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PRODID:-//Hope for HIE - Hypoxic Ischemic Encephalopathy - ECPv6.18.2//NONSGML v1.0//EN
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X-ORIGINAL-URL:https://hopeforhie.org
X-WR-CALDESC:Events for Hope for HIE - Hypoxic Ischemic Encephalopathy
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BEGIN:VTIMEZONE
TZID:America/Detroit
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250501T200000
DTEND;TZID=America/Detroit:20250501T210000
DTSTAMP:20250424T133920Z
CREATED:20250424T133920Z
LAST-MODIFIED:20250424T133920Z
UID:19157-1746129600-1746133200@hopeforhie.org
SUMMARY:Newly Diagnosed Family Support Group
DESCRIPTION:Join Hope for HIE on Thursday\, May 1\, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis). \n\n➡️ In this closed Zoom meeting experience\, led by our certified social worker\, Jen\, and facilitated by two of Hope’s Peer Support Mentors\, Ashley and Romm\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n? Register: Tinyurl.com/NewtoHIE
URL:https://hopeforhie.org/event/newly-diagnosed-family-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250504T130000
DTEND;TZID=America/Detroit:20250504T150000
DTSTAMP:20250312T131145Z
CREATED:20250312T131145Z
LAST-MODIFIED:20250312T131145Z
UID:18930-1746363600-1746370800@hopeforhie.org
SUMMARY:Hustle for Hope 5K: Detroit\, MI
DESCRIPTION:Come Hustle for Hope near Detroit\, MI\, and 5K Your Way!\nWhether you're a family in our community\, a friend\, an advocate\, a NICU or PICU team member\, or a partner in hope\, this is your chance to come together\, show your support\, raise awareness\, and advocate for children and families impacted by HIE!\n\n? Hosts: Betsy Pilon & Alex Farha\n\n? Location: Tattan Park - Pavilion 1\n\n? Address: 1901 N Carlson St\, Westland MI 48185\n\n? Time: 1:00-3:00 PM EDT\n\n? Note from the Hustle Hosts: "Come rain or shine! Visit this event page to stay in the loop for updates and details!"\n\n? Register here!\n\nRegistration Details:\n➡️ Opens 2/15. Closes 4/27.\n➡️ Early Bird Rate: $25 (2/15-3/15)\n➡️ Standard Rate: $30 (begins 3/16)\n\n‼️ Important Note: Race packet fulfillment typically takes 10–14 days. If you register within two weeks of the in-person event\, we will do our best to get your materials to you as quickly as possible. However\, we cannot guarantee they will arrive before the event.
URL:https://hopeforhie.org/event/hustle-for-hope-5k-detroit-mi/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250507
DTEND;VALUE=DATE:20250510
DTSTAMP:20250403T143711Z
CREATED:20250403T143711Z
LAST-MODIFIED:20250403T143711Z
UID:19070-1746576000-1746835199@hopeforhie.org
SUMMARY:Cerebral Palsy Research Network Investigators Meeting
DESCRIPTION:Hope for HIE will be attending the 2025 CPRN Investigators Meeting\, co-hosting a preconference meeting about the HIE registry and early detection in cerebral palsy\, in conjunction with CPRN and the Newborn Brain Society.
URL:https://hopeforhie.org/event/cerebral-palsy-research-network-investigators-meeting/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250508T200000
DTEND;TZID=America/Detroit:20250508T210000
DTSTAMP:20250424T134041Z
CREATED:20250424T134041Z
LAST-MODIFIED:20250424T134041Z
UID:19159-1746734400-1746738000@hopeforhie.org
SUMMARY:Loss Family Support Group
DESCRIPTION:Join Hope for HIE on Thursday\, May 8\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting led by our certified social worker\, Jen\, and facilitated by one of Hope’s Peer Support Mentors\, Kimberly\, families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n? Register: Tinyurl.com/HIELossSupport
URL:https://hopeforhie.org/event/loss-family-support-group-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250510T103000
DTEND;TZID=America/Detroit:20250510T140000
DTSTAMP:20250213T151039Z
CREATED:20250129T230020Z
LAST-MODIFIED:20250213T151039Z
UID:18754-1746873000-1746885600@hopeforhie.org
SUMMARY:Hustle for Hope 5: Fort Saskatchewan\, Alberta\, Canada
DESCRIPTION:Come Hustle for Hope in Fort Saskatchewan\, Alberta\, Canada\, and 5K Your Way!\n\nWhether you're a family in our community\, a friend\, an advocate\, a NICU or PICU team member\, or a partner in hope\, this is your chance to come together\, show your support\, raise awareness\, and advocate for children and families impacted by HIE!\n\n? Host: Chancey Oullet\n? Location: Fort Saskatchewan Boat Launch at West Rivers Edge\n? Address: West Rivers Edge\, River Valley Dr\, Fort Saskatchewan\, Alberta\, T8L 0B1\n? Time: 10:30 AM - 2:00 PM MDT\n\n? Note from the Hustle Host: "Come rain or shine! Join us for a special family meet and greet from 10:30 to 11:00 AM! This is a great opportunity to connect with and meet other families before the race begins at 11:00 AM. We look forward to seeing you there! Visit this event page to stay in the loop for updates and details!"\n\n? Register here. \n\nRegistration Details:\n➡️ Opens 2/15. Closes 5/3.\n➡️ Early Bird Rate: $25 (2/15-3/15)\n➡️ Standard Rate: $30 (begins 3/16)\n\n‼️ Important Note: Race packet fulfillment typically takes 10–14 days. If you register within two weeks of the in-person event\, we will do our best to get your materials to you as quickly as possible. However\, we cannot guarantee they will arrive before the event.
URL:https://hopeforhie.org/event/hustle-for-hope-5-alberta-canada/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250513T200000
DTEND;TZID=America/Detroit:20250513T210000
DTSTAMP:20250424T134153Z
CREATED:20250424T134153Z
LAST-MODIFIED:20250424T134153Z
UID:19161-1747166400-1747170000@hopeforhie.org
SUMMARY:HIE Acquired in Childhood Support Group
DESCRIPTION:Join Hope for HIE on Tuesday\, May 13\, at 8:00 PM ET for our video support session designed for parents and legal guardians navigating an HIE diagnosis acquired in childhood.\n\n➡️ Led by our certified social worker\, Jen\, and facilitated by one of Hope’s Peer Support Mentors\, Brandon\, this group offers a supportive space to explore:\n\n? Navigating a new diagnosis and what it means for your child and family\n? Processing grief over changes in life expectations\n\nRegister: Tinyurl.com/HIEChildhoodMay25
URL:https://hopeforhie.org/event/hie-acquired-in-childhood-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250514T120000
DTEND;TZID=America/Detroit:20250514T130000
DTSTAMP:20250424T134547Z
CREATED:20250424T134547Z
LAST-MODIFIED:20250424T134547Z
UID:19167-1747224000-1747227600@hopeforhie.org
SUMMARY:Peer Support Mentor Office Hours
DESCRIPTION:Join Hope for HIE on Wednesday\, May 14\, at 12:00 PM ET for our Peer Mentor Office Hours\, where you can connect 1:1 with our Peer Support Mentors - Lynn and Amanda - for immediate support in a safe and supportive setting. This is a great opportunity to receive real-time guidance\, ask questions\, build connections\, and see if a formal connection with a mentor is a good fit for you.  \n\nImportant Details:\n\n? Log on anytime during the session\, but please join at least 10 minutes before the end time at 1:00 PM ET.\n?You’ll be placed in a breakout room with a mentor based on your specific needs or HIE impact/outcome.\n?This session is for parents and legal guardians of children with HIE.\n\n?Register: Tinyurl.com/HIEOfficeHoursMay25 
URL:https://hopeforhie.org/event/peer-support-mentor-office-hours-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250514T200000
DTEND;TZID=America/Detroit:20250514T210000
DTSTAMP:20250424T134423Z
CREATED:20250424T134423Z
LAST-MODIFIED:20250424T134423Z
UID:19165-1747252800-1747256400@hopeforhie.org
SUMMARY:Navigating Grief & Trauma Support Group
DESCRIPTION:Join Hope for HIE on Wednesday\, May 14\, at 8:00 PM ET for our video support group session where we'll be discussing helpful ways to navigate grief and trauma.\n\n➡️ In this closed Zoom meeting\, which is led by our certified social worker\, Jen\, and facilitated by two of Hope’s Peer Support Mentors –Allison and Jill – families will be engaged in a space of healing and hope to share\, listen\, and connect with others on similar journeys.\n\n? Register: Tinyurl.com/GriefTraumaMay25
URL:https://hopeforhie.org/event/navigating-grief-trauma-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250515T200000
DTEND;TZID=America/Detroit:20250515T210000
DTSTAMP:20250424T134307Z
CREATED:20250424T134307Z
LAST-MODIFIED:20250424T134307Z
UID:19163-1747339200-1747342800@hopeforhie.org
SUMMARY:BIPOC Family Support Group
DESCRIPTION:Join Hope for HIE on Thursday\, May 15\, at 8:00 PM ET for our video support group designated for our parents and legal guardians within the BIPOC community. \n\n➡️In this closed Zoom meeting led by one of our peer support mentors – Megan – families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n? Register: Tinyurl.com/HIEBIPOCMay25
URL:https://hopeforhie.org/event/bipoc-family-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250516
DTEND;VALUE=DATE:20250517
DTSTAMP:20250403T143938Z
CREATED:20250403T143911Z
LAST-MODIFIED:20250403T143938Z
UID:19072-1747353600-1747439999@hopeforhie.org
SUMMARY:Drexel University's "Funding for Impact" Class On-Site
DESCRIPTION:Hope for HIE and Dr. Danielle Barber\, HFH board member\, HIE parent\, researcher and pediatric neurologist\, will be hosting Drexel University's "Funding for Impact" class on the Children's Colorado campus\, and in Dr. Barber's HIE lab.
URL:https://hopeforhie.org/event/drexel-universitys-funding-for-impact-class-on-site/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250602T120000
DTEND;TZID=America/Detroit:20250602T130000
DTSTAMP:20250521T153116Z
CREATED:20250521T153116Z
LAST-MODIFIED:20250521T153116Z
UID:19260-1748865600-1748869200@hopeforhie.org
SUMMARY:Pregnancy after HIE Support
DESCRIPTION:Join Hope for HIE on Monday\, June 2\, at 12:00 PM ET for our video support session designated for HIE moms navigating another pregnancy after HIE. \n\n➡️ Led by our certified social worker\, Jen\, and facilitated by one of our Peer Support Mentors\, Ashley\, this group will engage families in a safe space to discuss: \n\n? Managing the trauma of a previous HIE pregnancy\n? The stress around deciding to become pregnant again\n? Navigating the complex emotions that come with another pregnancy after an HIE diagnosis \n\n? Register: Tinyurl.com/PregnancyAfterHIEJune25  
URL:https://hopeforhie.org/event/pregnancy-after-hie-support-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250605T200000
DTEND;TZID=America/Detroit:20250605T210000
DTSTAMP:20250521T153551Z
CREATED:20250521T153551Z
LAST-MODIFIED:20250521T153551Z
UID:19262-1749153600-1749157200@hopeforhie.org
SUMMARY:Newly Diagnosed Families Support
DESCRIPTION:Join Hope for HIE on Thursday\, June 5\, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis). \n\n➡️ In this closed Zoom meeting experience\, led by our certified social worker\, Jen\, and facilitated by one of our Peer Support Mentors\, Crystal\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n? Register: Tinyurl.com/NewtoHIE
URL:https://hopeforhie.org/event/newly-diagnosed-families-support-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250609T120000
DTEND;TZID=America/Detroit:20250609T130000
DTSTAMP:20250521T154320Z
CREATED:20250521T154320Z
LAST-MODIFIED:20250521T154320Z
UID:19264-1749470400-1749474000@hopeforhie.org
SUMMARY:Navigating a Severe Diagnosis Support
DESCRIPTION:Join Hope for HIE on Monday\, June 9\, at 12:00 PM ET for our video support group designated for parents and legal guardians navigating the complexities of a severe HIE diagnosis.\n\n➡️ This closed Zoom support session is led by Hope for HIE’s certified social worker\, Jen\, and is facilitated by one of our Peer Support Mentors\, Allison\, who will provide a safe space to explore:\n\n?The emotional journey of a severe HIE diagnosis\n?Firsthand experiences navigating medical complexities beyond the initial years\n?Supportive strategies for families facing the challenges of prolonged “wait and see” periods\n\n?Register using this link: Tinyurl.com/NavigatingSevereHIEJune25 
URL:https://hopeforhie.org/event/navigating-a-severe-diagnosis-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250612T200000
DTEND;TZID=America/Detroit:20250612T210000
DTSTAMP:20250521T154705Z
CREATED:20250521T154705Z
LAST-MODIFIED:20250521T154705Z
UID:19266-1749758400-1749762000@hopeforhie.org
SUMMARY:Loss Families Support
DESCRIPTION:Join Hope for HIE on Thursday\, June 12\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting led by our certified social worker\, Jen\, and facilitated by one of Hope’s Peer Support Mentors\, Jill\, families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n? Register: Tinyurl.com/HIELossSupport
URL:https://hopeforhie.org/event/loss-families-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250617T120000
DTEND;TZID=America/Detroit:20250617T130000
DTSTAMP:20250609T175138Z
CREATED:20250609T175138Z
LAST-MODIFIED:20250609T175138Z
UID:19304-1750161600-1750165200@hopeforhie.org
SUMMARY:Navigating Vacation & Travel: HIE Peer Perspective Series
DESCRIPTION:Join Hope for HIE on Tuesday\, June 17th at 12:00 PM ET for our Peer Perspectives Panel\, where Peer Support Mentors Allison M. and Stephanie L. will share personal insights and practical tips on traveling and vacationing with a medically complex child.\n\nIn this session\, they will:\n 📌 Share how they choose destinations and plan ahead for accessibility\, transportation\, and medical needs\n 📌 Offer practical packing tips\, travel hacks\, and ways to manage the unexpected while on the go\n 📌 Reflect on how their mindset has shifted over time - focusing on creating joyful\, meaningful family experiences\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n🔗 Facebook.com/HopeforHIE\n🔗 Instagram.com/HopeforHIE\n🔗 Youtube.com/HopeforHIE  \n\nPlease note: This panel will not follow the typical support group structure. However\, if enough interest is expressed\, we will consider dedicating a future support group topic to it at a later date.
URL:https://hopeforhie.org/event/navigating-vacation-travel-hie-peer-perspective-series/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250618T120000
DTEND;TZID=America/Detroit:20250618T130000
DTSTAMP:20250529T151109Z
CREATED:20250529T151109Z
LAST-MODIFIED:20250529T151109Z
UID:19279-1750248000-1750251600@hopeforhie.org
SUMMARY:Child Life Q&A: Explaining HIE to Your Child
DESCRIPTION:Join Hope for HIE on Tuesday\, June 18\, at 12:00 PM ET for a LIVE Child Life Q&A with Annie Gunning\, CCLS\, as we explore how to talk with your child about their HIE diagnosis in an age-appropriate way: \n\nIn this session\, Annie will:\n? Help parents feel more confident about having honest\, empowering conversations about HIE\n? Offer simple\, age-appropriate language and tools for explaining HIE\n? Address common questions kids ask and positive ways to respond\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n ? Facebook.com/HopeforHIE\n ? Instagram.com/HopeforHIE\n ? YouTube.com/HopeforHIE
URL:https://hopeforhie.org/event/child-life-qa-explaining-hie-to-your-child/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250619T200000
DTEND;TZID=America/Detroit:20250619T210000
DTSTAMP:20250521T154850Z
CREATED:20250521T154850Z
LAST-MODIFIED:20250521T154850Z
UID:19268-1750363200-1750366800@hopeforhie.org
SUMMARY:Pregnancy After HIE: Non-Birthing Partners Support
DESCRIPTION:Join Hope for HIE on Thursday\, June 19\, at 8:00 PM ET for our Pregnancy after HIE support group designated for non-birthing partners. \n\n➡️ This closed Zoom meeting\, facilitated by our certified social worker\, Jen\, and one of our Peer Support Mentors\, Romm\,  provides a safe space to discuss:\n\n? The emotional journey of witnessing a medical emergency\n? Balancing support for your partner and child\n? Finding community and navigating the role of a non-birthing partner\n\n? Register at: Tinyurl.com/HIENonBirthingPOVJune25
URL:https://hopeforhie.org/event/pregnancy-after-hie-non-birthing-partners-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250624T100000
DTEND;TZID=America/Detroit:20250624T110000
DTSTAMP:20250617T153052Z
CREATED:20250617T153052Z
LAST-MODIFIED:20250617T153052Z
UID:19437-1750759200-1750762800@hopeforhie.org
SUMMARY:Maggie Jalowsky Q&A -- Hope for HIE Welcomes Clinical Research Program Manager
DESCRIPTION:Join us on Tuesday\, June 24\, at 10:00 AM ET for an introduction to Maggie Jalowsky\, who has joined the Hope for HIE team as our Clinical Research Program Manager.\n\nIn this session\, Maggie will share:\n📌 How her work at Hope focuses on bringing meaningful support to our community.\n📌 Updates on academic and industry partnerships advancing HIE research and care.\n📌 The importance of family perspectives and input in studies like COOL PRIME\, STAR\, and other upcoming trials.\n📌 Insights on the new registry work designed to improve outcomes and understanding of HIE.\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n🔗 Facebook.com/HopeforHIE\n🔗 Instagram.com/HopeforHIE\n🔗 YouTube.com/HopeforHIE
URL:https://hopeforhie.org/event/maggie-jalowsky-qa-hope-for-hie-welcomes-clinical-research-program-manager/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250624T120000
DTEND;TZID=America/Detroit:20250624T130000
DTSTAMP:20250610T174722Z
CREATED:20250610T174722Z
LAST-MODIFIED:20250610T174722Z
UID:19310-1750766400-1750770000@hopeforhie.org
SUMMARY:Traveling with Children with HIE: Support Group
DESCRIPTION:Join Hope for HIE on Thursday\, June 24\, at 12:00 PM ET for a support group session for parents and legal guardians navigating travel with children who have HIE/complex medical needs.\n\n➡️ This closed Zoom session will be led by our certified social worker\, Jen\, and facilitated by two of Hope’s Peer Support Mentors\, Allison and Megan\, along with community member Shawn. Together\, they’ll help create a supportive space for families to share and connect around:\n\n🎯 Practical tips for planning safe and comfortable travel with children who have medical and mobility challenges\n 🎯 How to pack and prepare essential medical supplies\, equipment\, and documentation for your trip\n 🎯 Strategies to manage sensory sensitivities\, feeding needs\, and medication schedules while away from home\n\n🔗 Register at: Tinyurl.com/HIENavigatingTravel
URL:https://hopeforhie.org/event/traveling-with-children-with-hie-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250701T100000
DTEND;TZID=America/Detroit:20250701T110000
DTSTAMP:20250623T124330Z
CREATED:20250623T124330Z
LAST-MODIFIED:20250623T124330Z
UID:19473-1751364000-1751367600@hopeforhie.org
SUMMARY:Extended Family Support
DESCRIPTION:Join Hope for HIE on Tuesday\, July 1\, at 10:00 AM ET for our video support group designated for extended family members of children impacted by HIE.\n\n➡️ This closed Zoom meeting\, led by our certified social worker\, Jen\, and facilitated by Peer Support Mentor\, Carol\, provides a supportive space for grandparents\, aunts\, uncles\, and other family members to connect\, learn\, and discuss ways to best support their loved ones on the HIE journey.\n\n🔗 Register at: Tinyurl.com/HIEExtendedFamilyJuly25
URL:https://hopeforhie.org/event/extended-family-support-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250703T200000
DTEND;TZID=America/Detroit:20250703T210000
DTSTAMP:20250623T132944Z
CREATED:20250623T124459Z
LAST-MODIFIED:20250623T132944Z
UID:19476-1751572800-1751576400@hopeforhie.org
SUMMARY:Newly Diagnosed Families
DESCRIPTION:Join Hope for HIE on Thursday\, July 3\, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis).\n\n➡️ In this closed Zoom meeting experience led by Allison Moise\, BSW\, and facilitated by one of our Peer Support Mentors\, Stephanie\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n🔗Register: Tinyurl.com/NewtoHIE
URL:https://hopeforhie.org/event/newly-diagnosed-families/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250710T200000
DTEND;TZID=America/Detroit:20250710T210000
DTSTAMP:20250623T124601Z
CREATED:20250623T124601Z
LAST-MODIFIED:20250623T124601Z
UID:19479-1752177600-1752181200@hopeforhie.org
SUMMARY:Loss Family Support
DESCRIPTION:Join Hope for HIE on Thursday\, July 10\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting led by our certified social worker\, Jen\, and facilitated by one of Hope’s Peer Support Mentors\, Jill\, families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n🔗 Register: Tinyurl.com/HIELossSupport
URL:https://hopeforhie.org/event/loss-family-support-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250715T120000
DTEND;TZID=America/Detroit:20250715T140000
DTSTAMP:20250604T133416Z
CREATED:20250604T133300Z
LAST-MODIFIED:20250604T133416Z
UID:19285-1752580800-1752588000@hopeforhie.org
SUMMARY:Park Play Date - Seattle\, WA
DESCRIPTION:Seattle families — meet up for a park play date!\n\nTina Santos\, HIE mom and HIE Hospital Ambassador at Seattle Children's Hospital\, is hosting an inclusive park play date for local HIE families.\n\n?️ Tuesday\, July 15\n? 12:00 – 2:00 PM\n? Pathways Park\, 5201 Sand Point Way NE\, Seattle\, WA\n\nThis accessible park is conveniently located next to Seattle Children’s and the Ronald McDonald House\, boasting a range of inclusive features\, including wheelchair-accessible swings\, artificial turf paths\, and height-adjustable changing tables. Bring the whole family for fun\, support\, and connection!\n\n➡️ Register: Tinyurl.com/SeattleSummer2025
URL:https://hopeforhie.org/event/park-play-date-seattle-wa/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250722T120000
DTEND;TZID=America/Detroit:20250722T130000
DTSTAMP:20250623T124931Z
CREATED:20250623T124920Z
LAST-MODIFIED:20250623T124931Z
UID:19482-1753185600-1753189200@hopeforhie.org
SUMMARY:Peer Mentor Support Office Hours
DESCRIPTION:Join Hope for HIE on Tuesday\, July 22\, at 12:00 PM ET for our Peer Mentor Office Hours\, where you can connect 1:1 with our Peer Support Mentor - Brandon - for immediate support in a safe and supportive setting. This is a great opportunity to receive real-time guidance\, ask questions\, build connections\, and see if a formal connection with a mentor is a good fit for you.\n\nImportant Details:\n\n📌 Log on anytime during the session\, but please join at least 10 minutes before the end time at 1:00 PM ET.\n📌 If applicable\, you’ll placed in a breakout room with a mentor based on your specific needs or HIE impact/outcome.\n📌 This session is for parents and legal guardians of children with HIE.\n\n🔗Register: Tinyurl.com/HIEOfficeHoursJuly25
URL:https://hopeforhie.org/event/peer-mentor-support-office-hours/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250729T120000
DTEND;TZID=America/Detroit:20250729T130000
DTSTAMP:20250728T185650Z
CREATED:20250623T125038Z
LAST-MODIFIED:20250728T185650Z
UID:19485-1753790400-1753794000@hopeforhie.org
SUMMARY:HIE & Back to School Readiness
DESCRIPTION:Join Hope for HIE on Tuesday\, July 29\, at 12:00 PM ET for a virtual support group session focused on HIE & Back-to-School Readiness — open to all parents and legal guardians preparing for the school year with children who have HIE and complex medical needs.\n\n➡️ This closed Zoom session will be led by our certified social worker\, Jen\, and facilitated by Peer Support Mentors\, Ashley and Kara. Together\, they’ll help create a supportive space for families to share\, learn\, and connect around:\n\n🎯 Preparing school staff & sharing your child’s needs\n🎯 Navigating back-to-school checklists & IEPs\n🎯 Supporting your child emotionally\n🎯 Sharing tips\, tools\, concerns\, and wins from parents\n\n🔗 Register at: Tinyurl.com/HIEBacktoSchool2025
URL:https://hopeforhie.org/event/hie-back-to-school-readiness/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250807T200000
DTEND;TZID=America/Detroit:20250807T210000
DTSTAMP:20250721T141515Z
CREATED:20250721T141515Z
LAST-MODIFIED:20250721T141515Z
UID:19655-1754596800-1754600400@hopeforhie.org
SUMMARY:Newly Diagnosed Support Group
DESCRIPTION:Join Hope for HIE on Thursday\, August 7\, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis).\n\n➡️ In this closed Zoom meeting experience\, led by our certified social worker\, Jen\, and facilitated by two of our Peer Support Mentors\, Megan and Meagan\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n🔗 Register: Tinyurl.com/NewtoHIE
URL:https://hopeforhie.org/event/newly-diagnosed-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250809T160000
DTEND;TZID=America/Detroit:20250809T180000
DTSTAMP:20250604T133917Z
CREATED:20250604T133800Z
LAST-MODIFIED:20250604T133917Z
UID:19287-1754755200-1754762400@hopeforhie.org
SUMMARY:Caregiver Time Out - Seattle\, WA
DESCRIPTION:Seattle families - meet up for some well-deserved relaxation and time out!\n\nTina Santos\, HIE mom and Hospital Ambassador at Seattle Children's Hospital\, is hosting this summer gathering for HIE parents and caregivers.\n\n?️ Saturday\, August 9\n? 4:00 – 6:00 PM\n? Lake Wilderness\, 22500 SE 248th St\, Maple Valley\, WA\n\nThis lake does not allow motors; only floaties and fresh air are permitted. Whether you bring a paddleboard or just a beach chair\, enjoy some well-deserved rest\, connection\, sunshine\, and support with other HIE parents. Light snacks and water will be provided.\n\n➡️ Register: Tinyurl.com/SeattleSummer2025
URL:https://hopeforhie.org/event/caregiver-time-out-seattle-wa/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250814T200000
DTEND;TZID=America/Detroit:20250814T210000
DTSTAMP:20250721T141636Z
CREATED:20250721T141636Z
LAST-MODIFIED:20250721T141636Z
UID:19658-1755201600-1755205200@hopeforhie.org
SUMMARY:Loss Support Group
DESCRIPTION:Join Hope for HIE on Thursday\, August 14\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting led by our certified social worker\, Jen\, and facilitated by one of Hope’s Peer Support Mentor\, Kimberly\, families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n🔗 Register: Tinyurl.com/HIELossSupport
URL:https://hopeforhie.org/event/loss-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250819T120000
DTEND;TZID=America/Detroit:20250819T130000
DTSTAMP:20250714T130704Z
CREATED:20250714T123620Z
LAST-MODIFIED:20250714T130704Z
UID:19617-1755604800-1755608400@hopeforhie.org
SUMMARY:Getting Involved: Peer Support & Volunteering
DESCRIPTION:💙 We See You—And We Can’t Do This Without You!\n\nJoin Hope for HIE on August 19 at 12 PM ET to explore meaningful (and flexible!) ways to get involved in our community.\n\nWhether you’ve answered a question\, shared your story\, or offered a kind word—you’re already doing powerful peer support! Listen to our Peer Support Mentors\, Amanda H. and Megan C.\, along with one of our HIE Hospital Ambassadors\, Tina S.\, as they share how they have turned their personal experiences into impactful ways to give back.\n\nLearn and ask about:\n🎙️ Sharing your story in a Peer Perspective panel\n👥 Co-facilitating virtual support groups\n🧠 Giving feedback on new resources\n🤝 Becoming a trained Peer Mentor or Hospital Ambassador\n\nBig or small\, there’s space for you to get involved and give back!\n\n🔗 Register: Tinyurl.com/HIEGetInvolved
URL:https://hopeforhie.org/event/getting-involved-peer-support-volunteering/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250819T200000
DTEND;TZID=America/Detroit:20250819T210000
DTSTAMP:20250721T141744Z
CREATED:20250721T141744Z
LAST-MODIFIED:20250721T141744Z
UID:19661-1755633600-1755637200@hopeforhie.org
SUMMARY:Pregnancy After HIE Loss Support Group
DESCRIPTION:Join Hope for HIE on Tuesday\, August 19\, at 8:00 PM ET for a virtual support group focused on Pregnancy After HIE Loss — open to birthing parents seeking additional support and guidance.\n\n➡️ This closed Zoom session will be led by our licensed social worker\, Jen\, and facilitated by Peer Support Mentor\, Kimberly. Together\, they’ll create a supportive space to share\, connect\, and explore:\n🎯 Navigating joy\, grief\, and pregnancy-specific stressors\n🎯 Caring for yourself while managing family dynamics & relationships\n🎯 Building hope and preparing for what’s ahead\n\n🔗 Register: Tinyurl.com/PregnancyAfterHIELossAug25
URL:https://hopeforhie.org/event/pregnancy-after-hie-loss-support-group/
END:VEVENT
END:VCALENDAR