One of the first questions families ask after an HIE diagnosis is also one of the hardest: “What is my child’s outcome going to be?” It’s an understandable question. Families want to know what life will look like, what their child may need, and what they should prepare for. The difficult answer is that HIE doesn’t have one outcome. HIE […]
September is NICU Awareness Month, a time to recognize the babies, families, and care teams whose lives are shaped by their experiences in the neonatal intensive care unit. On September 26, NICU Remembrance Day, we pause to honor the babies who died in the NICU and the families who carry their memory every day. For many families affected by HIE, […]
Please join us in welcoming Mitchelle Rao, the newest member of our Peer Support Mentor team! Mitchelle is an HIE mom living in Nairobi, Kenya, and her training brings us one step closer to making sure families across the globe have someone to talk to that understands. Read on to get to know Mitchelle, her son Jed, and the path that […]
Back-to-school season is here. This time of year can bring up a lot of big feelings, both for kids and for the parents supporting them. For many children with HIE, whether they’re entering the school system for the first time or coming back after a long summer break, new routines, new environments, and new expectations can feel like a lot […]
September is CVI Awareness Month! Hope for HIE was proud to exhibit at Perkins School for the Blind’s 2026 CVI Conference, “The Collective Power of Us,” held July 19–21 in Boston. Our table gave us the chance to connect directly with families, educators, and medical professionals in the CVI community from all over the world. Allison, our Program Coordinator, attended […]
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