BEGIN:VCALENDAR VERSION:2.0 PRODID:-//Hope for HIE - Hypoxic Ischemic Encephalopathy - ECPv6.18.2//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://hopeforhie.org X-WR-CALDESC:Events for Hope for HIE - Hypoxic Ischemic Encephalopathy REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/Detroit BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20250309T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20251102T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20260308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20261101T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20270314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20271107T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/Detroit:20260922T120000 DTEND;TZID=America/Detroit:20260922T130000 DTSTAMP:20260915T165047Z CREATED:20260915T165047Z LAST-MODIFIED:20260915T165047Z UID:22457-1790078400-1790082000@hopeforhie.org SUMMARY:Neonatal Research in Cortical Visual Impairment: Q&A with Dr. Mohamed El-Dib DESCRIPTION:Join Hope for HIE on Tuesday\, September 22\, at 12:00 PM ET for a Q&A with Dr. Mohamed El-Dib\, Director of Neonatal Neurocritical Care at Mass General Brigham for Children. Dr. El-Dib also serves on Hope for HIE’s Medical Advisory Board. \nIn this session\, he will:📌 Share his background and connection to the HIE and CVI communities\n📌 Explain what cortical visual impairment (CVI) is\, how it differs from vision problems caused by the eyes themselves\, and why it's especially relevant for babies who've experienced HIE\n📌 Discuss his ongoing research on identifying babies at higher risk for CVI earlier in their care\n📌 Offer guidance on early signs to watch for\, which specialists may be involved\, and questions to bring to appointments\n📌 Share resources for families wanting to learn more about CVI \nWatch the stream on our Facebook or YouTube channels:🔗 Facebook.com/HopeforHIE🔗 YouTube.com/HopeforHIE \n\nRSVP on the Facebook event page for an event reminder!\nhttps://tinyurl.com/NeonatalCVIResearchQA URL:https://hopeforhie.org/event/neonatal-research-in-cortical-visual-impairment-qa-with-dr-mohamed-el-dib/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20260923T200000 DTEND;TZID=America/Detroit:20260923T210000 DTSTAMP:20260831T125254Z CREATED:20260831T125254Z LAST-MODIFIED:20260831T125254Z UID:22336-1790193600-1790197200@hopeforhie.org SUMMARY:Dads & Non-Birthing Partners Support DESCRIPTION:Join Hope for HIE on Wednesday\, September 23\, at 8:00 PM ET for a virtual support group created specifically for dads and non-birthing parents of children affected by HIE.\n\n➡️ This peer-focused Zoom meeting will provide a space for dads and non-birthing parents to connect with others who understand the HIE journey from their perspective. Whether you are newly navigating an HIE diagnosis or have been on this journey for years\, this is an opportunity to talk openly\, share experiences\, and connect with other parents who understand.\n\nTogether\, we’ll create space to talk about:\n\n\n The experience of witnessing an HIE event and navigating what comes next\n Supporting your partner while processing your own emotions and experiences\n Finding your role as a dad or non-birthing parent throughout the HIE journey\n The challenges of balancing work\, family\, caregiving\, and everything in between\n Feeling connected—or sometimes disconnected—from the HIE community\n Finding people who understand the experience of being a dad or non-birthing parent to a child with HIE\n Making space for your own needs and finding support when you need it\n\nThis is a peer-led space intended for conversation\, connection\, and support. You don't have to have the right words or know exactly what you need before joining.\n\n🔗 Register: Tinyurl.com/DadsAndPartnersSep26 URL:https://hopeforhie.org/event/dads-non-birthing-partners-support-2/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20260924T120000 DTEND;TZID=America/Detroit:20260924T130000 DTSTAMP:20260825T194750Z CREATED:20260825T194750Z LAST-MODIFIED:20260825T194750Z UID:22320-1790251200-1790254800@hopeforhie.org SUMMARY:Parent-to-Parent Pop-In Hour DESCRIPTION:Join Hope for HIE on Thursday\, September 24\, at 12:00 PM ET for our Parent-to-Parent Pop-In\, where you can connect 1:1 with our Peer Support Mentor\, Lynn Garrison and Allison Moise\, for immediate support in a safe and supportive setting.\n\nThis is a great opportunity to receive real-time guidance\, ask questions\, build connections\, and see if a formal connection with a Peer Support Mentor is a good fit for you.\n\nImportant Details:\n📌 Log on anytime during the session\, but please join at least 10 minutes before the end time at 1:00 PM ET.\n📌 You’ll be placed in a breakout room with a mentor based on your specific needs or HIE impact/outcome.\n📌 This session is for parents and legal guardians of children with HIE.\n\n🔗 Register: Tinyurl.com/PopInHourSep26 URL:https://hopeforhie.org/event/parent-to-parent-pop-in-hour-3/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20260927T150000 DTEND;TZID=America/Detroit:20260927T170000 DTSTAMP:20260910T220953Z CREATED:20260910T215621Z LAST-MODIFIED:20260910T220953Z UID:22386-1790521200-1790528400@hopeforhie.org SUMMARY:Milwaukee Area In-Person Event: Picnic in the Park DESCRIPTION:Milwaukee area families — meet up for a Picnic in the Park at Malone Park!\n\nKacie Miller\, HIE mom and Hospital Ambassador at Children's Wisconsin\, is hosting a meet-up for local HIE families. Families will meet right outside the playground. Bring a blanket and a snack and Kacie will provide apple cider\, coffee\, and apple juice for kids.\n\n\n Sunday\, September 27th\n 2:00PM CT\n Malone Park\, 16400 W Al Stigler Pkwy\, New Berlin\, WI 53151\n\nRegister: Tinyurl.com/MilwaukeeSept2026 URL:https://hopeforhie.org/event/milwaukee-area-in-person-event-picnic-in-the-park/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20260928T200000 DTEND;TZID=America/Detroit:20260928T210000 DTSTAMP:20260825T195021Z CREATED:20260825T195021Z LAST-MODIFIED:20260825T195021Z UID:22323-1790625600-1790629200@hopeforhie.org SUMMARY:HIE & Mild Outcomes Support DESCRIPTION:Join Hope for HIE on Monday\, September 28\, at 8:00 PM ET for a virtual support group focused on HIE and Mild Outcomes—open to parents and legal guardians seeking additional support and guidance.\n\n➡️ This closed Zoom session will offer a supportive space to connect\, share experiences\, and explore the emotional complexities that can come with a mild HIE outcome.\n\nTogether\, we’ll create space to talk about:\n\n Survivor’s guilt & comparison\n Trauma despite a mild outcome\n Living with uncertainty\n Ambiguous grief\n Permission to struggle and take up space\n\n\n🔗 Register: Tinyurl.com/MildOutcomesSep26 URL:https://hopeforhie.org/event/hie-mild-outcomes-support-3/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20261001T200000 DTEND;TZID=America/Detroit:20261001T210000 DTSTAMP:20260924T145517Z CREATED:20260922T170319Z LAST-MODIFIED:20260924T145517Z UID:22503-1790884800-1790888400@hopeforhie.org SUMMARY:Newly Diagnosed Families Support DESCRIPTION:Join Hope for HIE on Thursday\, October 1\, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis).\n\n➡️ In this closed Zoom meeting experience\, led by our certified social worker\, Jen\, and facilitated by two of Hope's Peer Support Mentors\, Allison and Stephanie\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n🔗 Register: Tinyurl.com/NewtoHIE2026 URL:https://hopeforhie.org/event/newly-diagnosed-families-support-8/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20261004T100000 DTEND;TZID=America/Detroit:20261004T110000 DTSTAMP:20260928T182540Z CREATED:20260928T182540Z LAST-MODIFIED:20260928T182540Z UID:22608-1791108000-1791111600@hopeforhie.org SUMMARY:KRC Annual Fun Run/Walk DESCRIPTION:🌟 Community event open to HIE families in the Pittsburgh\, PA area! 🌟\n\nThe Kool Run Club (KRC) is hosting its second annual Charity Fun Run/Walk in support of Autism Connection of Pennsylvania and Hope for HIE!\n\n📅 Date: Sunday\, October 4\n🕙 Time: 10:00 AM ET\n📍 Location: Groove Coffee Company\, 4453 William Penn Hwy\, Murrysville\, PA 15668\n\nWe’d love to see our #HIE community come together to walk\, run\, and make a difference!\n\n👉 Learn more and get involved: Tinyurl.com/KRCAnnualCharityFunRun\n\n#HopeForHIE #HIECommunity #HIESupport #CharityRun #KoolRunClub #Pittsburgh #Pennsylvania URL:https://hopeforhie.org/event/krc-annual-fun-run-walk-2/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20261005T200000 DTEND;TZID=America/Detroit:20261005T210000 DTSTAMP:20260922T170615Z CREATED:20260922T170615Z LAST-MODIFIED:20260922T170615Z UID:22506-1791230400-1791234000@hopeforhie.org SUMMARY:Navigating HIE with Children 17+ Support DESCRIPTION:Join Hope for HIE on Monday\, October 5\, at 8:00 PM ET for our video support group session for parents and legal guardians navigating HIE with children ages 17 and older.\n\n➡️ In this closed Zoom meeting\, led by our certified social worker\, Jen\, families will be engaged in a space of healing and hope to discuss:\n\n Preparing for the transition into adulthood and legal adult status\n Navigating changes in schooling\, therapies\, and support services\n Planning for long-term care\, guardianship\, and independence\n\n🔗 Register: Tinyurl.com/HIE17AndUpOct26 URL:https://hopeforhie.org/event/navigating-hie-with-children-17-support/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20261008T200000 DTEND;TZID=America/Detroit:20261008T210000 DTSTAMP:20260924T145459Z CREATED:20260922T170936Z LAST-MODIFIED:20260924T145459Z UID:22510-1791489600-1791493200@hopeforhie.org SUMMARY:Loss Families Support DESCRIPTION:Join Hope for HIE on Thursday\, October 8\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting led by our certified social worker\, Jen\, families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n🔗 Register: Tinyurl.com/HIELossSupport2026 URL:https://hopeforhie.org/event/loss-families-support-6/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20261014T120000 DTEND;TZID=America/Detroit:20261014T130000 DTSTAMP:20260922T171242Z CREATED:20260922T171242Z LAST-MODIFIED:20260922T171242Z UID:22513-1791979200-1791982800@hopeforhie.org SUMMARY:Extended Family Support DESCRIPTION:Join Hope for HIE on Wednesday\, October 14\, at 12:00 PM ET for our video support group designated for extended family members of children impacted by HIE.\n\n➡️ This closed Zoom meeting\, led by our certified social worker\, Jen\, provides a supportive space for grandparents\, aunts\, uncles\, and other family members to connect\, learn\, and discuss ways to best support their loved ones on the HIE journey.\n\n🔗 Register: Tinyurl.com/ExtendedFamilyOct26 URL:https://hopeforhie.org/event/extended-family-support-6/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20261015T200000 DTEND;TZID=America/Detroit:20261015T210000 DTSTAMP:20260922T171605Z CREATED:20260922T171605Z LAST-MODIFIED:20260922T171605Z UID:22516-1792094400-1792098000@hopeforhie.org SUMMARY:Navigating More Severe Outcomes Support DESCRIPTION:Join Hope for HIE on Thursday\, October 15\, at 8:00 PM ET for our video support group session for parents and legal guardians navigating more severe HIE outcomes.\n\n➡️ This closed Zoom meeting\, facilitated by Peer Support Mentor\, Allison\, offers a supportive space to discuss:\n\n Coping with complex medical and care needs\n Finding support and community for more severe HIE outcomes\n Navigating grief around evolving expectations\n\n🔗 Register: Tinyurl.com/MoreSevereOutcomesOct26 URL:https://hopeforhie.org/event/navigating-more-severe-outcomes-support/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20261019T200000 DTEND;TZID=America/Detroit:20261019T210000 DTSTAMP:20260922T171827Z CREATED:20260922T171827Z LAST-MODIFIED:20260922T171827Z UID:22519-1792440000-1792443600@hopeforhie.org SUMMARY:Work/Life Balance Support DESCRIPTION:Join Hope for HIE on Monday\, October 19\, at 8:00 PM ET for our video support group session for parents and legal guardians working to balance caregiving with work and life responsibilities.\n\n➡️ This closed Zoom meeting\, led by our certified social worker\, Jen\, and facilitated by Peer Support Mentor\, Stephanie\, offers a safe space to discuss:\n\n Balancing caregiving responsibilities with work and career\n Setting boundaries and asking for support\n Managing burnout and prioritizing self-care\n\n🔗 Register: Tinyurl.com/WorkLifeBalanceOct26 URL:https://hopeforhie.org/event/work-life-balance-support/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20261021T120000 DTEND;TZID=America/Detroit:20261021T130000 DTSTAMP:20260922T172322Z CREATED:20260922T172322Z LAST-MODIFIED:20260922T172322Z UID:22522-1792584000-1792587600@hopeforhie.org SUMMARY:HIE & Mild Outcomes Support DESCRIPTION:Join Hope for HIE on Wednesday\, October 21\, at 12:00 PM ET for our video support group session for parents and legal guardians navigating a mild HIE outcome.\n\n➡️ This closed Zoom meeting\, led by our certified social worker\, Jen\, offers a supportive space to discuss:\n\n  Navigating a "mild" HIE diagnosis and its unique challenges\n Advocating for services and supports when outcomes are less visible\n Connecting with others who understand a milder diagnosis path\n\n🔗 Register: Tinyurl.com/MildOutcomesOct26 URL:https://hopeforhie.org/event/hie-mild-outcomes-support-4/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20261022T120000 DTEND;TZID=America/Detroit:20261022T130000 DTSTAMP:20261015T193050Z CREATED:20261015T193005Z LAST-MODIFIED:20261015T193050Z UID:23161-1792670400-1792674000@hopeforhie.org SUMMARY:Peer Perspective Series: Bereavement & Loss DESCRIPTION:Join Hope for HIE on Thursday\, October 22nd at 12PM ET for our latest Peer Perspective Series\, where HIE parents Kayla W.\, Samantha G.\, Maria B.\, and John C. open up about bereavement and loss after the death of their child.\n\nTune in for an honest\, heartfelt panel conversation where parents share their children’s stories\, the time they had together\, and what grief has looked like for them in the months and years since.\n\nThey’ll explore:\n\n Their birth stories and the moments that led to an HIE diagnosis\n Making memories in the NICU\, at home\, and on hospice\, and advocating for what their family needed\n The early days of grief\, from planning a goodbye to getting through each day\n How grief has changed over time\, and the ways they keep their child’s memory part of their family\n Advice for newly bereaved families\, including the importance of asking questions and leaning on others\n\nTune in via our Facebook or YouTube channels on Thursday\, October 22nd.\n\n https://www.facebook.com/hopeforhie\n https://www.youtube.com/hopeforhie URL:https://hopeforhie.org/event/peer-perspective-series-bereavement-loss/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20261026T200000 DTEND;TZID=America/Detroit:20261026T210000 DTSTAMP:20260922T173005Z CREATED:20260922T173005Z LAST-MODIFIED:20260922T173005Z UID:22528-1793044800-1793048400@hopeforhie.org SUMMARY:Navigating Puberty (Girls) Support DESCRIPTION:Join Hope for HIE on Monday\, October 26\, at 8:00 PM ET for our video support group session for parents and legal guardians navigating puberty with their daughters who have HIE.\n\n➡️ This closed Zoom meeting\, led by our certified social worker\, Jen\, offers a supportive space to discuss:\n\n Navigating physical and hormonal changes related to puberty\n Addressing hygiene\, self-care\, and support needs specific to girls with HIE\n Preparing for conversations about growing up and independence\n\n🔗 Register: Tinyurl.com/NavigatingGirlsPubertyOct26  URL:https://hopeforhie.org/event/navigating-puberty-girls-support/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Detroit:20261028T120000 DTEND;TZID=America/Detroit:20261028T130000 DTSTAMP:20260922T224703Z CREATED:20260922T172512Z LAST-MODIFIED:20260922T224703Z UID:22525-1793188800-1793192400@hopeforhie.org SUMMARY:HIE Loss Within the Last Year Support DESCRIPTION:Join Hope for HIE on Wednesday\, October 28\, at 12:00 PM ET for our video support group session designated for families who have lost a child to HIE within the past year.\n\n➡️ In this closed Zoom meeting\, led by our certified social worker\, Jen\, families will be engaged in a space of healing and hope to discuss:\n\n Processing early grief in the acute aftermath of loss\n Navigating the "firsts" after loss\n Building connection with others recently impacted by HIE loss\n\n🔗 Register: Tinyurl.com/LossWithinLastYearOct26 URL:https://hopeforhie.org/event/hie-loss-within-the-last-year-support/ END:VEVENT END:VCALENDAR