable steps for HIE families to craft key messaging to make their voices heard\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n ? Facebook.com/HopeforHIE\n ? Instagram.com/HopeforHIE\n ? YouTube.com/HopeforHIE
URL:https://hopeforhie.org/event/engaging-elected-officials-for-hie-change-qa-with-david-ford/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250324T200000
DTEND;TZID=America/Detroit:20250324T210000
DTSTAMP:20250220T173546Z
CREATED:20250220T173546Z
LAST-MODIFIED:20250220T173546Z
UID:18859-1742846400-1742850000@hopeforhie.org
SUMMARY:HIE Dad Support
DESCRIPTION:Join Hope for HIE on Monday\, March 24\, at 8:00 PM ET for our video support group for HIE Dads.\n\n➡️ This closed Zoom meeting\, led by two of Hope for HIE’s Peer Support Mentors -- Romm and Brandon -- provides a safe space for fellow HIE Dads to discuss:\n? The emotional journey of witnessing a medical emergency\n? Balancing support for your partner and child\n? Finding community and navigating the role of an HIE Dad\n\n? Register at: Tinyurl.com/HIEDadSupportMar25
URL:https://hopeforhie.org/event/hie-dad-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250326T100000
DTEND;TZID=America/Detroit:20250326T110000
DTSTAMP:20250314T171236Z
CREATED:20250314T171236Z
LAST-MODIFIED:20250314T171236Z
UID:18945-1742983200-1742986800@hopeforhie.org
SUMMARY:Child Life Q&A: Comfort Positions
DESCRIPTION:Join Hope for HIE on Wednesday\, March 26th\, at 10:00 AM ET for a LIVE Q&A with Annie Gunning\, CCLS\, to explore how comfort positioning can help reduce stress and trauma for children during medical experiences.\n\nIn this session\, she will:\n ? Define comfort positions and explain their benefits in medical settings\n ? Demonstrate different comfort positions and when to use them\n ? Share practical tips for parents and caregivers to support children before\, during\, and after procedures\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n ? Facebook.com/HopeforHIE \n ? Instagram.com/HopeforHIE \n ? Youtube.com/HopeforHIE
URL:https://hopeforhie.org/event/child-life-qa-comfort-positions/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250326T120000
DTEND;TZID=America/Detroit:20250326T133000
DTSTAMP:20250311T155138Z
CREATED:20250311T155138Z
LAST-MODIFIED:20250311T155138Z
UID:18928-1742990400-1742995800@hopeforhie.org
SUMMARY:Navigating Dyskinetic CP: HIE Peer Perspectives
DESCRIPTION:Join Hope for HIE on Wednesday\, March 26\, at 12:00 PM ET for the next installment of our HIE Peer Perspective Series\, where HIE parents Shawn P. and Kalyn B. will share their experiences navigating Dyskinetic Cerebral Palsy (DCP) before opening it up to your own insights and questions.\n\nThey will explore:\n? Navigating daily life with DCP and its common challenges.\n? Their experiences caring for a child with DCP\, including practical tips for managing involuntary movements and instating daily routines.\n? Their perspectives on what therapies and treatments have helped and evolved over time.\n? What they wish they had known earlier and advice for families newly navigating DCP.\n\n? Register
URL:https://hopeforhie.org/event/navigating-dyskinetic-cp-hie-peer-perspectives/
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