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X-WR-CALNAME:Hope for HIE - Hypoxic Ischemic Encephalopathy
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X-WR-CALDESC:Events for Hope for HIE - Hypoxic Ischemic Encephalopathy
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DTSTART;TZID=America/Detroit:20250326T120000
DTEND;TZID=America/Detroit:20250326T133000
DTSTAMP:20250311T155138Z
CREATED:20250311T155138Z
LAST-MODIFIED:20250311T155138Z
UID:18928-1742990400-1742995800@hopeforhie.org
SUMMARY:Navigating Dyskinetic CP: HIE Peer Perspectives
DESCRIPTION:Join Hope for HIE on Wednesday\, March 26\, at 12:00 PM ET for the next installment of our HIE Peer Perspective Series\, where HIE parents Shawn P. and Kalyn B. will share their experiences navigating Dyskinetic Cerebral Palsy (DCP) before opening it up to your own insights and questions.\n\nThey will explore:\n? Navigating daily life with DCP and its common challenges.\n? Their experiences caring for a child with DCP\, including practical tips for managing involuntary movements and instating daily routines.\n? Their perspectives on what therapies and treatments have helped and evolved over time.\n? What they wish they had known earlier and advice for families newly navigating DCP.\n\n? Register
URL:https://hopeforhie.org/event/navigating-dyskinetic-cp-hie-peer-perspectives/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250326T100000
DTEND;TZID=America/Detroit:20250326T110000
DTSTAMP:20250314T171236Z
CREATED:20250314T171236Z
LAST-MODIFIED:20250314T171236Z
UID:18945-1742983200-1742986800@hopeforhie.org
SUMMARY:Child Life Q&A: Comfort Positions
DESCRIPTION:Join Hope for HIE on Wednesday\, March 26th\, at 10:00 AM ET for a LIVE Q&A with Annie Gunning\, CCLS\, to explore how comfort positioning can help reduce stress and trauma for children during medical experiences.\n\nIn this session\, she will:\n ? Define comfort positions and explain their benefits in medical settings\n ? Demonstrate different comfort positions and when to use them\n ? Share practical tips for parents and caregivers to support children before\, during\, and after procedures\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n ? Facebook.com/HopeforHIE \n ? Instagram.com/HopeforHIE \n ? Youtube.com/HopeforHIE
URL:https://hopeforhie.org/event/child-life-qa-comfort-positions/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250324T200000
DTEND;TZID=America/Detroit:20250324T210000
DTSTAMP:20250220T173546Z
CREATED:20250220T173546Z
LAST-MODIFIED:20250220T173546Z
UID:18859-1742846400-1742850000@hopeforhie.org
SUMMARY:HIE Dad Support
DESCRIPTION:Join Hope for HIE on Monday\, March 24\, at 8:00 PM ET for our video support group for HIE Dads.\n\n➡️ This closed Zoom meeting\, led by two of Hope for HIE’s Peer Support Mentors -- Romm and Brandon -- provides a safe space for fellow HIE Dads to discuss:\n? The emotional journey of witnessing a medical emergency\n? Balancing support for your partner and child\n? Finding community and navigating the role of an HIE Dad\n\n? Register at: Tinyurl.com/HIEDadSupportMar25
URL:https://hopeforhie.org/event/hie-dad-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250324T130000
DTEND;TZID=America/Detroit:20250324T140000
DTSTAMP:20250318T190624Z
CREATED:20250314T171556Z
LAST-MODIFIED:20250318T190624Z
UID:18947-1742821200-1742824800@hopeforhie.org
SUMMARY:Engaging Elected Officials for HIE Change: Q&A with David Ford
DESCRIPTION:Join Hope for HIE on Monday\, March 24th\, at 1:00 PM ET for a LIVE Q&A with David Ford\, Hope for HIE’s Board President\, on engaging elected officials for HIE change.\n\nIn this session\, he will:\n ? Share strategies for effectively engaging and building relationships with elected officials\n ? Discuss how families can advocate for HIE at the local\, national\, and international levels\n ? Provide actionable steps for HIE families to craft key messaging to make their voices heard\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n ? Facebook.com/HopeforHIE\n ? Instagram.com/HopeforHIE\n ? YouTube.com/HopeforHIE
URL:https://hopeforhie.org/event/engaging-elected-officials-for-hie-change-qa-with-david-ford/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250318T120000
DTEND;TZID=America/Detroit:20250318T130000
DTSTAMP:20250220T173740Z
CREATED:20250220T173429Z
LAST-MODIFIED:20250220T173740Z
UID:18858-1742299200-1742302800@hopeforhie.org
SUMMARY:Parenting with Limited Support
DESCRIPTION:Join Hope for HIE on Tuesday\, March 18\, at 12:00 PM ET for a video support group for parents and legal guardians navigating the HIE journey with limited support.\n\n➡️ In this closed Zoom meeting\, led by Hope’s certified social worker - Jen - families will find a space of healing and hope as they explore:\n? Identifying formal supports and creating a plan for help\n? Managing emotional strain and mental health\n? Building a supportive peer community\n\n? Register at: Tinyurl.com/HIELimitedSupportMar25
URL:https://hopeforhie.org/event/parenting-with-limited-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250313T200000
DTEND;TZID=America/Detroit:20250313T210000
DTSTAMP:20250220T173319Z
CREATED:20250220T173319Z
LAST-MODIFIED:20250220T173319Z
UID:18857-1741896000-1741899600@hopeforhie.org
SUMMARY:Loss Family Support
DESCRIPTION:Join Hope for HIE on Thursday\, March 13\, at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting led by our certified social worker - Jen - and facilitated by one of Hope’s Peer Support Mentors – Walker – families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n? Register at: Tinyurl.com/HIELossSupport
URL:https://hopeforhie.org/event/loss-family-support-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250312T120000
DTEND;TZID=America/Detroit:20250312T130000
DTSTAMP:20250220T173145Z
CREATED:20250220T173136Z
LAST-MODIFIED:20250220T173145Z
UID:18856-1741780800-1741784400@hopeforhie.org
SUMMARY:Peer Support Mentor Office Hours
DESCRIPTION:Join Hope for HIE on Wednesday\, March 12\, at 12:00 PM ET for our Peer Mentor Office Hours\, where you can connect 1:1 with our Peer Support Mentors - Kara and Crystal - for immediate support in a safe and supportive setting. This is a great opportunity to receive real-time guidance\, ask questions\, build connections\, and see if a formal connection with a mentor is a good fit for you.\n\nImportant Details:\n? Log on anytime during the session\, but please join at least 10 minutes before the end time at 1:00 PM ET.\n? You’ll be placed in a breakout room with a mentor based on your specific needs or HIE impact/outcome.\n? This session is for parents/legal guardians of children with HIE.\n\n? Register at: Tinyurl.com/HIEOfficeHoursMar25
URL:https://hopeforhie.org/event/peer-support-mentor-office-hours/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250306T200000
DTEND;TZID=America/Detroit:20250306T210000
DTSTAMP:20250220T172946Z
CREATED:20250220T172946Z
LAST-MODIFIED:20250220T172946Z
UID:18850-1741291200-1741294800@hopeforhie.org
SUMMARY:Newly Diagnosed Support
DESCRIPTION:Join Hope for HIE on Thursday\, March 6\, at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis).\n\n➡️ In this closed Zoom meeting experience\, led by our certified social worker – Jen – and facilitated by two of Hope’s Peer Support Mentors – Allison and Meagan – families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n?Register at: Tinyurl.com/NewtoHIE
URL:https://hopeforhie.org/event/newly-diagnosed-support-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250304T190000
DTEND;TZID=America/Detroit:20250304T210000
DTSTAMP:20250204T180312Z
CREATED:20250204T180034Z
LAST-MODIFIED:20250204T180312Z
UID:18776-1741114800-1741122000@hopeforhie.org
SUMMARY:Seattle Local Resource Brainstorm
DESCRIPTION:Join Tina Santos\, Hope's HIE Hospital Ambassador for Seattle Children's\, on Wednesday\, March 5\, at 7:00 PM PT for an informal Zoom session where families can drop in to brainstorm and gather input to build a sheet of local resources for HIE families\, including programs like the WA Elks Therapy program and Emma’s Exceptional Equipment Exchange.\n\nThis is a relaxed\, no-pressure event—feel free to join with kids\, dinner\, or whatever you need. We’re looking to connect and share resources to better support one another. Come with your ideas\, or just listen in!\n\n? Register: Tinyurl.com/SeattleResourceBrainstorm 
URL:https://hopeforhie.org/event/seattle-local-resource-brainstorm/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250225T120000
DTEND;TZID=America/Detroit:20250225T130000
DTSTAMP:20250127T162435Z
CREATED:20250127T162322Z
LAST-MODIFIED:20250127T162435Z
UID:18734-1740484800-1740488400@hopeforhie.org
SUMMARY:Extended Family Support
DESCRIPTION:Join Hope for HIE on Tuesday\, February 25th at 12:00 PM ET for our video support group designated for extended family members of children impacted by HIE.\n\n➡️ This closed Zoom meeting\, led by our certified social worker\, Jen\, provides a supportive space for grandparents\, aunts\, uncles\, and other extended family members to connect\, learn\, and discuss ways to best support their loved ones on their HIE journey.\n\n? Register at: Tinyurl.com/HIEExtendedFamilyFeb25
URL:https://hopeforhie.org/event/extended-family-support-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250218T123000
DTEND;TZID=America/Detroit:20250218T133000
DTSTAMP:20250127T122537Z
CREATED:20250127T122537Z
LAST-MODIFIED:20250127T122537Z
UID:18729-1739881800-1739885400@hopeforhie.org
SUMMARY:Oral Health Disparities: Q&A with Rachyl Adams\, DDS Candidate
DESCRIPTION:Join us for a live Q&A on Tuesday\, February 18th at 12:30 PM ET with Rachyl Adams\, DMD Candidate at Boston University Henry M. Goldman School of Dental Medicine\, as she shares an update on oral health disparities research led by Matthew Mara\, DDS.\nThis session will explore:? The “whats” and “whys” behind dental disparities\, specifically for those who have suffered a brain injury\, and how it can lead to inequity of care.\n? The survey’s findings\, next steps\, and what this means regarding future research and education for our HIE families.? Resources to help families advocate for and learn more about oral and dental health.\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:? Facebook.com/HopeforHIE? Instagram.com/HopeforHIE? YouTube.com/HopeforHIE
URL:https://hopeforhie.org/event/oral-health-disparities-qa-with-rachyl-adams-dds-candidate/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250217T120000
DTEND;TZID=America/Detroit:20250217T130000
DTSTAMP:20250127T162515Z
CREATED:20250127T162140Z
LAST-MODIFIED:20250127T162515Z
UID:18731-1739793600-1739797200@hopeforhie.org
SUMMARY:Heart & HIE Support
DESCRIPTION:Join Hope for HIE on Monday\, February 17th at 12:00 PM ET for a video support group for parents and legal guardians navigating the complexities of their child’s HIE diagnosis alongside heart-related challenges.\n\n➡️ Led by our certified social worker\, Jen\, and facilitated by one of our Peer Support Mentors - Crystal - this closed Zoom meeting offers a safe space to find comfort\, share experiences\, ask questions\, and connect with others on similar journeys.\n\n? Register at: Tinyurl.com/HIEHeartSupport
URL:https://hopeforhie.org/event/heart-hie-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250213T200000
DTEND;TZID=America/Detroit:20250213T210000
DTSTAMP:20250121T171417Z
CREATED:20250121T171417Z
LAST-MODIFIED:20250121T171417Z
UID:18725-1739476800-1739480400@hopeforhie.org
SUMMARY:Loss Support
DESCRIPTION:Join Hope for HIE on Thursday\, February 13th at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting experience led by our certified social worker\, Jen\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n? Register at: Tinyurl.com/HIELossSupport
URL:https://hopeforhie.org/event/loss-support-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250206T200000
DTEND;TZID=America/Detroit:20250206T210000
DTSTAMP:20250121T163635Z
CREATED:20250121T163635Z
LAST-MODIFIED:20250121T163635Z
UID:18723-1738872000-1738875600@hopeforhie.org
SUMMARY:Newly Diagnosed Support
DESCRIPTION:Join Hope for HIE on Thursday\, February 6th at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis).\n\n➡️ In this closed Zoom meeting experience led by our certified social worker\, Jen\, and facilitated by one of Hope’s Peer Support Mentors – Stephanie – families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n? Register at: Tinyurl.com/NewtoHIE
URL:https://hopeforhie.org/event/newly-diagnosed-support-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250128T113000
DTEND;TZID=America/Detroit:20250128T120000
DTSTAMP:20250120T011707Z
CREATED:20250120T011707Z
LAST-MODIFIED:20250120T011707Z
UID:18720-1738063800-1738065600@hopeforhie.org
SUMMARY:Q&A with Jennifer Schaefer\, CAPSW: Hope's New Social Worker
DESCRIPTION:Join us on Tuesday\, January 28th at 11:30 AM ET for a live introduction to Jennifer Schaefer\, CAPSW\, who has joined the Hope for HIE team as our Certified Social Worker!\n\nIn this session\, Jen will share:\n? How her 17 years of social work experience (with direct NICU experience) qualifies her to provide compassionate and informed support for HIE families.\n? How she’ll be leading and managing support programming for HIE families and expanding our global referral and advocacy network.\n? How families can connect with her and utilize her expertise alongside Hope for HIE's support programs and resources.\n\n \n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n\n? Facebook.com/HopeforHIE\n\n? Instagram.com/HopeforHIE\n\n? YouTube.com/HopeforHIE
URL:https://hopeforhie.org/event/qa-with-jennifer-schaefer-capsw-hopes-new-social-worker/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250123T120000
DTEND;TZID=America/Detroit:20250123T130000
DTSTAMP:20241219T163133Z
CREATED:20241219T161554Z
LAST-MODIFIED:20241219T163133Z
UID:18658-1737633600-1737637200@hopeforhie.org
SUMMARY:BIPOC Support
DESCRIPTION:Join Hope for HIE on Thursday\, January 23rd at 12:00 PM ET for our video support group designated for our parents and legal guardians within the BIPOC community.\n\n➡️ In this closed Zoom meeting led by Hope for HIE's licensed social worker\, Jen\, and facilitated by one of our peer support mentors – Megan Carter – families will be engaged in a space of healing and hope\, talking with others to build connections and support.\n\n➡️ Register using this link: Tinyurl.com/HIEBIPOCJan25
URL:https://hopeforhie.org/event/bipoc-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250116T200000
DTEND;TZID=America/Detroit:20250116T210000
DTSTAMP:20241219T161035Z
CREATED:20241219T161035Z
LAST-MODIFIED:20241219T161035Z
UID:18656-1737057600-1737061200@hopeforhie.org
SUMMARY:Navigating Work Life Balance
DESCRIPTION:Join Hope for HIE on Thursday\, January 16th at 8:00 PM ET for our video support group session designated for parents balancing a career while managing the responsibilities of caring for a child with HIE and their unique medical needs.\n\n➡️ This closed Zoom session is led by one of Hope’s Peer Support Mentors– Allison Moise – to help lead families in a space of support\, healing\, connection\, and hope.\n\n? Register using this link: Tinyurl.com/HIEWorkLifeBalanceJan25
URL:https://hopeforhie.org/event/navigating-work-life-balance/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250109T200000
DTEND;TZID=America/Detroit:20250109T210000
DTSTAMP:20241219T160846Z
CREATED:20241219T160846Z
LAST-MODIFIED:20241219T160846Z
UID:18654-1736452800-1736456400@hopeforhie.org
SUMMARY:Loss Support
DESCRIPTION:Join Hope for HIE on Thursday\, January 9th at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting experience facilitated by Hope’s social worker\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n? Register at: Tinyurl.com/HIELossSupport
URL:https://hopeforhie.org/event/loss-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250102T200000
DTEND;TZID=America/Detroit:20250102T210000
DTSTAMP:20241219T160550Z
CREATED:20241219T160550Z
LAST-MODIFIED:20241219T160550Z
UID:18651-1735848000-1735851600@hopeforhie.org
SUMMARY:New to HIE
DESCRIPTION:Join Hope for HIE on Thursday\, January 2nd at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis).\n\n➡️ In this closed Zoom meeting experience\, facilitated by one of Hope’s Peer Support Mentors – Allison Moise – families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n➡️ Register at: Tinyurl.com/NewtoHIE
URL:https://hopeforhie.org/event/new-to-hie/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20241212T200000
DTEND;TZID=America/Detroit:20241212T210000
DTSTAMP:20241202T171939Z
CREATED:20241202T171939Z
LAST-MODIFIED:20241202T171939Z
UID:18542-1734033600-1734037200@hopeforhie.org
SUMMARY:Loss Family Support Group
DESCRIPTION:Join Hope for HIE on Thursday\, December 12th at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting experience\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n? Register at: Tinyurl.com/HIELossSupport
URL:https://hopeforhie.org/event/loss-family-support-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20241209T200000
DTEND;TZID=America/Detroit:20241209T210000
DTSTAMP:20241119T194447Z
CREATED:20241119T194447Z
LAST-MODIFIED:20241119T194447Z
UID:18499-1733774400-1733778000@hopeforhie.org
SUMMARY:Navigating Hip Surgery
DESCRIPTION:Join Hope for HIE on Monday\, December 9th at 8:00 PM ET for the next installment of our HIE Peer Perspective series\, where Allison Moise and Romm Niblett - HIE parents and Peer Support Mentors - will offer insights for families navigating the journey of preparing for or recovering from hip surgery.\n\n?What to know and consider before surgery\, including planning and preparations.\n\n?Insights into the surgery experience and post-op care in the hospital.\n\n?Practical tips for navigating recovery at home\, including managing comfort\, mobility\, and resources.\n\n? Register at: Tinyurl.com/NavigatingHipSurgery
URL:https://hopeforhie.org/event/navigating-hip-surgery/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20241207T100000
DTEND;TZID=America/Detroit:20241207T120000
DTSTAMP:20241001T132448Z
CREATED:20241001T132416Z
LAST-MODIFIED:20241001T132448Z
UID:18302-1733565600-1733572800@hopeforhie.org
SUMMARY:Seattle\, WA Area: Morning Coffee Meet & Greet
DESCRIPTION:Families in the Seattle\, WA Area: Join Us for a Morning Coffee Meet & Greet!\n\n? Date: Saturday\, 12/7\n? Time: 10:00 am – 12:00 pm\n? Location: Candor Coffee\, 200 SW 43rd St\, Renton\, WA 98057\n\nCome connect with fellow HIE families for a morning of coffee\, community\, and conversation. This meet-and-greet is all about building community and sharing the journey together. Whether you come as parents or bring your HIE child and their siblings\, everyone is welcome!\n\nHosted by Tina Santos\, HIE mom and Hope for HIE Hospital Ambassador for Seattle Children's Hospital\, this gathering is a great chance to bond with others who understand what it’s like to navigate life with HIE\, find support\, meet new friends\, and build meaningful relationships within our community.\n\nWe can’t wait to see you there!\n\n?Register for this event: Tinyurl.com/Seattle2024HIEFamilyMeetUps
URL:https://hopeforhie.org/event/seattle-wa-area-morning-coffee-meet-greet/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20241205T200000
DTEND;TZID=America/Detroit:20241205T210000
DTSTAMP:20241119T193350Z
CREATED:20241119T193350Z
LAST-MODIFIED:20241119T193350Z
UID:18497-1733428800-1733432400@hopeforhie.org
SUMMARY:Newly Diagnosed Support
DESCRIPTION:Join Hope for HIE on Thursday\, December 5th at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis).\n\n➡️ In this closed Zoom meeting experience\, facilitated by one of Hope’s Peer Support Mentors – Megan Carter – families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n➡️ Register at: Tinyurl.com/NewtoHIE
URL:https://hopeforhie.org/event/newly-diagnosed-support-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20241202T120000
DTEND;TZID=America/Detroit:20241202T130000
DTSTAMP:20241119T212218Z
CREATED:20241119T192555Z
LAST-MODIFIED:20241119T212218Z
UID:18495-1733140800-1733144400@hopeforhie.org
SUMMARY:Extended Family Support
DESCRIPTION:Join Hope for HIE on Monday\, December 2nd at 12:00 PM ET for our video support group designated for extended family members of children impacted by HIE.\n\n➡️ This closed Zoom meeting\, facilitated by one of Hope’s Peer Support Mentors - Carol Stuart - provides a supportive space for grandparents\, aunts\, uncles\, and other family members to connect\, learn\, and discuss ways to best support their loved ones on the HIE journey. Participants will gain insight into the unique challenges and needs these families face\, explore effective ways to show support\, and share experiences and resources.\n\n? Register at: Tinyurl.com/HIEExtendedFamilyDec24
URL:https://hopeforhie.org/event/extended-family-support/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20241122T100000
DTEND;TZID=America/Detroit:20241122T110000
DTSTAMP:20241101T132428Z
CREATED:20241101T132428Z
LAST-MODIFIED:20241101T132428Z
UID:18424-1732269600-1732273200@hopeforhie.org
SUMMARY:NSR Research Update: Q&A with Dr. Monica Lemmon and Natalie Field
DESCRIPTION:Join Hope for HIE on Friday\, November 22nd at 10:00 AM ET for a LIVE Neonatal Seizure Registry Research Update with Dr. Monica Lemmon\, Pediatric Neurologist at Duke Health\, and Natalie Field\, medical student at Duke University and primary author of the NSR's recently published study on the long-term emotional experience of parents after neonatal seizures.\n\nIn this session\, they will:\n? Provide an overview of previously published work with the Neonatal Seizure Registry\n? Explore interesting findings and insights from the most recent NSR study that focuses on parent well-being\n? Discuss the future of this research and ways it will aim to address gaps to improve resources\, resilience\, and interventions for these families\, as well as how Hope families can potentially get involved.\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n? Facebook.com/HopeforHIE\n? Instagram.com/HopeforHIE\n? YouTube.com/HopeforHIE
URL:https://hopeforhie.org/event/nsr-research-update-qa-with-dr-monica-lemmon-and-natalie-field/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20241121T200000
DTEND;TZID=America/Detroit:20241121T210000
DTSTAMP:20241022T163543Z
CREATED:20241022T163543Z
LAST-MODIFIED:20241022T163543Z
UID:18375-1732219200-1732222800@hopeforhie.org
SUMMARY:Navigating the Holidays
DESCRIPTION:Join Hope for HIE on Thursday\, November 21st at 8:00 PM ET for our video support group designed to support HIE parents and legal guardians navigate the holiday season.\n\n➡️ In this closed Zoom meeting\, led by Hope’s Peer Support Mentor Allison Moise\, you will have the chance to connect and share your experiences of navigating the holidays with a child impacted by HIE. Whether it’s the challenge of traveling\, missing family gatherings\, or managing illness\, this group offers a space to talk about the difficult aspects of the holiday season.\n\n? Register at: Tinyurl.com/HIENavigatingHolidaysNov24
URL:https://hopeforhie.org/event/navigating-the-holidays/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20241120T100000
DTEND;TZID=America/Detroit:20241120T223000
DTSTAMP:20241101T150204Z
CREATED:20241101T132103Z
LAST-MODIFIED:20241101T150204Z
UID:18422-1732096800-1732141800@hopeforhie.org
SUMMARY:Q&A: Hope Welcomes Clinical Research Program Manager
DESCRIPTION:Join us on Wednesday\, November 20th at 10:00 AM ET for an introduction to Gina Abraham\, MS\, who has joined the Hope for HIE team as our Clinical Research Program Manager.\n\nIn this session\, Gina will share:\n? How her work at Hope focuses on bringing meaningful support to our community.\n? Updates on academic and industry partnerships advancing HIE research and care.\n? The importance of family perspectives and input in studies like COOL PRIME\, STAR\, and other upcoming trials.\n? Insights on the new registry work designed to improve outcomes and understanding of HIE.\n\nTune in LIVE on our Facebook\, Instagram\, or YouTube channels:\n? Facebook.com/HopeforHIE\n? Instagram.com/HopeforHIE\n? YouTube.com/HopeforHIE
URL:https://hopeforhie.org/event/qa-hope-welcomes-clinical-research-program-manager/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20241119T200000
DTEND;TZID=America/Detroit:20241119T210000
DTSTAMP:20241101T145437Z
CREATED:20241101T130932Z
LAST-MODIFIED:20241101T145437Z
UID:18418-1732046400-1732050000@hopeforhie.org
SUMMARY:HIE Registry Webinar with Dr. Danielle Barber
DESCRIPTION:Learn more about the upcoming HIE data registry project!\n\nJoin us on Tuesday\, November 19th at 8:00 PM ET for a LIVE webinar hosted by the Cerebral Palsy Research Network. Dr. Danielle Barber\, neonatal neurologist\, researcher at Children’s Hospital Colorado\, and principal investigator for this registry\, will discuss how this new registry will gather crucial data to better understand HIE’s long-term impacts and work toward improving outcomes for our community.\n\nDon’t miss this chance to gain insight into this groundbreaking initiative and discover how it aims to make a meaningful difference for families affected by HIE.\n\n? Register here: Tinyurl.com/HIERegistryWebinar
URL:https://hopeforhie.org/event/hie-registry-webinar-with-dr-danielle-barber/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20241119T120000
DTEND;TZID=America/Detroit:20241119T130000
DTSTAMP:20241022T163044Z
CREATED:20241022T163044Z
LAST-MODIFIED:20241022T163044Z
UID:18373-1732017600-1732021200@hopeforhie.org
SUMMARY:Navigating HIE: Ages 10+
DESCRIPTION:Join Hope for HIE on Tuesday\, November 19th at 12:00 PM ET for our video support group specifically for parents and legal guardians of HIE children ages 10 and above.\n\n➡️ In this closed Zoom meeting\, parents will have the opportunity to connect and share their experiences navigating the HIE journey through the school age and teen years. This group offers a space to discuss the unique challenges and joys of parenting as their children grow older\, from education and social dynamics to advocacy needs\, and more.\n\n? Register using this link: Tinyurl.com/NavigatingHIE10andAbove
URL:https://hopeforhie.org/event/navigating-hie-ages-10/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20241119T080000
DTEND;TZID=America/Detroit:20241119T170000
DTSTAMP:20241119T194726Z
CREATED:20241119T194726Z
LAST-MODIFIED:20241119T194726Z
UID:18501-1732003200-1732035600@hopeforhie.org
SUMMARY:Loss Family Support
DESCRIPTION:Join Hope for HIE on Thursday\, December 12th at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE\, either at birth or in childhood\, are invited to participate in this support group.\n\n➡️ In this closed Zoom meeting experience\, families will be engaged in a space of healing and hope\, no matter where their journey may take them\, talking with others to build connections and support.\n\n? Register at: Tinyurl.com/HIELossSupport\n\n 
URL:https://hopeforhie.org/event/loss-family-support/
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END:VCALENDAR