One of the biggest challenges of being thrust into an unexpected journey with a baby facing HIE and/or neonatal seizures is sometimes feeling anxiety when people ask if you have any questions. Enter the Neonatal Seizure Registry — a research group that has been advancing care and understanding of the whole family impact of neonatal seizures, and building helpful tools […]
Epilepsy is one of the largest impacts from HIE, Hypoxic Ischemic Encephalopathy. Children across all outcomes can develop epilepsy, and HIE is a leading cause of several rare types of epilepsy such as Infantile Spasms, Lennox-Gastaut Syndrome, and ESES. Since seizures and HIE are so common, we recommend all families learn more about Seizure Action Plans, and go through Seizure First Aid training. Hope for HIE also supports all legislative efforts to improve the prevalence of Seizure Action Plans and Seizure First Aid through the Seizure Safe School campaign through the Epilepsy Foundation.
Epilepsy is a common issue affecting about 50-60% of the children with HIE (hypoxic ischemic encephalopathy), a condition that occurs when a newborn or child’s brain doesn’t get enough oxygen. This can result in different types of seizures, from more common and manageable ones to rarer and more challenging forms. Having epilepsy can be worrying, but it’s essential to know […]
EEGs can be very stressful to prepare for, live with, and clean up the literal mess they cause. But, with so many families going through them with their children, we’ve assembled the best advice, and some links from other vetted medical organizations to help you out. What is an EEG and why would my child get one? EEG (Electroencephalogram) is […]
Epilepsy is one of the largest impacts from HIE, Hypoxic Ischemic Encephalopathy. Children across all outcomes can develop epilepsy, and HIE is a leading cause of several rare types of epilepsy such as Infantile Spasms, Lennox-Gastaut Syndrome, and ESES. Since seizures and HIE are so common, we recommend all families learn more about Seizure Action Plans, and go through Seizure First Aid training. Hope for HIE also supports all legislative efforts to improve the prevalence of Seizure Action Plans and Seizure First Aid through the Seizure Safe School campaign through the Epilepsy Foundation.
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