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X-WR-CALNAME:Hope for HIE - Hypoxic Ischemic Encephalopathy
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X-WR-CALDESC:Events for Hope for HIE - Hypoxic Ischemic Encephalopathy
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TZID:America/Detroit
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DTSTART;TZID=America/Detroit:20250922T093000
DTEND;TZID=America/Detroit:20250922T100000
DTSTAMP:20250829T142931Z
CREATED:20250822T151957Z
LAST-MODIFIED:20250829T142931Z
UID:19982-1758533400-1758535200@hopeforhie.org
SUMMARY:Navigating the NICU-to-HOME Transition: Q&A with Dr. Monica Lemmon
DESCRIPTION:Join Hope for HIE on Monday\, September 22\, at 9:30 AM ET for a LIVE Q&A with Dr. Monica Lemmon\, Pediatric Neurologist at Duke Health\, focused on supporting families as they transition home from the NICU. \nIn this session\, she will:📌 Review what families can expect during NICU discharge and the first weeks at home📌 Explore common neurological and developmental concerns parents may notice after leaving the NICU📌 Discuss how families can track milestones\, prepare for follow-up appointments\, and ask the right questions of their care team📌 Share resources and strategies to help families feel confident and supported as they care for their baby \nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:🔗 Facebook.com/HopeforHIE🔗 Instagram.com/HopeforHIE🔗 YouTube.com/HopeforHIE
URL:https://hopeforhie.org/event/navigating-the-nicu-to-home-transition-qa-with-dr-monica-lemmon/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250918T200000
DTEND;TZID=America/Detroit:20250918T210000
DTSTAMP:20250822T141212Z
CREATED:20250822T141212Z
LAST-MODIFIED:20250822T141212Z
UID:19973-1758225600-1758229200@hopeforhie.org
SUMMARY:Couples Coping with HIE
DESCRIPTION:Join Hope for HIE on Thursday\, September 18\, at 8:00 PM ET for a virtual support group focused on Couples Coping with HIE — open to parents and legal guardians seeking additional support and guidance.\n\n➡️ This closed Zoom session is led by our licensed social worker\, Jen\, and facilitated by HIE Hospital Ambassador\, Jennifer H. Together\, they’ll create a supportive space to share and connect around:\n\n🎯 Navigating differences in coping styles and communication between partners\n🎯 Balancing relationship needs with caregiving responsibilities\n🎯 Finding connection\, shared hope\, and meaning in your child’s HIE journey\n\n🔗 Register: Tinyurl.com/HIECouplesSupportSept25
URL:https://hopeforhie.org/event/couples-coping-with-hie/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250918
DTEND;VALUE=DATE:20250919
DTSTAMP:20251025T155834Z
CREATED:20251025T155834Z
LAST-MODIFIED:20251025T155834Z
UID:20404-1758153600-1758239999@hopeforhie.org
SUMMARY:IQ Consortium Webinar: Unmet Medical Needs for Pediatric Drug Development
DESCRIPTION:Hope for HIE’s Executive Director will be speaking about therapeutic development and patient advocacy involvement to advance neonatal clinical trials.
URL:https://hopeforhie.org/event/iq-consortium-webinar-unmet-medical-needs-for-pediatric-drug-development/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250917T103000
DTEND;TZID=America/Detroit:20250917T113000
DTSTAMP:20250828T125656Z
CREATED:20250828T125515Z
LAST-MODIFIED:20250828T125656Z
UID:20054-1758105000-1758108600@hopeforhie.org
SUMMARY:Child Life Q&A: Supporting Families in the NICU
DESCRIPTION:Join Hope for HIE on Wednesday\, September 17\, at 10:30 AM ET for a LIVE Child Life Q&A with Annie Gunning\, CCLS\, exploring how child life specialists and their tools can support families throughout the NICU journey.\n\nThe NICU can feel overwhelming for families\, and child life specialists play a vital role in helping parents and siblings bond with their baby\, process emotions\, and find meaningful ways to connect during this critical time.\n\nIn this session\, Annie Gunning\, CCLS\, will:\n📌 Share how child life specialists support families and babies during a NICU stay\n📌 Offer strategies to strengthen parent-infant bonding while in the NICU environment\n📌 Discuss ways to help siblings feel connected and included when their brother or sister is in the NICU\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n🔗 Facebook.com/HopeforHIE\n🔗 Instagram.com/HopeforHIE\n🔗 YouTube.com/HopeforHIE
URL:https://hopeforhie.org/event/child-life-qa-supporting-families-in-the-nicu/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250916T200000
DTEND;TZID=America/Detroit:20250916T210000
DTSTAMP:20250826T145928Z
CREATED:20250826T145928Z
LAST-MODIFIED:20250826T145928Z
UID:20012-1758052800-1758056400@hopeforhie.org
SUMMARY:HIE Dads
DESCRIPTION:Join Hope for HIE on Tuesday\, September 16\, at 8:00 PM ET for our video support group for HIE Dads.\n\n➡️ This closed Zoom meeting\, led by HIE Dad and Peer Support Mentor\, Brandon C.\, provides a safe space to discuss:\n\n🎯 The emotional journey of witnessing a medical emergency\n🎯 Balancing support for your partner and child\n🎯 Finding community and navigating the role of an HIE dad\n\n🔗 Register: Tinyurl.com/HIEDadSupportSept25
URL:https://hopeforhie.org/event/hie-dads/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250915
DTEND;VALUE=DATE:20250916
DTSTAMP:20251025T155651Z
CREATED:20251025T155651Z
LAST-MODIFIED:20251025T155651Z
UID:20401-1757894400-1757980799@hopeforhie.org
SUMMARY:Hope for HIE at the FDA Interested Parties Meeting for Pediatric Drug Development
DESCRIPTION:Hope for HIE’s Executive Director will be speaking and representing the the global HIE community to discuss the unmet needs in pharmaceuticals and pediatric research in neonatal and pediatric-acquired HIE\, and discuss the formation of the International Neonatal Consortium's Neonatal Brain Injury Collaborative that Hope for HIE has co-founded.
URL:https://hopeforhie.org/event/hope-for-hie-at-the-fda-interested-parties-meeting-for-pediatric-drug-development/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250913T110000
DTEND;TZID=America/Detroit:20250913T130000
DTSTAMP:20250813T144634Z
CREATED:20250811T133652Z
LAST-MODIFIED:20250813T144634Z
UID:19884-1757761200-1757768400@hopeforhie.org
SUMMARY:Work It Out: Seattle Community Event
DESCRIPTION:Seattle-area families — take a break and focus on you!\n\n \n\nTina Santos\, HIE mom and Hospital Ambassador at Seattle Children's\, is hosting Work It Out\, a local connection event all about self-care for HIE parents and caregivers.\n\n \n\n🗓️ Saturday\, September 13\n\n🕚 11:00 AM – 1:00 PM PT\n\n📍 Sunrise Elementary School\, 22300 132nd Ave SE\, Kent\, WA\n\n \n\nEnjoy a supportive space to share how caring for a child with HIE impacts your health and self-care\, then learn sustainable workout tips and tricks from former trainer Alicia Alford — tailored just for busy caregivers.\n\nPlease bring your own light lunch/snacks and\, if you’d like\, small hand weights or dumbbells. A playground will be open for kids during the session.\n\n➡️ Register: TinyURL.com/WorkItOutHIE
URL:https://hopeforhie.org/event/work-it-out-seattle-community-event/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250911T200000
DTEND;TZID=America/Detroit:20250911T210000
DTSTAMP:20250822T140937Z
CREATED:20250822T140937Z
LAST-MODIFIED:20250822T140937Z
UID:19970-1757620800-1757624400@hopeforhie.org
SUMMARY:Pregnancy After HIE Loss
DESCRIPTION:Join Hope for HIE on Thursday\, September 11\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting led by our certified social worker\, Jen\, and facilitated by one of our Peer Support Mentors\, Kimberly\, families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n🔗 Register: Tinyurl.com/HIELossSupport
URL:https://hopeforhie.org/event/pregnancy-after-hie-loss/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250908
DTEND;VALUE=DATE:20250911
DTSTAMP:20250801T165936Z
CREATED:20250801T165936Z
LAST-MODIFIED:20250801T165936Z
UID:19734-1757289600-1757548799@hopeforhie.org
SUMMARY:C-PATH Impact Conference & International Neonatal Consortium Day
DESCRIPTION:Hope for HIE’s Executive Director will be speaking about therapeutic development and patient advocacy involvement to advance neonatal clinical trials.\nLEARN MORE
URL:https://hopeforhie.org/event/c-path-impact-conference-international-neonatal-consortium-day/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250904T200000
DTEND;TZID=America/Detroit:20250904T210000
DTSTAMP:20250822T142400Z
CREATED:20250822T142400Z
LAST-MODIFIED:20250822T142400Z
UID:19979-1757016000-1757019600@hopeforhie.org
SUMMARY:Newly Diagnosed Families
DESCRIPTION:Join Hope for HIE on Thursday\, September 4\, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis).\n\n➡️ In this closed Zoom meeting experience\, led by our certified social worker\, Jen\, and facilitated by one of our HIE Hospital Ambassadors\, Wendy\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n🔗 Register: Tinyurl.com/NewtoHIE
URL:https://hopeforhie.org/event/newly-diagnosed-families-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250827T120000
DTEND;TZID=America/Detroit:20250827T130000
DTSTAMP:20250730T141027Z
CREATED:20250730T141027Z
LAST-MODIFIED:20250730T141027Z
UID:19714-1756296000-1756299600@hopeforhie.org
SUMMARY:Child Life Q&A: Navigating Back-to-School Transitions
DESCRIPTION:Join Hope for HIE on Wednesday\, August 17\, at 12:00 PM ET for a LIVE Child Life Q&A with Annie Gunning\, CCLS\, focused on helping children with HIE navigate back-to-school transitions.\n\nIn this session\, Annie will:\n 📌 Share strategies to support expected transitions like starting a new school year or entering a new classroom\n 📌 Offer guidance for coping with unexpected transitions that can disrupt the school routine\, such as hospital stays\, missed classes\, or sudden changes in support needs\n 📌 Highlight key resources that can help families and schools work together to create supportive environments\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n 🔗 Facebook.com/HopeforHIE\n 🔗 Instagram.com/HopeforHIE\n 🔗 YouTube.com/HopeforHIE
URL:https://hopeforhie.org/event/child-life-qa-navigating-back-to-school-transitions/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250820T200000
DTEND;TZID=America/Detroit:20250820T210000
DTSTAMP:20250721T141902Z
CREATED:20250721T141902Z
LAST-MODIFIED:20250721T141902Z
UID:19664-1755720000-1755723600@hopeforhie.org
SUMMARY:Navigating Loss of Professional Identity Support Group
DESCRIPTION:Join Hope for HIE on Wednesday\, August 20\, at 8:00 PM ET for a virtual support group session focused on Navigating Loss of Professional Identity — open to any parent or legal guardian who has stepped away from their career to care for a child with HIE.\n\n➡️ This closed Zoom session will be led by our certified social worker\, Jen\, and facilitated by two of our HIE Hospital Ambassadors\, Kacie and Tina. Together\, they’ll help create a supportive space for families to share\, learn\, and connect around:\n🎯 Navigating career changes & identify shifts\n🎯 Redefining purpose and self-worth\n🎯 Identifying available supports\n\n🔗 Register: Tinyurl.com/HIEIdentityLossAug25
URL:https://hopeforhie.org/event/navigating-loss-of-professional-identity-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250819T200000
DTEND;TZID=America/Detroit:20250819T210000
DTSTAMP:20250721T141744Z
CREATED:20250721T141744Z
LAST-MODIFIED:20250721T141744Z
UID:19661-1755633600-1755637200@hopeforhie.org
SUMMARY:Pregnancy After HIE Loss Support Group
DESCRIPTION:Join Hope for HIE on Tuesday\, August 19\, at 8:00 PM ET for a virtual support group focused on Pregnancy After HIE Loss — open to birthing parents seeking additional support and guidance.\n\n➡️ This closed Zoom session will be led by our licensed social worker\, Jen\, and facilitated by Peer Support Mentor\, Kimberly. Together\, they’ll create a supportive space to share\, connect\, and explore:\n🎯 Navigating joy\, grief\, and pregnancy-specific stressors\n🎯 Caring for yourself while managing family dynamics & relationships\n🎯 Building hope and preparing for what’s ahead\n\n🔗 Register: Tinyurl.com/PregnancyAfterHIELossAug25
URL:https://hopeforhie.org/event/pregnancy-after-hie-loss-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250819T120000
DTEND;TZID=America/Detroit:20250819T130000
DTSTAMP:20250714T130704Z
CREATED:20250714T123620Z
LAST-MODIFIED:20250714T130704Z
UID:19617-1755604800-1755608400@hopeforhie.org
SUMMARY:Getting Involved: Peer Support & Volunteering
DESCRIPTION:💙 We See You—And We Can’t Do This Without You!\n\nJoin Hope for HIE on August 19 at 12 PM ET to explore meaningful (and flexible!) ways to get involved in our community.\n\nWhether you’ve answered a question\, shared your story\, or offered a kind word—you’re already doing powerful peer support! Listen to our Peer Support Mentors\, Amanda H. and Megan C.\, along with one of our HIE Hospital Ambassadors\, Tina S.\, as they share how they have turned their personal experiences into impactful ways to give back.\n\nLearn and ask about:\n🎙️ Sharing your story in a Peer Perspective panel\n👥 Co-facilitating virtual support groups\n🧠 Giving feedback on new resources\n🤝 Becoming a trained Peer Mentor or Hospital Ambassador\n\nBig or small\, there’s space for you to get involved and give back!\n\n🔗 Register: Tinyurl.com/HIEGetInvolved
URL:https://hopeforhie.org/event/getting-involved-peer-support-volunteering/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250814T200000
DTEND;TZID=America/Detroit:20250814T210000
DTSTAMP:20250721T141636Z
CREATED:20250721T141636Z
LAST-MODIFIED:20250721T141636Z
UID:19658-1755201600-1755205200@hopeforhie.org
SUMMARY:Loss Support Group
DESCRIPTION:Join Hope for HIE on Thursday\, August 14\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting led by our certified social worker\, Jen\, and facilitated by one of Hope’s Peer Support Mentor\, Kimberly\, families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n🔗 Register: Tinyurl.com/HIELossSupport
URL:https://hopeforhie.org/event/loss-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250809T160000
DTEND;TZID=America/Detroit:20250809T180000
DTSTAMP:20250604T133917Z
CREATED:20250604T133800Z
LAST-MODIFIED:20250604T133917Z
UID:19287-1754755200-1754762400@hopeforhie.org
SUMMARY:Caregiver Time Out - Seattle\, WA
DESCRIPTION:Seattle families - meet up for some well-deserved relaxation and time out!\n\nTina Santos\, HIE mom and Hospital Ambassador at Seattle Children's Hospital\, is hosting this summer gathering for HIE parents and caregivers.\n\n?️ Saturday\, August 9\n? 4:00 – 6:00 PM\n? Lake Wilderness\, 22500 SE 248th St\, Maple Valley\, WA\n\nThis lake does not allow motors; only floaties and fresh air are permitted. Whether you bring a paddleboard or just a beach chair\, enjoy some well-deserved rest\, connection\, sunshine\, and support with other HIE parents. Light snacks and water will be provided.\n\n➡️ Register: Tinyurl.com/SeattleSummer2025
URL:https://hopeforhie.org/event/caregiver-time-out-seattle-wa/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250807T200000
DTEND;TZID=America/Detroit:20250807T210000
DTSTAMP:20250721T141515Z
CREATED:20250721T141515Z
LAST-MODIFIED:20250721T141515Z
UID:19655-1754596800-1754600400@hopeforhie.org
SUMMARY:Newly Diagnosed Support Group
DESCRIPTION:Join Hope for HIE on Thursday\, August 7\, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis).\n\n➡️ In this closed Zoom meeting experience\, led by our certified social worker\, Jen\, and facilitated by two of our Peer Support Mentors\, Megan and Meagan\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n🔗 Register: Tinyurl.com/NewtoHIE
URL:https://hopeforhie.org/event/newly-diagnosed-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250729T120000
DTEND;TZID=America/Detroit:20250729T130000
DTSTAMP:20250728T185650Z
CREATED:20250623T125038Z
LAST-MODIFIED:20250728T185650Z
UID:19485-1753790400-1753794000@hopeforhie.org
SUMMARY:HIE & Back to School Readiness
DESCRIPTION:Join Hope for HIE on Tuesday\, July 29\, at 12:00 PM ET for a virtual support group session focused on HIE & Back-to-School Readiness — open to all parents and legal guardians preparing for the school year with children who have HIE and complex medical needs.\n\n➡️ This closed Zoom session will be led by our certified social worker\, Jen\, and facilitated by Peer Support Mentors\, Ashley and Kara. Together\, they’ll help create a supportive space for families to share\, learn\, and connect around:\n\n🎯 Preparing school staff & sharing your child’s needs\n🎯 Navigating back-to-school checklists & IEPs\n🎯 Supporting your child emotionally\n🎯 Sharing tips\, tools\, concerns\, and wins from parents\n\n🔗 Register at: Tinyurl.com/HIEBacktoSchool2025
URL:https://hopeforhie.org/event/hie-back-to-school-readiness/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250722T120000
DTEND;TZID=America/Detroit:20250722T130000
DTSTAMP:20250623T124931Z
CREATED:20250623T124920Z
LAST-MODIFIED:20250623T124931Z
UID:19482-1753185600-1753189200@hopeforhie.org
SUMMARY:Peer Mentor Support Office Hours
DESCRIPTION:Join Hope for HIE on Tuesday\, July 22\, at 12:00 PM ET for our Peer Mentor Office Hours\, where you can connect 1:1 with our Peer Support Mentor - Brandon - for immediate support in a safe and supportive setting. This is a great opportunity to receive real-time guidance\, ask questions\, build connections\, and see if a formal connection with a mentor is a good fit for you.\n\nImportant Details:\n\n📌 Log on anytime during the session\, but please join at least 10 minutes before the end time at 1:00 PM ET.\n📌 If applicable\, you’ll placed in a breakout room with a mentor based on your specific needs or HIE impact/outcome.\n📌 This session is for parents and legal guardians of children with HIE.\n\n🔗Register: Tinyurl.com/HIEOfficeHoursJuly25
URL:https://hopeforhie.org/event/peer-mentor-support-office-hours/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250715T120000
DTEND;TZID=America/Detroit:20250715T140000
DTSTAMP:20250604T133416Z
CREATED:20250604T133300Z
LAST-MODIFIED:20250604T133416Z
UID:19285-1752580800-1752588000@hopeforhie.org
SUMMARY:Park Play Date - Seattle\, WA
DESCRIPTION:Seattle families — meet up for a park play date!\n\nTina Santos\, HIE mom and HIE Hospital Ambassador at Seattle Children's Hospital\, is hosting an inclusive park play date for local HIE families.\n\n?️ Tuesday\, July 15\n? 12:00 – 2:00 PM\n? Pathways Park\, 5201 Sand Point Way NE\, Seattle\, WA\n\nThis accessible park is conveniently located next to Seattle Children’s and the Ronald McDonald House\, boasting a range of inclusive features\, including wheelchair-accessible swings\, artificial turf paths\, and height-adjustable changing tables. Bring the whole family for fun\, support\, and connection!\n\n➡️ Register: Tinyurl.com/SeattleSummer2025
URL:https://hopeforhie.org/event/park-play-date-seattle-wa/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250710T200000
DTEND;TZID=America/Detroit:20250710T210000
DTSTAMP:20250623T124601Z
CREATED:20250623T124601Z
LAST-MODIFIED:20250623T124601Z
UID:19479-1752177600-1752181200@hopeforhie.org
SUMMARY:Loss Family Support
DESCRIPTION:Join Hope for HIE on Thursday\, July 10\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting led by our certified social worker\, Jen\, and facilitated by one of Hope’s Peer Support Mentors\, Jill\, families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n🔗 Register: Tinyurl.com/HIELossSupport
URL:https://hopeforhie.org/event/loss-family-support-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250703T200000
DTEND;TZID=America/Detroit:20250703T210000
DTSTAMP:20250623T132944Z
CREATED:20250623T124459Z
LAST-MODIFIED:20250623T132944Z
UID:19476-1751572800-1751576400@hopeforhie.org
SUMMARY:Newly Diagnosed Families
DESCRIPTION:Join Hope for HIE on Thursday\, July 3\, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis).\n\n➡️ In this closed Zoom meeting experience led by Allison Moise\, BSW\, and facilitated by one of our Peer Support Mentors\, Stephanie\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n🔗Register: Tinyurl.com/NewtoHIE
URL:https://hopeforhie.org/event/newly-diagnosed-families/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250701T100000
DTEND;TZID=America/Detroit:20250701T110000
DTSTAMP:20250623T124330Z
CREATED:20250623T124330Z
LAST-MODIFIED:20250623T124330Z
UID:19473-1751364000-1751367600@hopeforhie.org
SUMMARY:Extended Family Support
DESCRIPTION:Join Hope for HIE on Tuesday\, July 1\, at 10:00 AM ET for our video support group designated for extended family members of children impacted by HIE.\n\n➡️ This closed Zoom meeting\, led by our certified social worker\, Jen\, and facilitated by Peer Support Mentor\, Carol\, provides a supportive space for grandparents\, aunts\, uncles\, and other family members to connect\, learn\, and discuss ways to best support their loved ones on the HIE journey.\n\n🔗 Register at: Tinyurl.com/HIEExtendedFamilyJuly25
URL:https://hopeforhie.org/event/extended-family-support-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250624T120000
DTEND;TZID=America/Detroit:20250624T130000
DTSTAMP:20250610T174722Z
CREATED:20250610T174722Z
LAST-MODIFIED:20250610T174722Z
UID:19310-1750766400-1750770000@hopeforhie.org
SUMMARY:Traveling with Children with HIE: Support Group
DESCRIPTION:Join Hope for HIE on Thursday\, June 24\, at 12:00 PM ET for a support group session for parents and legal guardians navigating travel with children who have HIE/complex medical needs.\n\n➡️ This closed Zoom session will be led by our certified social worker\, Jen\, and facilitated by two of Hope’s Peer Support Mentors\, Allison and Megan\, along with community member Shawn. Together\, they’ll help create a supportive space for families to share and connect around:\n\n🎯 Practical tips for planning safe and comfortable travel with children who have medical and mobility challenges\n 🎯 How to pack and prepare essential medical supplies\, equipment\, and documentation for your trip\n 🎯 Strategies to manage sensory sensitivities\, feeding needs\, and medication schedules while away from home\n\n🔗 Register at: Tinyurl.com/HIENavigatingTravel
URL:https://hopeforhie.org/event/traveling-with-children-with-hie-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250624T100000
DTEND;TZID=America/Detroit:20250624T110000
DTSTAMP:20250617T153052Z
CREATED:20250617T153052Z
LAST-MODIFIED:20250617T153052Z
UID:19437-1750759200-1750762800@hopeforhie.org
SUMMARY:Maggie Jalowsky Q&A -- Hope for HIE Welcomes Clinical Research Program Manager
DESCRIPTION:Join us on Tuesday\, June 24\, at 10:00 AM ET for an introduction to Maggie Jalowsky\, who has joined the Hope for HIE team as our Clinical Research Program Manager.\n\nIn this session\, Maggie will share:\n📌 How her work at Hope focuses on bringing meaningful support to our community.\n📌 Updates on academic and industry partnerships advancing HIE research and care.\n📌 The importance of family perspectives and input in studies like COOL PRIME\, STAR\, and other upcoming trials.\n📌 Insights on the new registry work designed to improve outcomes and understanding of HIE.\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n🔗 Facebook.com/HopeforHIE\n🔗 Instagram.com/HopeforHIE\n🔗 YouTube.com/HopeforHIE
URL:https://hopeforhie.org/event/maggie-jalowsky-qa-hope-for-hie-welcomes-clinical-research-program-manager/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250619T200000
DTEND;TZID=America/Detroit:20250619T210000
DTSTAMP:20250521T154850Z
CREATED:20250521T154850Z
LAST-MODIFIED:20250521T154850Z
UID:19268-1750363200-1750366800@hopeforhie.org
SUMMARY:Pregnancy After HIE: Non-Birthing Partners Support
DESCRIPTION:Join Hope for HIE on Thursday\, June 19\, at 8:00 PM ET for our Pregnancy after HIE support group designated for non-birthing partners. \n\n➡️ This closed Zoom meeting\, facilitated by our certified social worker\, Jen\, and one of our Peer Support Mentors\, Romm\,  provides a safe space to discuss:\n\n? The emotional journey of witnessing a medical emergency\n? Balancing support for your partner and child\n? Finding community and navigating the role of a non-birthing partner\n\n? Register at: Tinyurl.com/HIENonBirthingPOVJune25
URL:https://hopeforhie.org/event/pregnancy-after-hie-non-birthing-partners-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250618T120000
DTEND;TZID=America/Detroit:20250618T130000
DTSTAMP:20250529T151109Z
CREATED:20250529T151109Z
LAST-MODIFIED:20250529T151109Z
UID:19279-1750248000-1750251600@hopeforhie.org
SUMMARY:Child Life Q&A: Explaining HIE to Your Child
DESCRIPTION:Join Hope for HIE on Tuesday\, June 18\, at 12:00 PM ET for a LIVE Child Life Q&A with Annie Gunning\, CCLS\, as we explore how to talk with your child about their HIE diagnosis in an age-appropriate way: \n\nIn this session\, Annie will:\n? Help parents feel more confident about having honest\, empowering conversations about HIE\n? Offer simple\, age-appropriate language and tools for explaining HIE\n? Address common questions kids ask and positive ways to respond\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n ? Facebook.com/HopeforHIE\n ? Instagram.com/HopeforHIE\n ? YouTube.com/HopeforHIE
URL:https://hopeforhie.org/event/child-life-qa-explaining-hie-to-your-child/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250617T120000
DTEND;TZID=America/Detroit:20250617T130000
DTSTAMP:20250609T175138Z
CREATED:20250609T175138Z
LAST-MODIFIED:20250609T175138Z
UID:19304-1750161600-1750165200@hopeforhie.org
SUMMARY:Navigating Vacation & Travel: HIE Peer Perspective Series
DESCRIPTION:Join Hope for HIE on Tuesday\, June 17th at 12:00 PM ET for our Peer Perspectives Panel\, where Peer Support Mentors Allison M. and Stephanie L. will share personal insights and practical tips on traveling and vacationing with a medically complex child.\n\nIn this session\, they will:\n 📌 Share how they choose destinations and plan ahead for accessibility\, transportation\, and medical needs\n 📌 Offer practical packing tips\, travel hacks\, and ways to manage the unexpected while on the go\n 📌 Reflect on how their mindset has shifted over time - focusing on creating joyful\, meaningful family experiences\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n🔗 Facebook.com/HopeforHIE\n🔗 Instagram.com/HopeforHIE\n🔗 Youtube.com/HopeforHIE  \n\nPlease note: This panel will not follow the typical support group structure. However\, if enough interest is expressed\, we will consider dedicating a future support group topic to it at a later date.
URL:https://hopeforhie.org/event/navigating-vacation-travel-hie-peer-perspective-series/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250612T200000
DTEND;TZID=America/Detroit:20250612T210000
DTSTAMP:20250521T154705Z
CREATED:20250521T154705Z
LAST-MODIFIED:20250521T154705Z
UID:19266-1749758400-1749762000@hopeforhie.org
SUMMARY:Loss Families Support
DESCRIPTION:Join Hope for HIE on Thursday\, June 12\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting led by our certified social worker\, Jen\, and facilitated by one of Hope’s Peer Support Mentors\, Jill\, families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n? Register: Tinyurl.com/HIELossSupport
URL:https://hopeforhie.org/event/loss-families-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250609T120000
DTEND;TZID=America/Detroit:20250609T130000
DTSTAMP:20250521T154320Z
CREATED:20250521T154320Z
LAST-MODIFIED:20250521T154320Z
UID:19264-1749470400-1749474000@hopeforhie.org
SUMMARY:Navigating a Severe Diagnosis Support
DESCRIPTION:Join Hope for HIE on Monday\, June 9\, at 12:00 PM ET for our video support group designated for parents and legal guardians navigating the complexities of a severe HIE diagnosis.\n\n➡️ This closed Zoom support session is led by Hope for HIE’s certified social worker\, Jen\, and is facilitated by one of our Peer Support Mentors\, Allison\, who will provide a safe space to explore:\n\n?The emotional journey of a severe HIE diagnosis\n?Firsthand experiences navigating medical complexities beyond the initial years\n?Supportive strategies for families facing the challenges of prolonged “wait and see” periods\n\n?Register using this link: Tinyurl.com/NavigatingSevereHIEJune25 
URL:https://hopeforhie.org/event/navigating-a-severe-diagnosis-support/
END:VEVENT
END:VCALENDAR