The NICU is a place no parent expects to be, yet for many families in our community, it’s where their journey with HIE begins. Those early days can bring uncertainty, questions, and unexpected challenges, and the experience can feel overwhelming at times. NICU Awareness Month is an opportunity to recognize these experiences, honor the resilience of families, and highlight what […]
No family should have to navigate an HIE diagnosis alone. That’s the heart of our HIE Ambassador Program — connecting families with a local, experienced member of our community who understands the road ahead, because they’ve walked it themselves. Ambassadors act as the “bridge” between their local hospital and health systems and Hope for HIE’s longitudinal support, offering education, connection, and a […]
Hope for HIE – Hypoxic Ischemic Encephalopathy – recognizes and elevates Disability Pride Month in July
Every April, HIE Awareness Month serves as a perfect time to elevate the voices of our community and our families. By sharing our stories and experiences with one another, we help to shape research and support services, and we build a stronger community and light the path brighter for the families to come. These spotlights share a small part of […]
Gabrielle Ward-Collier is a mother of 5 from Saint Johns, Michigan, USA. She and her husband were introduced to Hope for HIE while still in the NICU after their daughter Ophelia’s birth in 2022. They received a notecard with website information and immediately started reading through family resources, which helped them to know they were not alone during such an […]
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