This month, we opened the floor to the questions we hear most often from our community, the ones that come up again and again in messages, comments, and one-on-one calls. Annie Gunning, Hope for HIE’s Child Life Specialist and Grief Counselor, spent 20+ years working in a hospital child life department before bringing that same expertise into her role with […]
Simple Summer Activities That Support Emotional Expression, Coping, and Connection Summer doesn’t have to only include structured therapy or carefully planned interventions to be healing. Sometimes, the most powerful coping tool available to your child is already in their backyard — a bucket of water, a box of sidewalk chalk, or a pile of blocks. In this month’s Child Life […]
What families with HIE need from you when the honest answer is “wait and see” There’s a moment in almost every HIE journey when medicine runs out of certainty, or it never had it to begin with. And that’s ok! Uncertainty isn’t a failure. It’s often where hope is found and anchored for families facing the “wait and see” with […]
Many children in the HIE community undergo surgical procedures — sometimes several over the course of their lives. And yet, for most families, anesthesia can feel overwhelming or like a mystery. What exactly happens before, during, and after surgery? Who is on the team? And how do you prepare a child with HIE for what’s coming? In our recently streamed […]
Access to mental health support and resources is critically important for families who find themselves in the NICU and PICU. Parents whose children are admitted to the NICU or PICU have a 45-50% greater incidence of mental health disorders such as PTSD, Anxiety & Depression. There also remains significant inequity for non-white, non-preemie, non-maternal patients and families in the NICU, […]
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
Connect with families, read inspiring stories, and get helpful resources delivered right to your inbox.
