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X-WR-CALNAME:Hope for HIE - Hypoxic Ischemic Encephalopathy
X-ORIGINAL-URL:https://hopeforhie.org
X-WR-CALDESC:Events for Hope for HIE - Hypoxic Ischemic Encephalopathy
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260411T090000
DTEND;TZID=America/Detroit:20260411T113000
DTSTAMP:20260220T021158Z
CREATED:20260216T021335Z
LAST-MODIFIED:20260220T021158Z
UID:21013-1775898000-1775907000@hopeforhie.org
SUMMARY:2026 Hustle for Hope 5K  |  Baltimore\, MD
DESCRIPTION:Come Hustle for Hope in Baltimore\, MD!Whether you're a family in our community\, a friend\, an advocate\, a NICU or PICU team member\, or a partner in hope\, this is your chance to come together\, show your support\, raise awareness\, and advocate for children and families impacted by HIE!\n\n\n 	Host: Veronica Choice\n 	Location: Patterson Park (Pavilion #2)\n 	Address: 2601 E. Baltimore Street\, Baltimore\, MD 21224\n 	Time: 9:00AM - 11:30AM ET\n\n\nNote from the Hustle Hosts: "This event is rain or shine! Visit this event page to stay in the loop for updates and details!"\n\nRegister here: Tinyurl.com/HustleforHope\n\nRegistration Details:\n\n 	Opens 2/15\n 	Early Bird Rate: $30 (2/15-3/15)\n 	Standard Rate: $35 (begins 3/16)\n\n\nEvent packets will be mailed out in two separate timeframes. The earlier you register\, the sooner you will receive your race packet:\n\n 	Register by March 15th\, and your race packet will be mailed by April 1st. Races the first week of April will be mailed ASAP.\n 	Register between March 16th and April 15th\, and your race packet will be mailed as quickly as we can get it out!\n\nNOTE: If you register within two weeks of the in-person event\, we cannot guarantee they will arrive before the event.
URL:https://hopeforhie.org/event/2026-hustle-for-hope-5k-baltimore-md/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260411T083000
DTEND;TZID=America/Detroit:20260411T113000
DTSTAMP:20260216T015314Z
CREATED:20260215T180451Z
LAST-MODIFIED:20260216T015314Z
UID:21002-1775896200-1775907000@hopeforhie.org
SUMMARY:2026 Hustle for Hope 5K  |  Oakdale\, PA
DESCRIPTION:Come Hustle for Hope in Oakdale\, PA!Whether you're a family in our community\, a friend\, an advocate\, a NICU or PICU team member\, or a partner in hope\, this is your chance to come together\, show your support\, raise awareness\, and advocate for children and families impacted by HIE!\n\n\n 	Host: Amanda Pegher\n 	Location: Donaldson Park\n 	Address: 590 Donaldson Road\, Oakdale\, PA 15071\n 	Time: 8:30AM - 11:30AM ET\n\n\nNote from the Hustle Hosts: "Join us for a family friendly 5k! Vendors\, basket raffles\, and more! Visit this event page to stay in the loop for updates and details!"\n\nRegister here: Tinyurl.com/HustleforHope\n\nRegistration Details:\n\n 	Opens 2/15\n 	Early Bird Rate: $30 (2/15-3/15)\n 	Standard Rate: $35 (begins 3/16)\n\n\n\n\nEvent packets will be mailed out in two separate timeframes. The earlier you register\, the sooner you will receive your race packet:\n\n 	Register by March 15th\, and your race packet will be mailed by April 1st. Races the first week of April will be mailed ASAP.\n 	Register between March 16th and April 15th\, and your race packet will be mailed as quickly as we can get it out!\n\nNOTE: If you register within two weeks of the in-person event\, we cannot guarantee they will arrive before the event.\n\n\n 
URL:https://hopeforhie.org/event/2026-hustle-for-hope-5k-oakdale-pa/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260409T200000
DTEND;TZID=America/Detroit:20260409T210000
DTSTAMP:20260402T233137Z
CREATED:20260402T233137Z
LAST-MODIFIED:20260402T233137Z
UID:21424-1775764800-1775768400@hopeforhie.org
SUMMARY:HIE Registry Update with CPRN  |  Interactive Webinar
DESCRIPTION:Join Dr. Danielle Guez-Barber\, principal investigator for the HIE registry\, Betsy Pilon\, Executive Director for Hope for HIE\, and Dr. Joyce Trost\, Vice President of the CP Research Network\, on Thursday\, April 9 at 8 pm ET to hear what we've built\, what we've learned\, and what we're hoping to do next — and to hear what matters most to you.\n\nThis interactive webinar isn't just a presentation — it's about hearing from you. Your questions\, your experiences\, and your priorities shape where this work goes next.\n\nRegister here: Tinyurl.com/HIERegistryUpdate2026
URL:https://hopeforhie.org/event/hie-registry-update-with-cprn-interactive-webinar/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260409T200000
DTEND;TZID=America/Detroit:20260409T210000
DTSTAMP:20260323T180428Z
CREATED:20260323T180428Z
LAST-MODIFIED:20260323T180428Z
UID:21322-1775764800-1775768400@hopeforhie.org
SUMMARY:Loss Family Support
DESCRIPTION:Join Hope for HIE on Thursday\, April 9\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n \n\n➡️ In this closed Zoom meeting led by our certified social worker\, Jen\, and facilitated by one of our Peer Support Mentor\, Kate\, families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n \n\n🔗 Register: Tinyurl.com/HIELossSupport2026
URL:https://hopeforhie.org/event/loss-family-support-9/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260404T150000
DTEND;TZID=America/Detroit:20260404T170000
DTSTAMP:20260220T015124Z
CREATED:20260215T180058Z
LAST-MODIFIED:20260220T015124Z
UID:20998-1775314800-1775322000@hopeforhie.org
SUMMARY:2026 Hustle for Hope 5K  |  Jesup\, IA
DESCRIPTION:Come Hustle for Hope in Jesup\, IA!Whether you're a family in our community\, a friend\, an advocate\, a NICU or PICU team member\, or a partner in hope\, this is your chance to come together\, show your support\, raise awareness\, and advocate for children and families impacted by HIE!\n\n\n 	Host: Kaylee Weber\n 	Location: Land of Corn Park Pavilion\n 	Address: Corner of Young Street and Main Street\, Jesup\, IA 50648\n 	Time: 2:00PM CT\n\n\nNote from the Hustle Hosts: "We are hosting this 5K in honor of Junie and Camie. Visit this event page to stay in the loop for updates and details!"\n\nRegister here: Tinyurl.com/HustleforHope\n\nRegistration Details:\n\n 	Opens 2/15\n 	Early Bird Rate: $30 (2/15-3/15)\n 	Standard Rate: $35 (begins 3/16)\n\n\nEvent packets will be mailed out in two separate timeframes. The earlier you register\, the sooner you will receive your race packet:\n\n 	Register by March 15th\, and your race packet will be mailed by April 1st. Races the first week of April will be mailed ASAP.\n 	Register between March 16th and April 15th\, and your race packet will be mailed as quickly as we can get it out!\n\nNOTE: If you register within two weeks of the in-person event\, we cannot guarantee they will arrive before the event.\n\n 
URL:https://hopeforhie.org/event/after-the-first-year-managing-hie-through-age-9-support-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260402T200000
DTEND;TZID=America/Detroit:20260402T210000
DTSTAMP:20260323T180518Z
CREATED:20260323T180156Z
LAST-MODIFIED:20260323T180518Z
UID:21318-1775160000-1775163600@hopeforhie.org
SUMMARY:Newly Diagnosed Family Support
DESCRIPTION:Join Hope for HIE on Thursday\, April 2 at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis). \n\n \n\n➡️ In this closed Zoom meeting experience\, led by our certified social worker\, Jen\, and facilitated by HIE Peer Support Mentors\, Stephanie L. and Allison M.\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n \n\n🔗 Register: Tinyurl.com/NewtoHIE2026
URL:https://hopeforhie.org/event/newly-diagnosed-family-support-6/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260330T200000
DTEND;TZID=America/Detroit:20260330T210000
DTSTAMP:20260222T155414Z
CREATED:20260222T134336Z
LAST-MODIFIED:20260222T155414Z
UID:21078-1774900800-1774904400@hopeforhie.org
SUMMARY:Parent-to-Parent Pop-In
DESCRIPTION:Join Hope for HIE on Monday\, March 30\, at 8:00 PM ET for our Parent to Parent Pop-In hour\, where you can connect 1:1 with our Peer Support Mentors - Lynn and Amanda - for immediate support in a safe and supportive setting. This is a great opportunity to receive real-time guidance\, ask questions\, build connections\, and see if a formal connection with a mentor is a good fit for you.  \n\nImportant Details:\n\n📌 Log on anytime during the session\, but please join at least 10 minutes before the end time at 9:00 PM ET.\n📌 You’ll be placed in a breakout room with a mentor based on your specific needs or HIE impact/ outcome.\n📌 This session is for parents and legal guardians of children with HIE.\n\n🔗 Register: Tinyurl.com/ParentToParentPopInMar26
URL:https://hopeforhie.org/event/parent-to-parent-pop-in-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260330T120000
DTEND;TZID=America/Detroit:20260330T130000
DTSTAMP:20260320T144217Z
CREATED:20260320T143540Z
LAST-MODIFIED:20260320T144217Z
UID:21310-1774872000-1774875600@hopeforhie.org
SUMMARY:Child Life Q&A: Support at Hope for HIE & in the Hospital
DESCRIPTION:Join Hope for HIE on 𝗠𝗼𝗻𝗱𝗮𝘆\, 𝗠𝗮𝗿𝗰𝗵 𝟯𝟬\, 𝗮𝘁 𝟭𝟮:𝟬𝟬 𝗣𝗠 𝗘𝗧 for a Live Child Life Q&A with Annie Gunning\, CCLS\, exploring how Child Life support helps children and families navigate the emotional realities of complex medical journeys—from the NICU to life at home.\n\nShe’ll discuss how specialists use play\, preparation\, and compassionate guidance to help children cope with procedures\, support siblings\, and walk alongside families through uncertainty\, grief\, and healing.\n\nWhether you’re currently in the hospital or adjusting after discharge\, this session will highlight the ongoing\, personalized support available through Hope for HIE and why Child Life care remains a vital part of every child’s journey.\n\nTune in LIVE on our Facebook or YouTube channels:Facebook.com/HopeforHIE\nYouTube.com/HopeforHIE
URL:https://hopeforhie.org/event/child-life-qa-support-at-hope-for-hie-in-the-hospital/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260323T120000
DTEND;TZID=America/Detroit:20260323T130000
DTSTAMP:20260222T134638Z
CREATED:20260222T133106Z
LAST-MODIFIED:20260222T134638Z
UID:21075-1774267200-1774270800@hopeforhie.org
SUMMARY:Navigating HIE with Children 18+ Support
DESCRIPTION:Join Hope for HIE on Monday\, March 23\, at 12:00 PM ET for a virtual support group focused on Navigating HIE with Children 18+ — open to parents seeking additional support and guidance.\n\n➡️ This closed Zoom session will be led by our licensed social worker\, Jen. Together\, they’ll create a supportive space to share\, connect\, and explore:\n\n 	Transitioning to adult healthcare\, guardianship\, benefits\, and long-term planning\n 	Shifting roles and expectations as your child grows\n\n 	Caregiver sustainability\, aging\, and future planning\n\n 	Honest conversation with parents who truly understand this lifelong journey\n\n\n🔗 Register: Tinyurl.com/Children18AndUpMar26
URL:https://hopeforhie.org/event/navigating-hie-with-children-18-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260318T190000
DTEND;TZID=America/Detroit:20260318T200000
DTSTAMP:20260304T184935Z
CREATED:20260303T211650Z
LAST-MODIFIED:20260304T184935Z
UID:21218-1773860400-1773864000@hopeforhie.org
SUMMARY:Bonding with Your Baby through Infant Massage
DESCRIPTION:Join Hope for HIE on Wednesdays\, March 4 & March 18\, at 7:00 PM ET for a virtual support group and educational session. These sessions are designed to provide a calm space for families to learn simple massage techniques that may help with comfort\, regulation\, and parent–infant attachment.\nRegister: Tinyurl.com/InfantMassageMar26\n\nRead the infant massage informational Q&A key takeaways or watch the full session here:Tinyurl.com/InfantMassageInfoSession
URL:https://hopeforhie.org/event/bonding-with-your-baby-through-infant-massage-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260316T200000
DTEND;TZID=America/Detroit:20260316T210000
DTSTAMP:20260222T140250Z
CREATED:20260222T132753Z
LAST-MODIFIED:20260222T140250Z
UID:21071-1773691200-1773694800@hopeforhie.org
SUMMARY:Couples Coping with HIE Together Support
DESCRIPTION:Join Hope for HIE on Monday\, March 16th\, at 8:00 PM ET for a virtual support group focused on couples navigating HIE together while often balancing trauma\, long-term caregiving\, and relationship strain .\n\n➡️ This closed Zoom session will be led by our licensed social worker\, Jen\, and facilitated by Peer Support Mentor\, Megan C. In this session\, couples will explore:\n\n 	Different Coping Styles – When “different” doesn’t mean “wrong.”\n\n 	Communication Under Stress – Navigating decisions and daily demands.\n\n 	Staying a Team – Strengthening partnership through uncertainty.\n 	Protecting the Relationship – Caring for your connection while caring for your child.\n\n➡️ Register using this link: Tinyurl.com/CouplesNavigatingHIEMar26
URL:https://hopeforhie.org/event/couples-coping-with-hie-together-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260312T200000
DTEND;TZID=America/Detroit:20260312T210000
DTSTAMP:20260222T132008Z
CREATED:20260222T132008Z
LAST-MODIFIED:20260222T132008Z
UID:21065-1773345600-1773349200@hopeforhie.org
SUMMARY:Loss Family Support
DESCRIPTION:Join Hope for HIE on Thursday\, March 12\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting led by our certified social worker\, Jen\, and facilitated by one of our Peer Support Mentor\, Jill\, families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n🔗 Register: Tinyurl.com/HIELossSupport2026
URL:https://hopeforhie.org/event/loss-family-support-8/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260305T200000
DTEND;TZID=America/Detroit:20260305T210000
DTSTAMP:20260222T132214Z
CREATED:20260222T132214Z
LAST-MODIFIED:20260222T132214Z
UID:21068-1772740800-1772744400@hopeforhie.org
SUMMARY:Newly Diagnosed Family Support
DESCRIPTION:Join Hope for HIE on Thursday\, March 5\, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis). \n\n➡️ In this closed Zoom meeting experience\, led by our certified social worker\, Jen\, and facilitated by HIE Peer Support Mentor\, Megan C\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n🔗 Register: Tinyurl.com/NewtoHIE2026
URL:https://hopeforhie.org/event/newly-diagnosed-family-support-5/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260304T190000
DTEND;TZID=America/Detroit:20260304T200000
DTSTAMP:20260304T184900Z
CREATED:20260303T211554Z
LAST-MODIFIED:20260304T184900Z
UID:21215-1772650800-1772654400@hopeforhie.org
SUMMARY:Bonding with Your Baby through Infant Massage
DESCRIPTION:Join Hope for HIE on Wednesdays\, March 4 & March 18\, at 7:00 PM ET for a virtual support group and educational session. These sessions are designed to provide a calm space for families to learn simple massage techniques that may help with comfort\, regulation\, and parent–infant attachment.\nRegister: Tinyurl.com/InfantMassageMar26\n\nRead the infant massage informational Q&A key takeaways or watch the full session here:Tinyurl.com/InfantMassageInfoSession
URL:https://hopeforhie.org/event/bonding-with-your-baby-through-infant-massage/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260226T200000
DTEND;TZID=America/Detroit:20260226T210000
DTSTAMP:20260127T191956Z
CREATED:20260126T013224Z
LAST-MODIFIED:20260127T191956Z
UID:20862-1772136000-1772139600@hopeforhie.org
SUMMARY:BIPOC Family Support
DESCRIPTION:Join Hope for HIE on Thursday\, February 26\, at 8:00 PM ET for our video support group designated for our parents and legal guardians within the BIPOC community. \n\n➡️ In this closed Zoom meeting led by one of our peer support mentors – Megan – families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n🔗 Register: TinyURL.com/BIPOCFamiliesFeb26\n\n \n\n 
URL:https://hopeforhie.org/event/bipoc-family-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260226T120000
DTEND;TZID=America/Detroit:20260226T130000
DTSTAMP:20260224T154503Z
CREATED:20260222T135103Z
LAST-MODIFIED:20260224T154503Z
UID:21085-1772107200-1772110800@hopeforhie.org
SUMMARY:Child Life Q&A: Bonding With Your Baby Through Infant Massage
DESCRIPTION:Join Hope for HIE on Thursday\, February 26\, at 12:00 PM ET for a Live Child Life Q&A with Annie Gunning\, CCLS\, introducing a new support and educational session offered by Hope for HIE within the month of March: Bonding With Your Baby Through Infant Massage.\n\nInfant massage is a gentle\, nurturing practice that supports connection through loving touch. It’s a way for parents and caregivers to bond with their baby\, learn their baby’s cues\, and create calm moments together. Infant massage can be especially meaningful because many parents have experienced medical trauma\, NICU stays\, and disrupted early bonding.\n\nIn this session\, Annie Gunning\, CCLS\, will:\n\n 	Discuss the benefits of infant massage and how it promotes bonding between infant and parents\n 	Address considerations for complex medical needs\n 	Share information on the upcoming teaching sessions offered during the month of March for HIE families\n\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels: Facebook.com/HopeforHIE Instagram.com/HopeforHIE YouTube.com/HopeforHIE
URL:https://hopeforhie.org/event/child-life-qa-bonding-with-your-baby-through-infant-massage/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260219T120000
DTEND;TZID=America/Detroit:20260219T130000
DTSTAMP:20260127T191924Z
CREATED:20260127T191924Z
LAST-MODIFIED:20260127T191924Z
UID:20875-1771502400-1771506000@hopeforhie.org
SUMMARY:After the First Year: Managing HIE Through Age 9 Support
DESCRIPTION:Join Hope for HIE on 02/19/2026 12:00 PM ET for a virtual support group focused on After the First Year— open to parents and guardians seeking additional support and guidance.\n\n➡️ This closed Zoom session will be led by our certified social worker\, Jen\, and facilitated by Peer Support Mentor\, Kara. Together\, they’ll create a supportive space to share\, connect\, and explore:\n\n 	Parenting After HIE\n 	Ongoing uncertainty and milestone anxiety\n 	Grief\, comparison\, and identity over time\n 	Caregiver burnout and sustainability\n\n🔗 Register: TinyURL.com/AfterFirstYearFeb26\n\n 
URL:https://hopeforhie.org/event/after-the-first-year-managing-hie-through-age-9-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260216T120000
DTEND;TZID=America/Detroit:20260216T130000
DTSTAMP:20260127T192021Z
CREATED:20260126T013052Z
LAST-MODIFIED:20260127T192021Z
UID:20859-1771243200-1771246800@hopeforhie.org
SUMMARY:Mild Outcomes Support
DESCRIPTION:Join Hope for HIE on Monday\, February 16\, at 12:00 PM ET for a virtual support group focused on Mild Outcomes — open to parents and guardians seeking additional support and guidance.\n\n➡️ This closed Zoom session will be led by our certified social worker\, Jen\, and facilitated by Hospital Ambassador\, Sarah. Together\, they’ll create a supportive space to share\, connect\, and explore:\n\n 	Survivor’s guilt & comparison\n 	Trauma despite a mild outcome\n 	Living with uncertainty\n 	Ambiguous grief\n 	Permission to struggle and take up space\n\n🔗 Register: TinyURL.com/MildOutcomesFeb26\n\n \n\n \n\n 
URL:https://hopeforhie.org/event/mild-outcomes-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260212T200000
DTEND;TZID=America/Detroit:20260212T210000
DTSTAMP:20260126T012909Z
CREATED:20260126T012909Z
LAST-MODIFIED:20260126T012909Z
UID:20856-1770926400-1770930000@hopeforhie.org
SUMMARY:Loss Family Support
DESCRIPTION:Join Hope for HIE on Thursday\, February 12\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting led by our certified social worker\, Jen\, and facilitated by one of our Peer Support Mentor\, Jill\, families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n🔗 Register: Tinyurl.com/HIELossSupport2026
URL:https://hopeforhie.org/event/loss-family-support-7/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260205T200000
DTEND;TZID=America/Detroit:20260205T210000
DTSTAMP:20260127T192113Z
CREATED:20260126T012743Z
LAST-MODIFIED:20260127T192113Z
UID:20852-1770321600-1770325200@hopeforhie.org
SUMMARY:Newly Diagnosed Family Support
DESCRIPTION:Join Hope for HIE on Thursday\, February 5\, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis). \n\n➡️ In this closed Zoom meeting experience\, led by our certified social worker\, Jen\, and facilitated by HIE Peer Support Mentor\, Kara\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n🔗 Register: Tinyurl.com/NewtoHIE2026\n\n \n\n \n\n 
URL:https://hopeforhie.org/event/newly-diagnosed-families-support-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260128T140000
DTEND;TZID=America/Detroit:20260128T150000
DTSTAMP:20260116T172919Z
CREATED:20260116T172809Z
LAST-MODIFIED:20260116T172919Z
UID:20819-1769608800-1769612400@hopeforhie.org
SUMMARY:School-Age Outcomes that Matter for Mild HIE - An Interactive Session with Dr. Lina Chalak
DESCRIPTION:School-Age Outcomes that Matter for Mild HIEAn Interactive Session with Dr. Lina Chalak\n\nHope for HIE invites families impacted by Mild HIE to join an interactive session on Wednesday\, January 28th\, at 2:00 PM ET. This discussion is especially intended for families whose children have reached school age and are beginning to experience unexpected impacts—often without having been previously informed that such outcomes were a potential risk.\n\nWe’ll be joined by Dr. Lina Chalak\, Principal Investigator of the COOL PRIME Mild HIE Cooling Study\, who will engage with families to better understand real-world school-age outcomes. Insights shared during this session will help inform ongoing and future research efforts aimed at improving long-term outcomes and guidance for children with Mild HIE.\n\nFamilies are encouraged to participate\, share experiences\, and contribute to this important dialogue bridging early diagnosis and school-age realities.\n\nRegister to reserve your spot:TinyURL.com/MildHIEFamilyInputMeeting\n 
URL:https://hopeforhie.org/event/parent-to-parent-pop-in-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260126T120000
DTEND;TZID=America/Detroit:20260126T130000
DTSTAMP:20251222T194800Z
CREATED:20251222T194800Z
LAST-MODIFIED:20251222T194800Z
UID:20754-1769428800-1769432400@hopeforhie.org
SUMMARY:Parent-to-Parent Pop-In
DESCRIPTION:Join Hope for HIE on Monday\, January 26\, at 12:00 PM ET for our Parent-to-Parent Pop-In hour\, where you can connect 1:1 with our Peer Support Mentors - Nicole and Amanda - for immediate support in a safe and supportive setting. This is a great opportunity to receive real-time guidance\, ask questions\, build connections\, and see if a formal connection with a mentor is a good fit for you.  \n\nImportant Details:\n\n📌 Log on anytime during the session\, but please join at least 10 minutes before the end time at 1:00 PM ET.\n📌 You’ll be placed in a breakout room with a mentor based on your specific needs or HIE impact/outcome.\n📌 This session is for parents and legal guardians of children with HIE.\n\n🔗 Register: Tinyurl.com/ParentToParentPopInJan26
URL:https://hopeforhie.org/event/parent-to-parent-pop-in/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260120T120000
DTEND;TZID=America/Detroit:20260120T130000
DTSTAMP:20251222T194210Z
CREATED:20251222T194210Z
LAST-MODIFIED:20251222T194210Z
UID:20748-1768910400-1768914000@hopeforhie.org
SUMMARY:Pregnancy After HIE Loss
DESCRIPTION:Join Hope for HIE on Tuesday\, January 20\, at 12:00 PM ET for a virtual support group focused on Pregnancy After HIE Loss — open to birthing parents seeking additional support and guidance.\n\n➡️ This closed Zoom session will be led by our licensed social worker\, Jen\, and facilitated by Peer Support Mentor\, Kate. Together\, they’ll create a supportive space to share\, connect\, and explore:\n\n🎯 Navigating joy\, grief\, and pregnancy-specific stressors\n🎯 Caring for yourself while managing family dynamics & relationships\n🎯 Building hope and preparing for what’s ahead\n\n🔗 Register: Tinyurl.com/PregnancyAfterHIELossJan26\n\n \n\n 
URL:https://hopeforhie.org/event/pregnancy-after-hie-loss-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260115T200000
DTEND;TZID=America/Detroit:20260115T210000
DTSTAMP:20251222T194927Z
CREATED:20251222T193812Z
LAST-MODIFIED:20251222T194927Z
UID:20745-1768507200-1768510800@hopeforhie.org
SUMMARY:Newly Diagnosed Family Support
DESCRIPTION:Join Hope for HIE on Thursday\, January 15\, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis). \n\n➡️ In this closed Zoom meeting experience\, led by our certified social worker\, Jen\, and facilitated by HIE Peer Support Mentors\, Stephanie and Meagan\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n🔗 Register: Tinyurl.com/NewtoHIE2026
URL:https://hopeforhie.org/event/newly-diagnosed-family-support-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260112T200000
DTEND;TZID=America/Detroit:20260112T210000
DTSTAMP:20251222T200249Z
CREATED:20251222T194408Z
LAST-MODIFIED:20251222T200249Z
UID:20751-1768248000-1768251600@hopeforhie.org
SUMMARY:Work Life Balance with HIE
DESCRIPTION:Join Hope for HIE on Monday\, January 12th\, at 8:00 PM ET for a virtual support group focused on parents navigating a career while balancing the responsibilities that come with caring for a child with HIE and their unique medical needs.\n\n➡️ This closed Zoom session will be led by our licensed social worker\, Jen\, and facilitated by Peer Support Mentor\, Megan.\n\n➡️ Register using this link: Tinyurl.com/WorkLifeBalanceJan26
URL:https://hopeforhie.org/event/work-life-balance-with-hie/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260108T200000
DTEND;TZID=America/Detroit:20260108T210000
DTSTAMP:20251222T193359Z
CREATED:20251222T193359Z
LAST-MODIFIED:20251222T193359Z
UID:20742-1767902400-1767906000@hopeforhie.org
SUMMARY:Loss Family Support
DESCRIPTION:Join Hope for HIE on Thursday\, January 8\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting led by our certified social worker\, Jen\, and facilitated by one of our Peer Support Mentor\, Kate\, families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n🔗 Register: Tinyurl.com/HIELossSupport2026\n\n 
URL:https://hopeforhie.org/event/loss-family-support-6/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20251229T093000
DTEND;TZID=America/Detroit:20251229T113000
DTSTAMP:20251223T172921Z
CREATED:20251223T172921Z
LAST-MODIFIED:20251223T172921Z
UID:20764-1767000600-1767007800@hopeforhie.org
SUMMARY:Indoor Inclusive Playground: Cincinnati Area Community Event
DESCRIPTION:Cincinnati-area families — meet up for a fun morning at an inclusive indoor playground!\n\n\n\nJennifer Hartzel\, HIE mom and Hospital Ambassador at Cincinnati Children's\, is hosting a meet-up for local HIE families.\n\n\n\nDate: Monday\, December 29\nTime: 9:30AM ET\nLocation: We Rock the Spectrum\, 331 Kenton Lands Road Unit 400\, Erlanger\, KY\, 41018\n\n\n\n\nCost: $16 per child for 2 hours of play.\n\n\n\nRegister: TinyURL.com/CincinnatiMeetUpDec25
URL:https://hopeforhie.org/event/indoor-inclusive-playground-cincinnati-area-community-event/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20251215T200000
DTEND;TZID=America/Detroit:20251215T210000
DTSTAMP:20251118T163212Z
CREATED:20251118T002817Z
LAST-MODIFIED:20251118T163212Z
UID:20506-1765828800-1765832400@hopeforhie.org
SUMMARY:Holidays & All the Feelings
DESCRIPTION:Join Hope for HIE on Monday\, December 15\, @ 8PM ET for our video support group designated for legal parents and guardians looking to discuss all the feelings that arise surrounding holidays.\n\n➡️ This closed Zoom meeting - led by certified social worker\, Jen\, and facilitated by HIE Peer Support Mentor\, Allison- provides a safe space to discuss all the competing feelings one might have around the holidays.\n\n🔗 Register: TINYURL.COM/HolidayFeelingsDec25\n\n 
URL:https://hopeforhie.org/event/holidays-all-the-feelings-december-2025/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20251211T200000
DTEND;TZID=America/Detroit:20251211T210000
DTSTAMP:20251118T002932Z
CREATED:20251118T001855Z
LAST-MODIFIED:20251118T002932Z
UID:20499-1765483200-1765486800@hopeforhie.org
SUMMARY:Loss Family Support
DESCRIPTION:Join Hope for HIE on Thursday\, December 11\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting led by Allison Moise\, BSW\,  families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n🔗 Register: Tinyurl.com/HIELossSupport
URL:https://hopeforhie.org/event/loss-family-support-december-2025/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20251208T200000
DTEND;TZID=America/Detroit:20251208T210000
DTSTAMP:20251118T002946Z
CREATED:20251118T002336Z
LAST-MODIFIED:20251118T002946Z
UID:20502-1765224000-1765227600@hopeforhie.org
SUMMARY:Parenting 10+
DESCRIPTION:Join Hope for HIE on Monday\, December 8 @ 8PM ET for our video support group designated for Parents of children diagnosed with HIE who are 10 years of age or older.\n\n➡️ This closed Zoom meeting\, led by our certified social worker\, Jen\, and facilitated by Peer Support Mentor\, Lynn\, provides a supportive space for parents of older children to connect\, learn\, and discuss ways to continue to navigate the HIE journey and all the feelings it includes. \n\n🔗 Register: TINYURL.COM/Parenting10andUpDec25\n\n 
URL:https://hopeforhie.org/event/parenting-10-support-december-2025/
END:VEVENT
END:VCALENDAR