If I’ve learned anything over the last 13.5 years as a parent to a child with HIE, it’s that delays happen — in child development, in medical care, in travel, and sometimes in heating your house among other things.I was set to travel last night to the CHILDRENS HOSPITAL NEONATAL CONSORTIUM conference, as Hope for HIE was selected this year […]
Epilepsy and seizures are a common issue affecting about 50-60% of babies and children with HIE (hypoxic ischemic encephalopathy), a condition that occurs when a newborn or child’s brain doesn’t get enough oxygen. This can result in different types of seizures, from more common and manageable ones to rarer and more challenging forms. Having epilepsy can be worrying, but it’s […]
At this year’s Child Neurology Society Annual Meeting, a major seminar brought together leading experts, including patient advocacy, to talk about the importance of better screening for neonatal seizures, including the use of Continuous EEG (cEEG). Better screening ensures more information is known about a newborn’s neurological status, which often leads to different treatment paths, and even the confirmation of […]
For families navigating life after a diagnosis of Hypoxic Ischemic Encephalopathy (HIE), seizure management often becomes a central focus. Epilepsy is a common outcome of HIE, and while many children respond well to treatment, seizures remain a serious medical concern—especially when poorly controlled. One of the most devastating risks associated with all epilepsies is Sudden Unexpected Death in Epilepsy, or […]
Hypoxic-Ischemic Encephalopathy (HIE) is a type of brain injury that occurs when a newborn’s brain doesn’t receive enough oxygen and blood flow at or around the time of birth. This lack of oxygen can lead to long-term impacts, especially in how the brain develops and functions. Among the most challenging complications for children with HIE are certain types of epilepsy […]
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