An HIE diagnosis doesn’t just change your child’s story, it reshapes the relationships around you. In this Peer Perspective Series panel, two HIE moms, Shayna B. and Kati L., opened up about how relationships with partners, family, medical teams, and community shifted, strained, and grew across their HIE journeys. We’re sharing the key notes from the Peer Perspective Panel, along […]
Parenting a child with HIE is one of the most emotionally complex journeys a family can face, and yet conversations about parental mental health are still too rare. In this Peer Perspective Series panel, three HIE parents opened up about their own mental health journeys with honesty and vulnerability. Follow along as we highlight the key takeaways that Kat, Ravi, and Kori […]
Navigating an HIE diagnosis is its own complex journey—and for some families, that path eventually leads to a second diagnosis: autism. In this Peer Perspective panel, Hope for HIE social worker Jen Schaefer was joined by community members Crystal F., Kacie M., and Crystal E., who shared their lived experiences at the intersection of HIE and autism. Together, they explored […]
No matter its length, whether it’s a NICU stay, PICU stay, or hospitalization, the experience is often accompanied by trauma, and our HIE families want an anchor amidst the storm. In our recent conversation with Dr. Latrice L. Dowtin, Co-Chair of the National Network of NICU Psychologists, founder and clinician at PlayfulLeigh Psyched, and Hope for HIE Medical Advisory Board […]
I’ve read about intensive therapy centers in the Hope for HIE groups since Neala was a baby (she’s now 9 years old). It was so expensive and far away. Not to mention the fact that Neala could not even stand to ride in the car, let alone tolerate a cross-country flight. Years later, when we were financially able to sign […]
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