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X-WR-CALNAME:Hope for HIE - Hypoxic Ischemic Encephalopathy
X-ORIGINAL-URL:https://hopeforhie.org
X-WR-CALDESC:Events for Hope for HIE - Hypoxic Ischemic Encephalopathy
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TZID:America/Detroit
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250710T200000
DTEND;TZID=America/Detroit:20250710T210000
DTSTAMP:20250623T124601Z
CREATED:20250623T124601Z
LAST-MODIFIED:20250623T124601Z
UID:19479-1752177600-1752181200@hopeforhie.org
SUMMARY:Loss Family Support
DESCRIPTION:Join Hope for HIE on Thursday\, July 10\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting led by our certified social worker\, Jen\, and facilitated by one of Hope’s Peer Support Mentors\, Jill\, families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n🔗 Register: Tinyurl.com/HIELossSupport
URL:https://hopeforhie.org/event/loss-family-support-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250703T200000
DTEND;TZID=America/Detroit:20250703T210000
DTSTAMP:20250623T132944Z
CREATED:20250623T124459Z
LAST-MODIFIED:20250623T132944Z
UID:19476-1751572800-1751576400@hopeforhie.org
SUMMARY:Newly Diagnosed Families
DESCRIPTION:Join Hope for HIE on Thursday\, July 3\, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis).\n\n➡️ In this closed Zoom meeting experience led by Allison Moise\, BSW\, and facilitated by one of our Peer Support Mentors\, Stephanie\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n🔗Register: Tinyurl.com/NewtoHIE
URL:https://hopeforhie.org/event/newly-diagnosed-families/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250701T100000
DTEND;TZID=America/Detroit:20250701T110000
DTSTAMP:20250623T124330Z
CREATED:20250623T124330Z
LAST-MODIFIED:20250623T124330Z
UID:19473-1751364000-1751367600@hopeforhie.org
SUMMARY:Extended Family Support
DESCRIPTION:Join Hope for HIE on Tuesday\, July 1\, at 10:00 AM ET for our video support group designated for extended family members of children impacted by HIE.\n\n➡️ This closed Zoom meeting\, led by our certified social worker\, Jen\, and facilitated by Peer Support Mentor\, Carol\, provides a supportive space for grandparents\, aunts\, uncles\, and other family members to connect\, learn\, and discuss ways to best support their loved ones on the HIE journey.\n\n🔗 Register at: Tinyurl.com/HIEExtendedFamilyJuly25
URL:https://hopeforhie.org/event/extended-family-support-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250624T120000
DTEND;TZID=America/Detroit:20250624T130000
DTSTAMP:20250610T174722Z
CREATED:20250610T174722Z
LAST-MODIFIED:20250610T174722Z
UID:19310-1750766400-1750770000@hopeforhie.org
SUMMARY:Traveling with Children with HIE: Support Group
DESCRIPTION:Join Hope for HIE on Thursday\, June 24\, at 12:00 PM ET for a support group session for parents and legal guardians navigating travel with children who have HIE/complex medical needs.\n\n➡️ This closed Zoom session will be led by our certified social worker\, Jen\, and facilitated by two of Hope’s Peer Support Mentors\, Allison and Megan\, along with community member Shawn. Together\, they’ll help create a supportive space for families to share and connect around:\n\n🎯 Practical tips for planning safe and comfortable travel with children who have medical and mobility challenges\n 🎯 How to pack and prepare essential medical supplies\, equipment\, and documentation for your trip\n 🎯 Strategies to manage sensory sensitivities\, feeding needs\, and medication schedules while away from home\n\n🔗 Register at: Tinyurl.com/HIENavigatingTravel
URL:https://hopeforhie.org/event/traveling-with-children-with-hie-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250624T100000
DTEND;TZID=America/Detroit:20250624T110000
DTSTAMP:20250617T153052Z
CREATED:20250617T153052Z
LAST-MODIFIED:20250617T153052Z
UID:19437-1750759200-1750762800@hopeforhie.org
SUMMARY:Maggie Jalowsky Q&A -- Hope for HIE Welcomes Clinical Research Program Manager
DESCRIPTION:Join us on Tuesday\, June 24\, at 10:00 AM ET for an introduction to Maggie Jalowsky\, who has joined the Hope for HIE team as our Clinical Research Program Manager.\n\nIn this session\, Maggie will share:\n📌 How her work at Hope focuses on bringing meaningful support to our community.\n📌 Updates on academic and industry partnerships advancing HIE research and care.\n📌 The importance of family perspectives and input in studies like COOL PRIME\, STAR\, and other upcoming trials.\n📌 Insights on the new registry work designed to improve outcomes and understanding of HIE.\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n🔗 Facebook.com/HopeforHIE\n🔗 Instagram.com/HopeforHIE\n🔗 YouTube.com/HopeforHIE
URL:https://hopeforhie.org/event/maggie-jalowsky-qa-hope-for-hie-welcomes-clinical-research-program-manager/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250619T200000
DTEND;TZID=America/Detroit:20250619T210000
DTSTAMP:20250521T154850Z
CREATED:20250521T154850Z
LAST-MODIFIED:20250521T154850Z
UID:19268-1750363200-1750366800@hopeforhie.org
SUMMARY:Pregnancy After HIE: Non-Birthing Partners Support
DESCRIPTION:Join Hope for HIE on Thursday\, June 19\, at 8:00 PM ET for our Pregnancy after HIE support group designated for non-birthing partners. \n\n➡️ This closed Zoom meeting\, facilitated by our certified social worker\, Jen\, and one of our Peer Support Mentors\, Romm\,  provides a safe space to discuss:\n\n? The emotional journey of witnessing a medical emergency\n? Balancing support for your partner and child\n? Finding community and navigating the role of a non-birthing partner\n\n? Register at: Tinyurl.com/HIENonBirthingPOVJune25
URL:https://hopeforhie.org/event/pregnancy-after-hie-non-birthing-partners-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250618T120000
DTEND;TZID=America/Detroit:20250618T130000
DTSTAMP:20250529T151109Z
CREATED:20250529T151109Z
LAST-MODIFIED:20250529T151109Z
UID:19279-1750248000-1750251600@hopeforhie.org
SUMMARY:Child Life Q&A: Explaining HIE to Your Child
DESCRIPTION:Join Hope for HIE on Tuesday\, June 18\, at 12:00 PM ET for a LIVE Child Life Q&A with Annie Gunning\, CCLS\, as we explore how to talk with your child about their HIE diagnosis in an age-appropriate way: \n\nIn this session\, Annie will:\n? Help parents feel more confident about having honest\, empowering conversations about HIE\n? Offer simple\, age-appropriate language and tools for explaining HIE\n? Address common questions kids ask and positive ways to respond\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n ? Facebook.com/HopeforHIE\n ? Instagram.com/HopeforHIE\n ? YouTube.com/HopeforHIE
URL:https://hopeforhie.org/event/child-life-qa-explaining-hie-to-your-child/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250617T120000
DTEND;TZID=America/Detroit:20250617T130000
DTSTAMP:20250609T175138Z
CREATED:20250609T175138Z
LAST-MODIFIED:20250609T175138Z
UID:19304-1750161600-1750165200@hopeforhie.org
SUMMARY:Navigating Vacation & Travel: HIE Peer Perspective Series
DESCRIPTION:Join Hope for HIE on Tuesday\, June 17th at 12:00 PM ET for our Peer Perspectives Panel\, where Peer Support Mentors Allison M. and Stephanie L. will share personal insights and practical tips on traveling and vacationing with a medically complex child.\n\nIn this session\, they will:\n 📌 Share how they choose destinations and plan ahead for accessibility\, transportation\, and medical needs\n 📌 Offer practical packing tips\, travel hacks\, and ways to manage the unexpected while on the go\n 📌 Reflect on how their mindset has shifted over time - focusing on creating joyful\, meaningful family experiences\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n🔗 Facebook.com/HopeforHIE\n🔗 Instagram.com/HopeforHIE\n🔗 Youtube.com/HopeforHIE  \n\nPlease note: This panel will not follow the typical support group structure. However\, if enough interest is expressed\, we will consider dedicating a future support group topic to it at a later date.
URL:https://hopeforhie.org/event/navigating-vacation-travel-hie-peer-perspective-series/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250612T200000
DTEND;TZID=America/Detroit:20250612T210000
DTSTAMP:20250521T154705Z
CREATED:20250521T154705Z
LAST-MODIFIED:20250521T154705Z
UID:19266-1749758400-1749762000@hopeforhie.org
SUMMARY:Loss Families Support
DESCRIPTION:Join Hope for HIE on Thursday\, June 12\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting led by our certified social worker\, Jen\, and facilitated by one of Hope’s Peer Support Mentors\, Jill\, families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n? Register: Tinyurl.com/HIELossSupport
URL:https://hopeforhie.org/event/loss-families-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250609T120000
DTEND;TZID=America/Detroit:20250609T130000
DTSTAMP:20250521T154320Z
CREATED:20250521T154320Z
LAST-MODIFIED:20250521T154320Z
UID:19264-1749470400-1749474000@hopeforhie.org
SUMMARY:Navigating a Severe Diagnosis Support
DESCRIPTION:Join Hope for HIE on Monday\, June 9\, at 12:00 PM ET for our video support group designated for parents and legal guardians navigating the complexities of a severe HIE diagnosis.\n\n➡️ This closed Zoom support session is led by Hope for HIE’s certified social worker\, Jen\, and is facilitated by one of our Peer Support Mentors\, Allison\, who will provide a safe space to explore:\n\n?The emotional journey of a severe HIE diagnosis\n?Firsthand experiences navigating medical complexities beyond the initial years\n?Supportive strategies for families facing the challenges of prolonged “wait and see” periods\n\n?Register using this link: Tinyurl.com/NavigatingSevereHIEJune25 
URL:https://hopeforhie.org/event/navigating-a-severe-diagnosis-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250605T200000
DTEND;TZID=America/Detroit:20250605T210000
DTSTAMP:20250521T153551Z
CREATED:20250521T153551Z
LAST-MODIFIED:20250521T153551Z
UID:19262-1749153600-1749157200@hopeforhie.org
SUMMARY:Newly Diagnosed Families Support
DESCRIPTION:Join Hope for HIE on Thursday\, June 5\, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis). \n\n➡️ In this closed Zoom meeting experience\, led by our certified social worker\, Jen\, and facilitated by one of our Peer Support Mentors\, Crystal\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n? Register: Tinyurl.com/NewtoHIE
URL:https://hopeforhie.org/event/newly-diagnosed-families-support-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250602T120000
DTEND;TZID=America/Detroit:20250602T130000
DTSTAMP:20250521T153116Z
CREATED:20250521T153116Z
LAST-MODIFIED:20250521T153116Z
UID:19260-1748865600-1748869200@hopeforhie.org
SUMMARY:Pregnancy after HIE Support
DESCRIPTION:Join Hope for HIE on Monday\, June 2\, at 12:00 PM ET for our video support session designated for HIE moms navigating another pregnancy after HIE. \n\n➡️ Led by our certified social worker\, Jen\, and facilitated by one of our Peer Support Mentors\, Ashley\, this group will engage families in a safe space to discuss: \n\n? Managing the trauma of a previous HIE pregnancy\n? The stress around deciding to become pregnant again\n? Navigating the complex emotions that come with another pregnancy after an HIE diagnosis \n\n? Register: Tinyurl.com/PregnancyAfterHIEJune25  
URL:https://hopeforhie.org/event/pregnancy-after-hie-support-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250516
DTEND;VALUE=DATE:20250517
DTSTAMP:20250403T143938Z
CREATED:20250403T143911Z
LAST-MODIFIED:20250403T143938Z
UID:19072-1747353600-1747439999@hopeforhie.org
SUMMARY:Drexel University's "Funding for Impact" Class On-Site
DESCRIPTION:Hope for HIE and Dr. Danielle Barber\, HFH board member\, HIE parent\, researcher and pediatric neurologist\, will be hosting Drexel University's "Funding for Impact" class on the Children's Colorado campus\, and in Dr. Barber's HIE lab.
URL:https://hopeforhie.org/event/drexel-universitys-funding-for-impact-class-on-site/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250515T200000
DTEND;TZID=America/Detroit:20250515T210000
DTSTAMP:20250424T134307Z
CREATED:20250424T134307Z
LAST-MODIFIED:20250424T134307Z
UID:19163-1747339200-1747342800@hopeforhie.org
SUMMARY:BIPOC Family Support Group
DESCRIPTION:Join Hope for HIE on Thursday\, May 15\, at 8:00 PM ET for our video support group designated for our parents and legal guardians within the BIPOC community. \n\n➡️In this closed Zoom meeting led by one of our peer support mentors – Megan – families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n? Register: Tinyurl.com/HIEBIPOCMay25
URL:https://hopeforhie.org/event/bipoc-family-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250514T200000
DTEND;TZID=America/Detroit:20250514T210000
DTSTAMP:20250424T134423Z
CREATED:20250424T134423Z
LAST-MODIFIED:20250424T134423Z
UID:19165-1747252800-1747256400@hopeforhie.org
SUMMARY:Navigating Grief & Trauma Support Group
DESCRIPTION:Join Hope for HIE on Wednesday\, May 14\, at 8:00 PM ET for our video support group session where we'll be discussing helpful ways to navigate grief and trauma.\n\n➡️ In this closed Zoom meeting\, which is led by our certified social worker\, Jen\, and facilitated by two of Hope’s Peer Support Mentors –Allison and Jill – families will be engaged in a space of healing and hope to share\, listen\, and connect with others on similar journeys.\n\n? Register: Tinyurl.com/GriefTraumaMay25
URL:https://hopeforhie.org/event/navigating-grief-trauma-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250514T120000
DTEND;TZID=America/Detroit:20250514T130000
DTSTAMP:20250424T134547Z
CREATED:20250424T134547Z
LAST-MODIFIED:20250424T134547Z
UID:19167-1747224000-1747227600@hopeforhie.org
SUMMARY:Peer Support Mentor Office Hours
DESCRIPTION:Join Hope for HIE on Wednesday\, May 14\, at 12:00 PM ET for our Peer Mentor Office Hours\, where you can connect 1:1 with our Peer Support Mentors - Lynn and Amanda - for immediate support in a safe and supportive setting. This is a great opportunity to receive real-time guidance\, ask questions\, build connections\, and see if a formal connection with a mentor is a good fit for you.  \n\nImportant Details:\n\n? Log on anytime during the session\, but please join at least 10 minutes before the end time at 1:00 PM ET.\n?You’ll be placed in a breakout room with a mentor based on your specific needs or HIE impact/outcome.\n?This session is for parents and legal guardians of children with HIE.\n\n?Register: Tinyurl.com/HIEOfficeHoursMay25 
URL:https://hopeforhie.org/event/peer-support-mentor-office-hours-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250513T200000
DTEND;TZID=America/Detroit:20250513T210000
DTSTAMP:20250424T134153Z
CREATED:20250424T134153Z
LAST-MODIFIED:20250424T134153Z
UID:19161-1747166400-1747170000@hopeforhie.org
SUMMARY:HIE Acquired in Childhood Support Group
DESCRIPTION:Join Hope for HIE on Tuesday\, May 13\, at 8:00 PM ET for our video support session designed for parents and legal guardians navigating an HIE diagnosis acquired in childhood.\n\n➡️ Led by our certified social worker\, Jen\, and facilitated by one of Hope’s Peer Support Mentors\, Brandon\, this group offers a supportive space to explore:\n\n? Navigating a new diagnosis and what it means for your child and family\n? Processing grief over changes in life expectations\n\nRegister: Tinyurl.com/HIEChildhoodMay25
URL:https://hopeforhie.org/event/hie-acquired-in-childhood-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250510T103000
DTEND;TZID=America/Detroit:20250510T140000
DTSTAMP:20250213T151039Z
CREATED:20250129T230020Z
LAST-MODIFIED:20250213T151039Z
UID:18754-1746873000-1746885600@hopeforhie.org
SUMMARY:Hustle for Hope 5: Fort Saskatchewan\, Alberta\, Canada
DESCRIPTION:Come Hustle for Hope in Fort Saskatchewan\, Alberta\, Canada\, and 5K Your Way!\n\nWhether you're a family in our community\, a friend\, an advocate\, a NICU or PICU team member\, or a partner in hope\, this is your chance to come together\, show your support\, raise awareness\, and advocate for children and families impacted by HIE!\n\n? Host: Chancey Oullet\n? Location: Fort Saskatchewan Boat Launch at West Rivers Edge\n? Address: West Rivers Edge\, River Valley Dr\, Fort Saskatchewan\, Alberta\, T8L 0B1\n? Time: 10:30 AM - 2:00 PM MDT\n\n? Note from the Hustle Host: "Come rain or shine! Join us for a special family meet and greet from 10:30 to 11:00 AM! This is a great opportunity to connect with and meet other families before the race begins at 11:00 AM. We look forward to seeing you there! Visit this event page to stay in the loop for updates and details!"\n\n? Register here. \n\nRegistration Details:\n➡️ Opens 2/15. Closes 5/3.\n➡️ Early Bird Rate: $25 (2/15-3/15)\n➡️ Standard Rate: $30 (begins 3/16)\n\n‼️ Important Note: Race packet fulfillment typically takes 10–14 days. If you register within two weeks of the in-person event\, we will do our best to get your materials to you as quickly as possible. However\, we cannot guarantee they will arrive before the event.
URL:https://hopeforhie.org/event/hustle-for-hope-5-alberta-canada/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250508T200000
DTEND;TZID=America/Detroit:20250508T210000
DTSTAMP:20250424T134041Z
CREATED:20250424T134041Z
LAST-MODIFIED:20250424T134041Z
UID:19159-1746734400-1746738000@hopeforhie.org
SUMMARY:Loss Family Support Group
DESCRIPTION:Join Hope for HIE on Thursday\, May 8\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting led by our certified social worker\, Jen\, and facilitated by one of Hope’s Peer Support Mentors\, Kimberly\, families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n? Register: Tinyurl.com/HIELossSupport
URL:https://hopeforhie.org/event/loss-family-support-group-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250507
DTEND;VALUE=DATE:20250510
DTSTAMP:20250403T143711Z
CREATED:20250403T143711Z
LAST-MODIFIED:20250403T143711Z
UID:19070-1746576000-1746835199@hopeforhie.org
SUMMARY:Cerebral Palsy Research Network Investigators Meeting
DESCRIPTION:Hope for HIE will be attending the 2025 CPRN Investigators Meeting\, co-hosting a preconference meeting about the HIE registry and early detection in cerebral palsy\, in conjunction with CPRN and the Newborn Brain Society.
URL:https://hopeforhie.org/event/cerebral-palsy-research-network-investigators-meeting/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250504T130000
DTEND;TZID=America/Detroit:20250504T150000
DTSTAMP:20250312T131145Z
CREATED:20250312T131145Z
LAST-MODIFIED:20250312T131145Z
UID:18930-1746363600-1746370800@hopeforhie.org
SUMMARY:Hustle for Hope 5K: Detroit\, MI
DESCRIPTION:Come Hustle for Hope near Detroit\, MI\, and 5K Your Way!\nWhether you're a family in our community\, a friend\, an advocate\, a NICU or PICU team member\, or a partner in hope\, this is your chance to come together\, show your support\, raise awareness\, and advocate for children and families impacted by HIE!\n\n? Hosts: Betsy Pilon & Alex Farha\n\n? Location: Tattan Park - Pavilion 1\n\n? Address: 1901 N Carlson St\, Westland MI 48185\n\n? Time: 1:00-3:00 PM EDT\n\n? Note from the Hustle Hosts: "Come rain or shine! Visit this event page to stay in the loop for updates and details!"\n\n? Register here!\n\nRegistration Details:\n➡️ Opens 2/15. Closes 4/27.\n➡️ Early Bird Rate: $25 (2/15-3/15)\n➡️ Standard Rate: $30 (begins 3/16)\n\n‼️ Important Note: Race packet fulfillment typically takes 10–14 days. If you register within two weeks of the in-person event\, we will do our best to get your materials to you as quickly as possible. However\, we cannot guarantee they will arrive before the event.
URL:https://hopeforhie.org/event/hustle-for-hope-5k-detroit-mi/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250501T200000
DTEND;TZID=America/Detroit:20250501T210000
DTSTAMP:20250424T133920Z
CREATED:20250424T133920Z
LAST-MODIFIED:20250424T133920Z
UID:19157-1746129600-1746133200@hopeforhie.org
SUMMARY:Newly Diagnosed Family Support Group
DESCRIPTION:Join Hope for HIE on Thursday\, May 1\, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis). \n\n➡️ In this closed Zoom meeting experience\, led by our certified social worker\, Jen\, and facilitated by two of Hope’s Peer Support Mentors\, Ashley and Romm\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n? Register: Tinyurl.com/NewtoHIE
URL:https://hopeforhie.org/event/newly-diagnosed-family-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250430T120000
DTEND;TZID=America/Detroit:20250430T130000
DTSTAMP:20250403T174605Z
CREATED:20250403T174408Z
LAST-MODIFIED:20250403T174605Z
UID:19083-1746014400-1746018000@hopeforhie.org
SUMMARY:Child Life Q&A: SOAR and Super Sibs Virtual Tour
DESCRIPTION:Join Hope for HIE on Wednesday\, April 30th\, at 2:00 PM ET for a LIVE Child Life Q&A with Annie Gunning\, CCLS\, as she provides a virtual tour of our SOAR and SuperSibs support programming on our new online platform!\n\nIn this session\, Annie will:\n ? Guide you through our SOAR and SuperSibs programs\, designed to support children with HIE and their siblings\, respectively? Highlight our SuperSibs loss program\, created to support siblings who've lost a brother or sister to HIE\, and showcase the curated resources available to them\n? Showcase how our new online platform makes accessing support easier and more consistent for families\n ? Highlight how these programs can provide valuable resources for the whole family as they navigate HIE\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n ? Facebook.com/HopeforHIE\n ? Instagram.com/HopeforHIE\n ? Youtube.com/HopeforHIE
URL:https://hopeforhie.org/event/child-life-qa-soar-and-super-sibs-virtual-tour/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250429T140000
DTEND;TZID=America/Detroit:20250429T150000
DTSTAMP:20250409T153451Z
CREATED:20250409T153451Z
LAST-MODIFIED:20250409T153451Z
UID:19099-1745935200-1745938800@hopeforhie.org
SUMMARY:Navigating Therapeutic Trends: HIE Peer Perspective Series
DESCRIPTION:Join Hope for HIE on Tuesday\, April 29th at 2:00 PM ET for a LIVE HIE Peer Perspectives Panel where Betsy Pilon\, Executive Director of Hope for HIE\, Nicole Carrillo\, Peer Support Mentor\, and Sara Berg\, HIE Parent\, will explore how therapeutic approaches for HIE have evolved over the years and what that means for families today.\n\nIn this session\, they will:\n\n? Discuss past and present trends in therapy and rehabilitation for children with HIE\n? Share insights from their own journeys navigating therapies\, interventions\, and support services\n? Offer guidance on balancing therapy needs with family life and advocating for the right resources\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n\n ? Facebook.com/HopeforHIE\n ? Instagram.com/HopeforHIE\n ? Youtube.com/HopeforHIE \n\nPlease note: This panel will not follow the typical support group structure. However\, if enough interest is expressed\, we will consider dedicating a future support group topic to it at a later date.
URL:https://hopeforhie.org/event/navigating-therapeutic-trends-hie-peer-perspective-series/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250429T000000
DTEND;TZID=America/Detroit:20250429T130000
DTSTAMP:20250320T155758Z
CREATED:20250320T155758Z
LAST-MODIFIED:20250320T155758Z
UID:18987-1745884800-1745931600@hopeforhie.org
SUMMARY:Navigating Additional Diagnoses after HIE - Support
DESCRIPTION:Join Hope for HIE on Tuesday\, April 29\, at 12:00 PM ET for our video support group session for parents and legal guardians of children with HIE to discuss helpful ways to navigate and cope with additional diagnoses that arise after an HIE diagnosis. \n\n➡️ This closed Zoom meeting\, led by Hope for HIE's certified social worker\, Jen\, and peer support mentor\, Megan\, will provide a safe\, supportive space for discussions\, healing\, and hope\n\n?Register: Tinyurl.com/HIEDiagnosesApr25
URL:https://hopeforhie.org/event/navigating-additional-diagnoses-after-hie-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250428T120000
DTEND;TZID=America/Detroit:20250428T130000
DTSTAMP:20250409T181144Z
CREATED:20250409T181144Z
LAST-MODIFIED:20250409T181144Z
UID:19101-1745841600-1745845200@hopeforhie.org
SUMMARY:Virtual A2: Boosting School Readiness for Infants with HIE - Q&A w/ Dr. Melisa Carrasco McCaul
DESCRIPTION:Join Hope for HIE on Monday\, April 28th at 12:00 PM ET for a LIVE Q&A with Dr. Melisa Carrasco McCaul from the Wisconsin TREES Lab to learn about Virtual A2 — a fun\, play-based learning booster designed to support babies (6-12 months) born with HIE who may need extra developmental help to ensure school readiness. \n\nIn this session\, she will:\n ? Introduce Virtual A2 and how your family may be able to participate\n ? Share additional updates on her research into long-term cognitive outcomes for children affected by perinatal brain injury\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n ? Facebook.com/HopeforHIE\n ? Instagram.com/HopeforHIE\n ? Youtube.com/HopeforHIE
URL:https://hopeforhie.org/event/virtual-a2-boosting-school-readiness-for-infants-with-hie-qa-w-dr-melisa-carrasco-mccaul/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250427T100000
DTEND;TZID=America/Detroit:20250427T123000
DTSTAMP:20250210T190759Z
CREATED:20250210T190759Z
LAST-MODIFIED:20250210T190759Z
UID:18799-1745748000-1745757000@hopeforhie.org
SUMMARY:Hustle for Hope 5K: Bristol\, RI
DESCRIPTION:Come Hustle for Hope in Bristol\, RI\, and 5K Your Way!\n\nWhether you're a family in our community\, a friend\, an advocate\, a NICU or PICU team member\, or a partner in hope\, this is your chance to come together\, show your support\, raise awareness\, and advocate for children and families impacted by HIE!\n\n? Hosts: Nicole Allen & Michelle MacIntosh\n\n? Location: Colt State Park\n\n? Address: Route 114\, Bristol\, Rhode Island\, 02809\n\n? Time: 10:00 AM-12:30 PM EDT\n\n? Note from the Hustle Hosts: "Come rain or shine! We will be meeting up at 9:30 am at Shelter 1 on Colt Drive in Colt State Park. Visit this event page to stay in the loop for updates and details!"\n\n? Register here. \n\nRegistration Details:\n➡️ Opens 2/15. Closes 4/20.\n➡️ Early Bird Rate: $25 (2/15-3/15)\n➡️ Standard Rate: $30 (begins 3/16)\n\n‼️ Important Note: Race packet fulfillment typically takes 10–14 days. If you register within two weeks of the in-person event\, we will do our best to get your materials to you as quickly as possible. However\, we cannot guarantee they will arrive before the event.
URL:https://hopeforhie.org/event/hustle-for-hope-5k-bristol-ri/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250427T083000
DTEND;TZID=America/Detroit:20250427T123000
DTSTAMP:20250204T172059Z
CREATED:20250129T225705Z
LAST-MODIFIED:20250204T172059Z
UID:18753-1745742600-1745757000@hopeforhie.org
SUMMARY:Hustle for Hope 5K: Sparks\, NV
DESCRIPTION:Come Hustle for Hope in Sparks\, NV\, and 5K Your Way!\n\nWhether you're a family in our community\, a friend\, an advocate\, a NICU or PICU team member\, or a partner in hope\, this is your chance to come together\, show your support\, raise awareness\, and advocate for children and families impacted by HIE!\n\n? Host: Jasmin Taylor\n? Location: Sparks Marina Park\n? Address: 300 Howard Dr\, Sparks\, NV 89434\n? Time: 8:30 AM – 12:30 PM PDT\n\n? Note from the Hustle Host: "Rain or shine! Visit this event page to stay in the loop for updates and details!"\n\n? Register here. \n\nRegistration Details:\n➡️ Opens 2/15. Closes 4/20.\n➡️ Early Bird Rate: $25 (2/15-3/15)\n➡️ Standard Rate: $30 (begins 3/16)\n\n‼️ Important Note: Race packet fulfillment typically takes 10–14 days. If you register within two weeks of the in-person event\, we will do our best to get your materials to you as quickly as possible. However\, we cannot guarantee they will arrive before the event.
URL:https://hopeforhie.org/event/hustle-for-hope-5k-sparks-nv/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250426T123000
DTEND;TZID=America/Detroit:20250426T153000
DTSTAMP:20250204T172133Z
CREATED:20250128T142117Z
LAST-MODIFIED:20250204T172133Z
UID:18747-1745670600-1745681400@hopeforhie.org
SUMMARY:Hustle for Hope 5K: Seattle\, WA
DESCRIPTION:Come Hustle for Hope near Seattle\, WA\, and 5K Your Way!\n\nWhether you're a family in our community\, a friend\, an advocate\, a NICU or PICU team member\, or a partner in hope\, this is your chance to come together\, show your support\, raise awareness\, and advocate for children and families impacted by HIE!\n\n? Host: Tina Santos\n? Location: Held at the GMVCC\n? Address: Maple Valley Community Center\, 22010 SE 248th ST\, Maple Valley\, WA\, 98038\n? Time: 12:30 PM-3:30 PM PDT\n\n? Note from the Hustle Host: "Come rain or shine! Enjoy catering by Casa Luz Catering\, face painting\, snacks\, water\, games\, and prize drawings! Visit this event page to stay in the loop for updates and details!"\n\n? Register here. \n\nRegistration Details:\n➡️ Opens 2/15. Closes 4/19.\n➡️ Early Bird Rate: $25 (2/15-3/15)\n➡️ Standard Rate: $30 (begins 3/16)\n\n‼️ Important Note: Race packet fulfillment typically takes 10–14 days. If you register within two weeks of the in-person event\, we will do our best to get your materials to you as quickly as possible. However\, we cannot guarantee they will arrive before the event.
URL:https://hopeforhie.org/event/hustle-for-hope-5k-seattle-wa/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250426T100000
DTEND;TZID=America/Detroit:20250426T120000
DTSTAMP:20250225T164815Z
CREATED:20250225T164758Z
LAST-MODIFIED:20250225T164815Z
UID:18871-1745661600-1745668800@hopeforhie.org
SUMMARY:Hustle for Hope 5K: Aurora\, CO
DESCRIPTION:ome Hustle for Hope in Aurora\, CO\, and 5K Your Way!\n\nWhether you're a family in our community\, a friend\, an advocate\, a NICU or PICU team member\, or a partner in hope\, this is your chance to come together\, show your support\, raise awareness\, and advocate for children and families impacted by HIE!\n\n? Hosts: Susanne Atwell-Keister\, Jasmin Villalvazo\, Vicky Opipari\n? Location: Red Tailed Hawk Park\n? Address: 23701 E Hinsdale Way\, Aurora\, CO 80016\n? Time: 10:00 AM - 12:00 PM MDT\n\n? Note from Hustle Host: "Event rain\, snow\, or shine! Visit Hope for HIE's Facebook event page for more details and to stay in the loop."\n\n? Register here!\n\n‼️ Important Note: Race packet fulfillment typically takes 10-14 days. If you register within 2 weeks of the in-person event\, we will do our best to get your materials to you as quickly as possible. However\, we cannot guarantee they will arrive before the event's start date.
URL:https://hopeforhie.org/event/hustle-for-hope-5k-aurora-co/
END:VEVENT
END:VCALENDAR